Literature DB >> 25022654

Practising family medicine for adults with intellectual disabilities: patient perspectives on helpful interactions.

Jennifer Baumbusch1, Alison Phinney2, Sarah Baumbusch3.   

Abstract

OBJECTIVE: To explore the perspectives of adults with intellectual disabilities (IDs) on helpful interactions with their family physicians.
DESIGN: Exploratory, qualitative study.
SETTING: Vancouver, BC. PARTICIPANTS: Purposive sample of 11 community-dwelling adults with IDs.
METHODS: In-depth, semistructured interviews were conducted face to face with participants. Interviews were audiorecorded and transcribed verbatim. Research team members read the transcripts, which were then coded into categories and subcategories and discussed at collective analysis meetings. The main study themes were generated through this iterative, collective process. MAIN
FINDINGS: Two themes about helpful interactions were identified: helping patients understand and helping patients navigate the health care system. The first theme reflected helpful ways of communicating with patients with IDs. These approaches focused on plain-language communication and other strategies developed jointly by the patients and their physicians. The second theme reflected ways in which the family physicians helped adults with IDs manage their health needs despite the complex constraints of their socioeconomic situations.
CONCLUSION: Adults with IDs want to play an active role in managing their health as they age, and helpful interactions with family physicians make this possible. Copyright© the College of Family Physicians of Canada.

Entities:  

Mesh:

Year:  2014        PMID: 25022654      PMCID: PMC4096281     

Source DB:  PubMed          Journal:  Can Fam Physician        ISSN: 0008-350X            Impact factor:   3.275


  11 in total

1.  People with intellectual disability. Barriers to the provision of good primary care.

Authors:  Lisa Millar; Mark C Chorlton; Nicholas Lennox
Journal:  Aust Fam Physician       Date:  2004-08

2.  Experiencing difficulties accessing first-contact health services in Canada: Canadians without regular doctors and recent immigrants have difficulties accessing first-contact healthcare services. Reports of difficulties in accessing care vary by age, sex and region.

Authors:  Claudia Sanmartin; Nancy Ross
Journal:  Healthc Policy       Date:  2006-01

3.  Consensus guidelines for primary health care of adults with developmental disabilities.

Authors:  William F Sullivan; John Heng; Donna Cameron; Yona Lunsky; Tom Cheetham; Brian Hennen; Elspeth A Bradley; Joseph M Berg; Marika Korossy; Cynthia Forster-Gibson; Maria Gitta; Chrissoula Stavrakaki; Bruce McCreary; Irene Swift
Journal:  Can Fam Physician       Date:  2006-11       Impact factor: 3.275

4.  Inclusion in primary care for people with intellectual disabilities: gaining the perspective of service user and supporting social care staff.

Authors:  Martyn C Jones; Ella McLafferty; Robert Walley; John Toland; Naomi Melson
Journal:  J Intellect Disabil       Date:  2008-06

Review 5.  Sampling in qualitative research. Purposeful and theoretical sampling; merging or clear boundaries?

Authors:  I T Coyne
Journal:  J Adv Nurs       Date:  1997-09       Impact factor: 3.187

6.  People with intellectual disability in general practice: case definition and case finding.

Authors:  H M van Schrojenstein Lantman-de Valk; J F Metsemakers; M J Soomers-Turlings; M J Haveman; H F Crebolder
Journal:  J Intellect Disabil Res       Date:  1997-10

7.  The general practice care of people with intellectual disability: barriers and solutions.

Authors:  N G Lennox; J N Diggens; A M Ugoni
Journal:  J Intellect Disabil Res       Date:  1997-10

8.  Patient and provider views on the use of medical services by women with intellectual disabilities.

Authors:  J Wilkinson; D Dreyfus; D Bowen; B Bokhour
Journal:  J Intellect Disabil Res       Date:  2012-09-14

9.  Audit and comprehensive health assessment programme in the primary healthcare of adults with intellectual disability: a pilot study.

