Literature DB >> 18492713

Inclusion in primary care for people with intellectual disabilities: gaining the perspective of service user and supporting social care staff.

Martyn C Jones1, Ella McLafferty, Robert Walley, John Toland, Naomi Melson.   

Abstract

The aim of this study was to gain service user and social care staff perspectives on the barriers facing people with intellectual disabilities when accessing primary healthcare. A qualitative mixed methods semi-structured approach involved the use of focus groups and individual interviews within the service users' homes. A purposive sampling strategy identified people using primary healthcare in the last 6 months (N = 6) with support from social care staff (N = 19). Three emergent themes were common to service users and carer staff: ;accessing the surgery', ;communication issues' and ;waiting around'. Other themes were unique to each group. Social care staff identified the ;attitudes and behaviour of primary healthcare staff' as sometimes problematic, and the importance of ;knowing the service user'. Service users identified ;feelings about going to the doctor', ;health education' and ;making changes'. Gaining these views is an important first step in improving access to primary healthcare.

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Mesh:

Year:  2008        PMID: 18492713     DOI: 10.1177/1744629508090982

Source DB:  PubMed          Journal:  J Intellect Disabil        ISSN: 1744-6295


  9 in total

1.  Patient-centred primary care of adults with severe and profound intellectual and developmental disabilities: Patient-caregiver-physician relationship.

Authors:  Katherine Stringer; Amanda L Terry; Bridget L Ryan; Andrea Pike
Journal:  Can Fam Physician       Date:  2018-04       Impact factor: 3.275

2.  Practising family medicine for adults with intellectual disabilities: patient perspectives on helpful interactions.

Authors:  Jennifer Baumbusch; Alison Phinney; Sarah Baumbusch
Journal:  Can Fam Physician       Date:  2014-07       Impact factor: 3.275

3.  Health information exchange for patients with intellectual disabilities: a general practice perspective.

Authors:  Mathilde Mastebroek; Jenneken Naaldenberg; Francine A van den Driessen Mareeuw; Geraline L Leusink; Antoine Lm Lagro-Janssen; Henny Mj van Schrojenstein Lantman-de Valk
Journal:  Br J Gen Pract       Date:  2016-08-01       Impact factor: 5.386

4.  Primary care of adults with severe and profound intellectual and developmental disabilities: Family physicians' perspectives on patient-physician relationships.

Authors:  Katherine Stringer; Bridget L Ryan; Amanda L Terry; Andrea Pike
Journal:  Can Fam Physician       Date:  2019-04       Impact factor: 3.275

Review 5.  Barriers and Facilitators to Healthcare Access in Adults with Intellectual and Developmental Disorders and Communication Difficulties: an Integrative Review.

Authors:  Kathryn Shady; Shannon Phillips; Susan Newman
Journal:  Rev J Autism Dev Disord       Date:  2022-05-30

6.  Attitudes of health service providers: The perspective of people with disabilities in the Kumasi Metropolis of Ghana.

Authors:  Eric Badu; Maxwell P Opoku; Seth C Y Appiah
Journal:  Afr J Disabil       Date:  2016-08-16

7.  Nurses' experiences of caring for patients with intellectual developmental disorders: a systematic review using a meta-ethnographic approach.

Authors:  Marie Appelgren; Christel Bahtsevani; Karin Persson; Gunilla Borglin
Journal:  BMC Nurs       Date:  2018-12-03

8.  Barriers and facilitators to primary health care for people with intellectual disabilities and/or autism: an integrative review.

Authors:  Alison Jayne Doherty; Helen Atherton; Paul Boland; Richard Hastings; Lucy Hives; Kerry Hood; Lynn James-Jenkinson; Ralph Leavey; Elizabeth Randell; Janet Reed; Laurence Taggart; Neil Wilson; Umesh Chauhan
Journal:  BJGP Open       Date:  2020-08-25

9.  Accessibility of Virtual Primary Care for Adults With Intellectual and Developmental Disabilities During the COVID-19 Pandemic: Qualitative Study.

Authors:  Avra Selick; Janet Durbin; Yani Hamdani; Jennifer Rayner; Yona Lunsky
Journal:  JMIR Form Res       Date:  2022-08-22
  9 in total

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