Literature DB >> 29650602

Primary care of adults with intellectual and developmental disabilities: 2018 Canadian consensus guidelines.

William F Sullivan1, Heidi Diepstra2, John Heng3, Shara Ally4, Elspeth Bradley5, Ian Casson6, Brian Hennen7, Maureen Kelly8, Marika Korossy9, Karen McNeil10, Dara Abells11, Khush Amaria12, Kerry Boyd13, Meg Gemmill14, Elizabeth Grier14, Natalie Kennie-Kaulbach15, Mackenzie Ketchell16, Jessica Ladouceur17, Amanda Lepp18, Yona Lunsky19, Shirley McMillan20, Ullanda Niel21, Samantha Sacks22, Sarah Shea23, Katherine Stringer24, Kyle Sue25, Sandra Witherbee26.   

Abstract

OBJECTIVE: To update the 2011 Canadian guidelines for primary care of adults with intellectual and developmental disabilities (IDD).
METHODS: Family physicians and other health professionals experienced in the care of people with IDD reviewed and synthesized recent empirical, ecosystem, expert, and experiential knowledge. A system was developed to grade the strength of recommendations. RECOMMENDATIONS: Adults with IDD are a heterogeneous group of patients and have health conditions and factors affecting their health that can vary in kind, manifestation, severity, or complexity from those of others in the community. They require approaches to care and interventions that are adapted to their needs. These guidelines provide advice regarding standards of care. References to clinical tools and other practical resources are incorporated. The approaches to care that are outlined here can be applied to other groups of patients that have impairments in cognitive, communicative, or other adaptive functioning.
CONCLUSION: As primary care providers, family physicians play a vital role in promoting the health and well-being of adults with IDD. These guidelines can aid their decision making with patients and caregivers. Copyright© the College of Family Physicians of Canada.

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Mesh:

Year:  2018        PMID: 29650602      PMCID: PMC5897068     

Source DB:  PubMed          Journal:  Can Fam Physician        ISSN: 0008-350X            Impact factor:   3.275


  168 in total

1.  Patterns of cognitive impairments among heroin and cocaine users: the association with self-reported learning disabilities and infectious disease.

Authors:  Stevan G Severtson; Sarra L Hedden; Silvia S Martins; William W Latimer
Journal:  J Learn Disabil       Date:  2010-06-23

Review 2.  Overweight and obesity in youth with developmental disabilities: a call to action.

Authors:  S N Grondhuis; M G Aman
Journal:  J Intellect Disabil Res       Date:  2013-09-10

3.  Effects of controlled discontinuation of long-term used antipsychotics on weight and metabolic parameters in individuals with intellectual disability.

Authors:  Gerda de Kuijper; Hans Mulder; Heleen Evenhuis; Frank Visser; Pieter J Hoekstra
Journal:  J Clin Psychopharmacol       Date:  2013-08       Impact factor: 3.153

4.  After "Eve": whither proxy decision-making?

Authors:  E H Kluge
Journal:  CMAJ       Date:  1987-10-15       Impact factor: 8.262

Review 5.  Behavioral pain indicators in people with intellectual disabilities: a systematic review.

Authors:  Nanda C de Knegt; Marjoleine J C Pieper; Frank Lobbezoo; Carlo Schuengel; Heleen M Evenhuis; Jan Passchier; Erik J A Scherder
Journal:  J Pain       Date:  2013-07-03       Impact factor: 5.820

6.  Patient and provider views on the use of medical services by women with intellectual disabilities.

Authors:  J Wilkinson; D Dreyfus; D Bowen; B Bokhour
Journal:  J Intellect Disabil Res       Date:  2012-09-14

7.  A comparison of the prevalence of chronic disease among people with and without intellectual disability.

Authors:  Diane Morin; Julie Mérineau-Côté; Hélène Ouellette-Kuntz; Marc J Tassé; Michael Kerr
Journal:  Am J Intellect Dev Disabil       Date:  2012-11

8.  Thyroid status in a large cohort of patients with mental retardation: the TOP-R (Thyroid Origin of Psychomotor Retardation) study.

