Literature DB >> 29650745

Circles of care for people with intellectual and developmental disabilities: Communication, collaboration, and coordination.

Karen McNeil1, Meg Gemmill2, Dara Abells3, Samantha Sacks4, Terry Broda5, Catherine R Morris6, Cynthia Forster-Gibson7.   

Abstract

OBJECTIVE: To review health information exchange (HIE) processes that affect the health of people with intellectual and developmental disabilities (IDD) and to suggest practical tips and strategies for communicating, collaborating, and coordinating in the primary care setting. SOURCES OF INFORMATION: The "Primary care of adults with intellectual and developmental disabilities. 2018 Canadian consensus guidelines" literature review and interdisciplinary input. MAIN MESSAGE: Disparities exist between the provision of health care for the general population and that for people with IDD. These disparities are due in part to gaps in HIE. Health information exchange involves documenting, collecting, and disseminating a patient's health information. In exploring ways to improve HIE for people with IDD, the communication skills of the family physician are considered in the context of the triad that includes the patient, his or her caregivers, and the family physician. The framework of the Patient's Medical Home is used in exploring these processes, and various strategies are offered for communicating, collaborating, and coordinating health care that can be implemented by family physicians in order to narrow the gaps in care that exist for people with IDD.
CONCLUSION: Improvements in HIE by communicating, collaborating, and coordinating health care better will improve health outcomes for people with IDD. Copyright© the College of Family Physicians of Canada.

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Mesh:

Year:  2018        PMID: 29650745      PMCID: PMC5906783     

Source DB:  PubMed          Journal:  Can Fam Physician        ISSN: 0008-350X            Impact factor:   3.275


  15 in total

1.  General practitioners' views on perceived and actual gains, benefits and barriers associated with the implementation of an Australian health assessment for people with intellectual disability.

Authors:  N G Lennox; C E Brolan; J Dean; R S Ware; F M Boyle; M Taylor Gomez; K van Dooren; C Bain
Journal:  J Intellect Disabil Res       Date:  2012-07-10

Review 2.  Hand-held health records for individuals with intellectual disability: a systematic review.

Authors:  M Nguyen; N Lennox; R Ware
Journal:  J Intellect Disabil Res       Date:  2013-12-01

3.  Primary care of adults with intellectual and developmental disabilities: 2018 Canadian consensus guidelines.

Authors:  William F Sullivan; Heidi Diepstra; John Heng; Shara Ally; Elspeth Bradley; Ian Casson; Brian Hennen; Maureen Kelly; Marika Korossy; Karen McNeil; Dara Abells; Khush Amaria; Kerry Boyd; Meg Gemmill; Elizabeth Grier; Natalie Kennie-Kaulbach; Mackenzie Ketchell; Jessica Ladouceur; Amanda Lepp; Yona Lunsky; Shirley McMillan; Ullanda Niel; Samantha Sacks; Sarah Shea; Katherine Stringer; Kyle Sue; Sandra Witherbee
Journal:  Can Fam Physician       Date:  2018-04       Impact factor: 3.275

4.  Practising family medicine for adults with intellectual disabilities: patient perspectives on helpful interactions.

Authors:  Jennifer Baumbusch; Alison Phinney; Sarah Baumbusch
Journal:  Can Fam Physician       Date:  2014-07       Impact factor: 3.275

5.  A model of processes that underpin positive relationships for adults with severe intellectual disability.

Authors:  Hilary Johnson; Jacinta Douglas; Christine Bigby; Teresa Iacono
Journal:  J Intellect Dev Disabil       Date:  2012-12

6.  Experiences of patients with intellectual disabilities and carers in GP health information exchanges: a qualitative study.

Authors:  Mathilde Mastebroek; Jenneken Naaldenberg; Francine A van den Driessen Mareeuw; Antoine L M Lagro-Janssen; Henny M J van Schrojenstein Lantman-de Valk
Journal:  Fam Pract       Date:  2016-07-12       Impact factor: 2.267

Review 7.  Health information exchange in general practice care for people with intellectual disabilities--a qualitative review of the literature.

Authors:  M Mastebroek; J Naaldenberg; A L Lagro-Janssen; H van Schrojenstein Lantman de Valk
Journal:  Res Dev Disabil       Date:  2014-05-24

8.  Effects of a comprehensive health assessment programme for Australian adults with intellectual disability: a cluster randomized trial.

Authors:  Nicholas Lennox; Christopher Bain; Therese Rey-Conde; David Purdie; Robert Bush; Nirmala Pandeya
Journal:  Int J Epidemiol       Date:  2007-01-11       Impact factor: 7.196

9.  Attuning: A Communication Process between People with Severe and Profound Intellectual Disability and Their Interaction Partners.

Authors:  Colin Griffiths; Martine Smith
Journal:  J Appl Res Intellect Disabil       Date:  2015-03-05

10.  Reliability of the Non-Communicating Adult Pain Checklist (NCAPC), assessed by different groups of health workers.

Authors:  M Lotan; R Moe-Nilssen; A E Ljunggren; L I Strand
Journal:  Res Dev Disabil       Date:  2008-11-25
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  4 in total

1.  Behaviour changes in an adult with Down syndrome.

Authors:  Cynthia J Forster-Gibson
Journal:  Can Fam Physician       Date:  2019-04       Impact factor: 3.275

2.  Designing a program evaluation for a medical-dental service for adults with autism and intellectual disabilities using the RE-AIM framework.

Authors:  Jonathan Lai; Malvina Klag; Keiko Shikako-Thomas
Journal:  Learn Health Syst       Date:  2019-04-01

3.  Framework for Patient Safety.

Authors:  A K Mohiuddin
Journal:  Innov Pharm       Date:  2019-08-31

4.  A picture is worth a thousand words: A proposal to incorporate video into the evaluation of adults with intellectual or developmental disability living outside the home.

Authors:  Briana C Prager; Sherri M Broder; Marvin R Natowicz
Journal:  Front Public Health       Date:  2022-08-24
  4 in total

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