Authors:  N G Lennox; M Green; J Diggens; A Ugoni
Journal:  J Intellect Disabil Res       Date:  2001-06

10.  General practitioners' educational needs in intellectual disability health.

Authors:  A Phillips; J Morrison; R W Davis
Journal:  J Intellect Disabil Res       Date:  2004-02
View more
  10 in total

Review 1.  Supporting adults with intellectual and developmental disabilities to participate in health care decision making.

Authors:  William F Sullivan; John Heng
Journal:  Can Fam Physician       Date:  2018-04       Impact factor: 3.275

2.  Primary care of adults with intellectual and developmental disabilities: 2018 Canadian consensus guidelines.

Authors:  William F Sullivan; Heidi Diepstra; John Heng; Shara Ally; Elspeth Bradley; Ian Casson; Brian Hennen; Maureen Kelly; Marika Korossy; Karen McNeil; Dara Abells; Khush Amaria; Kerry Boyd; Meg Gemmill; Elizabeth Grier; Natalie Kennie-Kaulbach; Mackenzie Ketchell; Jessica Ladouceur; Amanda Lepp; Yona Lunsky; Shirley McMillan; Ullanda Niel; Samantha Sacks; Sarah Shea; Katherine Stringer; Kyle Sue; Sandra Witherbee
Journal:  Can Fam Physician       Date:  2018-04       Impact factor: 3.275

3.  Patient-centred primary care of adults with severe and profound intellectual and developmental disabilities: Patient-caregiver-physician relationship.

Authors:  Katherine Stringer; Amanda L Terry; Bridget L Ryan; Andrea Pike
Journal:  Can Fam Physician       Date:  2018-04       Impact factor: 3.275

Review 4.  Circles of care for people with intellectual and developmental disabilities: Communication, collaboration, and coordination.

Authors:  Karen McNeil; Meg Gemmill; Dara Abells; Samantha Sacks; Terry Broda; Catherine R Morris; Cynthia Forster-Gibson
Journal:  Can Fam Physician       Date:  2018-04       Impact factor: 3.275

5.  Promoting health care decision-making capabilities of adults with intellectual and developmental disabilities.

Authors:  William F Sullivan; John Heng; Karen McNeil; Michael Bach; Megan Henze; Andrea Perry; Janet Vogt
Journal:  Can Fam Physician       Date:  2019-04       Impact factor: 3.275

6.  Barriers and facilitators to improving health care for adults with intellectual and developmental disabilities: what do staff tell us?

Authors:  Avra Selick; Janet Durbin; Ian Casson; Jacques Lee; Yona Lunsky
Journal:  Health Promot Chronic Dis Prev Can       Date:  2018-10       Impact factor: 3.240

7.  What adults with intellectual and developmental disabilities say they need to access annual health examinations: System navigation support and person-centred care.

Authors:  Lynne A Potvin; Casey Fulford; Hélène Ouellette-Kuntz; Virginie Cobigo
Journal:  Can Fam Physician       Date:  2019-04       Impact factor: 3.275

8.  Consumer inclusion: Experience of patients with intellectual and developmental disabilities informs primary care.

Authors:  Kerry Boyd; Heidi Diepstra; Kareem Elbard; Yani Hamdani; Yona Lunsky
Journal:  Can Fam Physician       Date:  2018-04       Impact factor: 3.275

9. 

Authors:  William F Sullivan; Heidi Diepstra; John Heng; Shara Ally; Elspeth Bradley; Ian Casson; Brian Hennen; Maureen Kelly; Marika Korossy; Karen McNeil; Dara Abells; Khush Amaria; Kerry Boyd; Meg Gemmill; Elizabeth Grier; Natalie Kennie-Kaulbach; Mackenzie Ketchell; Jessica Ladouceur; Amanda Lepp; Yona Lunsky; Shirley McMillan; Ullanda Niel; Samantha Sacks; Sarah Shea; Katherine Stringer; Kyle Sue; Sandra Witherbee
Journal:  Can Fam Physician       Date:  2018-04       Impact factor: 3.275

Review 10.  A Systematic Review of Patients' Experiences in Communicating with Primary Care Physicians: Intercultural Encounters and a Balance between Vulnerability and Integrity.

Authors:  Rhea Rocque; Yvan Leanza
Journal:  PLoS One       Date:  2015-10-06       Impact factor: 3.240

  10 in total

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