Authors:  Willem Edward Visser; Yolanda B de Rijke; Hans van Toor; Theo J Visser
Journal:  Clin Endocrinol (Oxf)       Date:  2011-09       Impact factor: 3.478

Review 9.  Barriers to cancer screening for people with disabilities: a literature review.

Authors:  Julie Williams Merten; Jamie L Pomeranz; Jessica L King; Michael Moorhouse; Richmond D Wynn
Journal:  Disabil Health J       Date:  2014-07-01       Impact factor: 2.554

10.  Pulmonary care of children and adolescents with developmental disabilities.

Authors:  John H Marks
Journal:  Pediatr Clin North Am       Date:  2008-12       Impact factor: 3.278

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  46 in total

Review 1.  Supporting adults with intellectual and developmental disabilities to participate in health care decision making.

Authors:  William F Sullivan; John Heng
Journal:  Can Fam Physician       Date:  2018-04       Impact factor: 3.275

Review 2.  Managing complexity in care of patients with intellectual and developmental disabilities: Natural fit for the family physician as an expert generalist.

Authors:  Elizabeth Grier; Dara Abells; Ian Casson; Meg Gemmill; Jessica Ladouceur; Amanda Lepp; Ullanda Niel; Samantha Sacks; Kyle Sue
Journal:  Can Fam Physician       Date:  2018-04       Impact factor: 3.275

3.  Comprehensive preventive care assessments for adults with intellectual and developmental disabilities: Part 1: How do we know if it is happening?

Authors:  Glenys Smith; Hélène Ouellette-Kuntz; Michael Green
Journal:  Can Fam Physician       Date:  2018-04       Impact factor: 3.275

Review 4.  Health checks for adults with intellectual and developmental disabilities in a family practice.

Authors:  Ian Casson; Terry Broda; Janet Durbin; Angela Gonzales; Laurie Green; Elizabeth Grier; Yona Lunsky; Avra Selick; Kyle Sue
Journal:  Can Fam Physician       Date:  2018-04       Impact factor: 3.275

5.  Exploring the prenatal experience of women with intellectual and developmental disabilities: In a southeastern Ontario family health team.

Authors:  Elaine Xie; Meg Gemmill
Journal:  Can Fam Physician       Date:  2018-04       Impact factor: 3.275

6.  Patient-centred primary care of adults with severe and profound intellectual and developmental disabilities: Patient-caregiver-physician relationship.

Authors:  Katherine Stringer; Amanda L Terry; Bridget L Ryan; Andrea Pike
Journal:  Can Fam Physician       Date:  2018-04       Impact factor: 3.275

Review 7.  Circles of care for people with intellectual and developmental disabilities: Communication, collaboration, and coordination.

Authors:  Karen McNeil; Meg Gemmill; Dara Abells; Samantha Sacks; Terry Broda; Catherine R Morris; Cynthia Forster-Gibson
Journal:  Can Fam Physician       Date:  2018-04       Impact factor: 3.275

Review 8.  Improving transition to adulthood for adolescents with intellectual and developmental disabilities: Proactive developmental and systems perspective.

Authors:  Shara Ally; Kerry Boyd; Dara Abells; Khush Amaria; Yani Hamdani; Alvin Loh; Ullanda Niel; Samantha Sacks; Sarah Shea; William F Sullivan; Brian Hennen
Journal:  Can Fam Physician       Date:  2018-04       Impact factor: 3.275

9.  Improving care for adults with intellectual and developmental disabilities: Role of clerical staff.

Authors:  Max Zworth; Avra Selick; Janet Durbin; Ian Casson; Yona Lunsky
Journal:  Can Fam Physician       Date:  2019-04       Impact factor: 3.275

10. 

Authors:  William F Sullivan; John Heng; Andrea Perry; Michael Bach; Ian Casson
Journal:  Can Fam Physician       Date:  2019-04       Impact factor: 3.275

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