Literature DB >> 25475921

Perceptions of Latinas on the Traditional Prenatal Genetic Counseling Model.

Stephanie Thompson1, Sarah Jane Noblin, Jennifer Lemons, Susan K Peterson, Carlos Carreno, Andrea Harbison.   

Abstract

The traditional genetic counseling model encompasses an individualized counseling session that includes the presentation of information about genes, chromosomes, personalized risk assessment, and genetic testing and screening options. Counselors are challenged to balance the provision of enough basic genetic information to ensure clients' understanding of the genetic condition in question with a personalized discussion of what this information means to them. This study explored the perceptions Latinas have about prenatal genetic counseling sessions and aimed to determine if they had preferences about the delivery of care. Data were collected through focus groups and one-on-one, semi-structured interviews of 25 Spanish speaking Latinas who received genetic counseling during their current pregnancy. We implemented grounded theory to evaluate participant responses, and were able to identify common emergent themes. Several themes were identified including an overall satisfaction with their prenatal genetic counseling appointment, desire for a healthy baby, peace of mind following their appointment, lack of desire for invasive testing, and faith in God. Several participants stated a preference for group genetic counseling over the traditional individual genetic counseling model. Our data indicate that Latinas value the information presented at prenatal genetic counseling appointments despite disinterest in pursuing genetic testing or screening and suggest that group prenatal genetic counseling may be an effective alternative to the traditional genetic counseling model in the Latina population.

Entities:  

Mesh:

Year:  2014        PMID: 25475921     DOI: 10.1007/s10897-014-9797-1

Source DB:  PubMed          Journal:  J Genet Couns        ISSN: 1059-7700            Impact factor:   2.537


  13 in total

1.  Grounded theory in genetic counseling research: an interpretive perspective.

Authors:  Robin E Grubs; Maria Piantanida
Journal:  J Genet Couns       Date:  2010-02-02       Impact factor: 2.537

2.  A pre-visit tailored website enhances counselees' realistic expectations and knowledge and fulfils information needs for breast cancer genetic counselling.

Authors:  Akke Albada; Sandra van Dulmen; Dick Lindhout; Jozien M Bensing; Margreet G E M Ausems
Journal:  Fam Cancer       Date:  2012-03       Impact factor: 2.375

3.  Clinical myths of the cultural "other": implications for Latino patient care.

Authors:  Linda M Hunt; Katherine B de Voogd
Journal:  Acad Med       Date:  2005-10       Impact factor: 6.893

4.  Centering pregnancy. An interdisciplinary model of empowerment.

Authors:  S S Rising
Journal:  J Nurse Midwifery       Date:  1998 Jan-Feb

5.  Effectiveness of pre-counseling genetic education workshops at a large urban community health center serving low-income Chinese American women.

Authors:  Shao-Chee Sim; Xiaojie Diana Zhou; Laureen D Hom; Christine Chen; Rebecca Sze
Journal:  J Genet Couns       Date:  2011-08-09       Impact factor: 2.537

6.  Communication of genetic information by other health professionals: the role of the genetic counsellor in specialist clinics.

Authors:  Rosie O'Shea; Anne Marie Murphy; Eileen Treacy; Sally Ann Lynch; Kathryn Thirlaway; Debby Lambert
Journal:  J Genet Couns       Date:  2011-01-06       Impact factor: 2.537

7.  Exploring the role of religiosity and spirituality in amniocentesis decision-making among Latinas.

Authors:  Sarah Guerra Seth; Thomas Goka; Andrea Harbison; Lisa Hollier; Susan Peterson; Lois Ramondetta; Sarah Jane Noblin
Journal:  J Genet Couns       Date:  2011-06-22       Impact factor: 2.537

Review 8.  Informed consent: attitudes, knowledge and information concerning prenatal examinations.

Authors:  Katja Dahl; Ulrik Kesmodel; Lone Hvidman; Frede Olesen
Journal:  Acta Obstet Gynecol Scand       Date:  2006       Impact factor: 3.636

9.  Effect of a computer-based decision aid on knowledge, perceptions, and intentions about genetic testing for breast cancer susceptibility: a randomized controlled trial.

Authors:  Michael J Green; Susan K Peterson; Maria Wagner Baker; Gregory R Harper; Lois C Friedman; Wendy S Rubinstein; David T Mauger
Journal:  JAMA       Date:  2004-07-28       Impact factor: 56.272

10.  Comparison of centering pregnancy to traditional care in Hispanic mothers.

Authors:  Bethany Robertson; Dawn M Aycock; Laura A Darnell
Journal:  Matern Child Health J       Date:  2008-05-09
View more
  3 in total

1.  Implementing Group Prenatal Counseling for Expanded Noninvasive Screening Options.

Authors:  Betsy L Gammon; Laura Otto; Myra Wick; Kristy Borowski; Megan Allyse
Journal:  J Genet Couns       Date:  2017-12-15       Impact factor: 2.537

Review 2.  Latinx individuals' knowledge of, preferences for, and experiences with prenatal genetic testing: a scoping review.

Authors:  Natalie Grafft; Andrew A Dwyer; María Pineros-Leano
Journal:  Reprod Health       Date:  2022-06-06       Impact factor: 3.355

3.  Clients' Perception of Outcome of Team-Based Prenatal and Reproductive Genetic Counseling in Serbian Service Using the Perceived Personal Control (PPC) Questionnaire.

Authors:  Goran Cuturilo; Olivera Kontic Vucinic; Ivana Novakovic; Svetlana Ignjatovic; Marija Mijovic; Nenad Sulovic; Dusan Vukolic; Milica Komnenic; Jasmina Tadic; Aleksandar Cetkovic; Aleksandra Belic; Aleksandar Ljubic
Journal:  J Genet Couns       Date:  2015-08-04       Impact factor: 2.537

  3 in total

北京卡尤迪生物科技股份有限公司 © 2022-2023.