Literature DB >> 25019639

A universal decision support system. Addressing the decision-making needs of patients, families, and clinicians in the setting of critical illness.

Christopher E Cox1, Douglas B White, Amy P Abernethy.   

Abstract

In the setting of a complex critical illness, preference-sensitive decision making-choosing between two or more reasonable treatment options-can be difficult for patients, families, and clinicians alike. A common challenge to making high-quality decisions in this setting is a lack of critical information access and sharing among participants. Decision aids-brochures, web applications, and videos-are a major focus of current research because mounting evidence suggests they can improve decision-making quality and enhance collaborative shared decision making. However, many decision aids have important limitations, including a relatively narrow capacity for personalization, an inability to gather and generate clinical data, a focus on only a single disease or treatment, and high developmental costs. To address these issues and to help guide future research, we propose a model of "universal" electronic decision support that can be easily adapted by clinicians and patients/families for whatever decision is at hand. In this scalable web-based platform, a general shared decision-making core structure would accommodate simple, interchangeable disease and treatment information modules. The format and content of the system could be adapted to decisional participants' unique characteristics, abilities, and needs. Universal decision support can better standardize a decisional approach and also allow a unique degree of personalization within a framework of shared decision making. We also discuss potential criticisms of this approach as well as strategies that can overcome them in a critical illness setting.

Entities:  

Keywords:  critical illness; decision support; patient-centeredness; shared decision making; surrogate decision making

Mesh:

Year:  2014        PMID: 25019639      PMCID: PMC4214132          DOI: 10.1164/rccm.201404-0728CP

Source DB:  PubMed          Journal:  Am J Respir Crit Care Med        ISSN: 1073-449X            Impact factor:   21.405


  40 in total

Review 1.  Effects of computerized clinical decision support systems on practitioner performance and patient outcomes: a systematic review.

Authors:  Amit X Garg; Neill K J Adhikari; Heather McDonald; M Patricia Rosas-Arellano; P J Devereaux; Joseph Beyene; Justina Sam; R Brian Haynes
Journal:  JAMA       Date:  2005-03-09       Impact factor: 56.272

2.  Finding the missing link for big biomedical data.

Authors:  Griffin M Weber; Kenneth D Mandl; Isaac S Kohane
Journal:  JAMA       Date:  2014-06-25       Impact factor: 56.272

3.  Informed decision making in outpatient practice: time to get back to basics.

Authors:  C H Braddock; K A Edwards; N M Hasenberg; T L Laidley; W Levinson
Journal:  JAMA       Date:  1999 Dec 22-29       Impact factor: 56.272

4.  Evaluation of a decision aid for making choices about intubation and mechanical ventilation in chronic obstructive pulmonary disease.

Authors:  Keith G Wilson; Shawn D Aaron; Katherine L Vandemheen; Paul C Hébert; Douglas A McKim; Valerie Fiset; Ian D Graham; Elyse Sevigny; Annette M O'Connor
Journal:  Patient Educ Couns       Date:  2005-04

5.  Involving patients in clinical decisions: impact of an interactive video program on use of back surgery.

Authors:  R A Deyo; D C Cherkin; J Weinstein; J Howe; M Ciol; A G Mulley
Journal:  Med Care       Date:  2000-09       Impact factor: 2.983

6.  Symptoms of anxiety and depression in family members of intensive care unit patients: ethical hypothesis regarding decision-making capacity.

Authors:  F Pochard; E Azoulay; S Chevret; F Lemaire; P Hubert; P Canoui; M Grassin; R Zittoun; J R le Gall; J F Dhainaut; B Schlemmer
Journal:  Crit Care Med       Date:  2001-10       Impact factor: 7.598

7.  Missed opportunities during family conferences about end-of-life care in the intensive care unit.

Authors:  J Randall Curtis; Ruth A Engelberg; Marjorie D Wenrich; Sarah E Shannon; Patsy D Treece; Gordon D Rubenfeld
Journal:  Am J Respir Crit Care Med       Date:  2005-01-07       Impact factor: 21.405

8.  The impact of serious illness on patients' families. SUPPORT Investigators. Study to Understand Prognoses and Preferences for Outcomes and Risks of Treatment.

Authors:  K E Covinsky; L Goldman; E F Cook; R Oye; N Desbiens; D Reding; W Fulkerson; A F Connors; J Lynn; R S Phillips
Journal:  JAMA       Date:  1994-12-21       Impact factor: 56.272

9.  Half the family members of intensive care unit patients do not want to share in the decision-making process: a study in 78 French intensive care units.

