Literature DB >> 35259603

Feasibility and acceptability of a web-based advance care plan for dementia.

Liza L Behrens1, Brianna Morgan2, Emily Summerhayes2, Sonia Talwar2, Vanessa L Burshnic-Neal3, Mary Ersek4, Nancy Hodgson2.   

Abstract

While advance care planning (ACP) can help elicit preferences and is associated with improved end-of-life outcomes, persons living with dementia (PLWD) in nursing homes are rarely included in ACP. Web-based decision aids are a readily available tool to engage PLWD in ACP, but none are designed for the unique needs of PLWD, particularly those residing in nursing homes. Our Memory Care Wishes (OMCW) was adapted from a publicly available web-based ACP tool in collaboration with dementia care experts. This study aimed to explore the acceptability of OMCW. We used a convergent, mixed methods design to describe PLWD and surrogates' experiences using the OMCW website. Participants described ease of use, comfort with viewing, helpfulness for planning, and likelihood to recommend. Overall, OMCW is acceptable, however, PLWD continue to have difficulties understanding and engaging with some website content. Modifications were incorporated based on these findings, setting the stage for implementation and effectiveness testing.
Copyright © 2022 Elsevier Inc. All rights reserved.

Entities:  

Keywords:  Advance care planning; Dementia; Mixed methods; Shared-decision making; Web-based decision aid

Mesh:

Year:  2022        PMID: 35259603      PMCID: PMC9190025          DOI: 10.1016/j.gerinurse.2022.02.022

Source DB:  PubMed          Journal:  Geriatr Nurs        ISSN: 0197-4572            Impact factor:   2.525


  36 in total

1.  Too soon to give up: re-examining the value of advance directives.

Authors:  Benjamin H Levi; Michael J Green
Journal:  Am J Bioeth       Date:  2010-04       Impact factor: 11.229

Review 2.  Content analysis and thematic analysis: Implications for conducting a qualitative descriptive study.

Authors:  Mojtaba Vaismoradi; Hannele Turunen; Terese Bondas
Journal:  Nurs Health Sci       Date:  2013-03-11       Impact factor: 1.857

3.  Decision-making capacity to execute a health care proxy: development and testing of guidelines.

Authors:  M Mezey; J Teresi; G Ramsey; E Mitty; T Bobrowitz
Journal:  J Am Geriatr Soc       Date:  2000-02       Impact factor: 5.562

4.  A Guide to Field Notes for Qualitative Research: Context and Conversation.

Authors:  Julia Phillippi; Jana Lauderdale
Journal:  Qual Health Res       Date:  2017-04-05

Review 5.  Shared decision-making in dementia: A review of patient and family carer involvement.

Authors:  Lyndsey M Miller; Carol J Whitlatch; Karen S Lyons
Journal:  Dementia (London)       Date:  2014-11-03

6.  2021 Alzheimer's disease facts and figures.

Authors: 
Journal:  Alzheimers Dement       Date:  2021-03-23       Impact factor: 21.566

7.  How we design feasibility studies.

Authors:  Deborah J Bowen; Matthew Kreuter; Bonnie Spring; Ludmila Cofta-Woerpel; Laura Linnan; Diane Weiner; Suzanne Bakken; Cecilia Patrick Kaplan; Linda Squiers; Cecilia Fabrizio; Maria Fernandez
Journal:  Am J Prev Med       Date:  2009-05       Impact factor: 5.043

Review 8.  How does communication heal? Pathways linking clinician-patient communication to health outcomes.

Authors:  Richard L Street; Gregory Makoul; Neeraj K Arora; Ronald M Epstein
Journal:  Patient Educ Couns       Date:  2009-01-15

9.  Effects of Visual Aids for End-of-Life Care on Decisional Capacity of People With Dementia.

Authors:  Wan-Zu D Chang; Michelle S Bourgeois
Journal:  Am J Speech Lang Pathol       Date:  2019-12-23       Impact factor: 2.408

10.  Completion of Advance Directives and Documented Care Preferences During the Coronavirus Disease 2019 (COVID-19) Pandemic.

Authors:  Catherine L Auriemma; Scott D Halpern; Jeremy M Asch; Matthew Van Der Tuyn; David A Asch
Journal:  JAMA Netw Open       Date:  2020-07-01
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