Authors:  Elie Azoulay; Frédéric Pochard; Sylvie Chevret; Christophe Adrie; Djilali Annane; Gérard Bleichner; Caroline Bornstain; Yves Bouffard; Yves Cohen; Marc Feissel; Dany Goldgran-Toledano; Christophe Guitton; Jan Hayon; Esther Iglesias; Luc-Marie Joly; Mercé Jourdain; Christian Laplace; Christine Lebert; Juliette Pingat; Catherine Poisson; Anne Renault; Olivier Sanchez; Dominique Selcer; Jean-François Timsit; Jean-Roger Le Gall; Benoît Schlemmer
Journal:  Crit Care Med       Date:  2004-09       Impact factor: 7.598

10.  Effect of a computer-based decision aid on knowledge, perceptions, and intentions about genetic testing for breast cancer susceptibility: a randomized controlled trial.

Authors:  Michael J Green; Susan K Peterson; Maria Wagner Baker; Gregory R Harper; Lois C Friedman; Wendy S Rubinstein; David T Mauger
Journal:  JAMA       Date:  2004-07-28       Impact factor: 56.272

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  14 in total

Review 1.  Personalization and Patient Involvement in Decision Support Systems: Current Trends.

Authors:  S Quaglini; L Sacchi; G Lanzola; N Viani
Journal:  Yearb Med Inform       Date:  2015-08-13

2.  Patients Decision Aid System Based on FHIR Profiles.

Authors:  Ilia Semenov; Georgy Kopanitsa; Dmitry Denisov; Yakovenko Alexandr; Roman Osenev; Yury Andreychuk
Journal:  J Med Syst       Date:  2018-07-31       Impact factor: 4.460

3.  The unmet need of information access for family members of ICU patients.

Authors:  Christopher E Cox; Hanne I Jensen
Journal:  Intensive Care Med       Date:  2016-12-23       Impact factor: 17.440

4.  Feasibility and acceptability of a web-based advance care plan for dementia.

Authors:  Liza L Behrens; Brianna Morgan; Emily Summerhayes; Sonia Talwar; Vanessa L Burshnic-Neal; Mary Ersek; Nancy Hodgson
Journal:  Geriatr Nurs       Date:  2022-03-05       Impact factor: 2.525

5.  Surrogate Decision Makers' Perspectives on Family Members' Prognosis after Intracerebral Hemorrhage.

Authors:  Darin B Zahuranec; Renee R Anspach; Meghan E Roney; Andrea Fuhrel-Forbis; Daniel M Connochie; Emily P Chen; Bradford B Thompson; Panayiotis N Varelas; Lewis B Morgenstern; Angela Fagerlin
Journal:  J Palliat Med       Date:  2018-04-02       Impact factor: 2.947

6.  Developing the family support tool: An interactive, web-based tool to help families navigate the complexities of surrogate decision making in ICUs.

Authors:  Angela O Suen; Rachel A Butler; Robert Arnold; Brad Myers; Holly O Witteman; Christopher E Cox; Amanda Argenas; Praewpannanrai Buddadhumaruk; Alexandra Bursic; Natalie C Ernecoff; Anne-Marie Shields; Dang K Tran; Douglas B White
Journal:  J Crit Care       Date:  2019-12-06       Impact factor: 3.425

7.  Development and validation of a novel informational booklet for pediatric long-term ventilation decision support.

Authors:  Jeffrey D Edwards; Howard B Panitch; Maureen George; Anne-Marie Cirrilla; Eli Grunstein; Joanne Wolfe; Judith E Nelson; Rachel L Miller
Journal:  Pediatr Pulmonol       Date:  2020-12-23

8.  Development and usability testing of a Web-based decision aid for families of patients receiving prolonged mechanical ventilation.

Authors:  Christopher E Cox; Nicholas G Wysham; Brenda Walton; Derek Jones; Brian Cass; Maria Tobin; Mattias Jonsson; Jeremy M Kahn; Douglas B White; Catherine L Hough; Carmen L Lewis; Shannon S Carson
Journal:  Ann Intensive Care       Date:  2015-03-25       Impact factor: 6.925

9.  Recognizing difficult trade-offs: values and treatment preferences for end-of-life care in a multi-site survey of adult patients in family practices.

Authors:  Michelle Howard; Nick Bansback; Amy Tan; Doug Klein; Carrie Bernard; Doris Barwich; Peter Dodek; Aman Nijjar; Daren K Heyland
Journal:  BMC Med Inform Decis Mak       Date:  2017-12-06       Impact factor: 2.796

10.  Family members' satisfaction with care and decision-making in intensive care units and post-stay follow-up needs-a cross-sectional survey study.

Authors:  Gro Frivold; Åshild Slettebø; Daren K Heyland; Bjørg Dale
Journal:  Nurs Open       Date:  2017-10-18
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