Literature DB >> 24661181

Stakeholder engagement in patient-centered outcomes research: high-touch or high-tech?

Danielle C Lavallee1, Paul Wicks, Rafael Alfonso Cristancho, C Daniel Mullins.   

Abstract

Patient and stakeholder engagement enhances the meaningfulness of patient-centered outcomes research. Continuous engagement of diverse patients helps to achieve representativeness and to avoid tokenism, but is perceived as challenging due to resource and time constraints. The widespread availability of the internet, mobile phones, and electronic devices makes 'high-tech' solutions appealing, but such approaches may trade-off larger sample sizes for shallower engagement and/or skewed perspectives if most participants reflect users of technology. More traditional 'high-touch' solutions such as in-person interviews, focus groups, and town hall meetings can provide qualitative and sociological context and potentially more in-depth insights from small numbers of patients, but such approaches are also prone to selection bias as well. We compare and contrast high-tech and high-touch approaches to engaging stakeholders and suggest hybrid processes.

Entities:  

Keywords:  eHealth; innovation; patient engagement; patient-centered outcomes research; stakeholders

Mesh:

Year:  2014        PMID: 24661181     DOI: 10.1586/14737167.2014.901890

Source DB:  PubMed          Journal:  Expert Rev Pharmacoecon Outcomes Res        ISSN: 1473-7167            Impact factor:   2.217


  19 in total

1.  Increasing patient participation in drug development.

Authors:  Paul Wicks; Maria Lowe; Susan Gabriel; Slaven Sikirica; Rahul Sasane; Stephen Arcona
Journal:  Nat Biotechnol       Date:  2015-02       Impact factor: 54.908

2.  Methods for engaging stakeholders in comparative effectiveness research: a patient-centered approach to improving diabetes care.

Authors:  Julie A Schmittdiel; Jay Desai; Emily B Schroeder; Andrea R Paolino; Gregory A Nichols; Jean M Lawrence; Patrick J O'Connor; Kris A Ohnsorg; Katherine M Newton; John F Steiner
Journal:  Healthc (Amst)       Date:  2015-03-13

3.  Older Adults' Perspectives on Clinical Research: A Focus Group and Survey Study.

Authors:  Eric J Lenze; Alex Ramsey; Patrick J Brown; Charles F Reynolds; Benoit H Mulsant; Helen Lavretsky; Steven P Roose
Journal:  Am J Geriatr Psychiatry       Date:  2016-07-29       Impact factor: 4.105

4.  From Principles to Practice: Real-World Patient and Stakeholder Engagement in Breast Cancer Research.

Authors:  Sarah M Greene; Susan Brandzel; Karen J Wernli
Journal:  Perm J       Date:  2018

5.  Patient Navigation Improves Subsequent Breast Cancer Screening After a Noncancerous Result: Evidence from the Patient Navigation in Medically Underserved Areas Study.

Authors:  Yamile Molina; Sage J Kim; Nerida Berrios; Anne Elizabeth Glassgow; Yazmin San Miguel; Julie S Darnell; Heather Pauls; Ganga Vijayasiri; Richard B Warnecke; Elizabeth A Calhoun
Journal:  J Womens Health (Larchmt)       Date:  2017-09-21       Impact factor: 2.681

6.  Bridging the divide: building infrastructure to support community-academic partnerships and improve capacity to conduct patient-centered outcomes research.

Authors:  Jennifer Huang; Paula Darby Lipman; C Daniel Mullins
Journal:  Transl Behav Med       Date:  2017-12       Impact factor: 3.046

7.  The Role of Participants in a Medical Information Commons.

Authors:  Mary A Majumder; Juli M Bollinger; Angela G Villanueva; Patricia A Deverka; Barbara A Koenig
Journal:  J Law Med Ethics       Date:  2019-03       Impact factor: 1.718

8.  Clinical Trial Recruitment and Retention of College Students with Type 1 Diabetes via Social Media: An Implementation Case Study.

Authors:  Lauren E Wisk; Eliza B Nelson; Kara M Magane; Elissa R Weitzman
Journal:  J Diabetes Sci Technol       Date:  2019-04-22

9.  Closing the Gap: Supporting Patients' Transition to Self-Management after Hospitalization.

Authors:  Ari H Pollack; Uba Backonja; Andrew D Miller; Sonali R Mishra; Maher Khelifi; Logan Kendall; Wanda Pratt
Journal:  Proc SIGCHI Conf Hum Factor Comput Syst       Date:  2016-05

10.  Comparative analysis of stakeholder experiences with an online approach to prioritizing patient-centered research topics.

Authors:  Dmitry Khodyakov; Sean Grant; Daniella Meeker; Marika Booth; Nathaly Pacheco-Santivanez; Katherine K Kim
Journal:  J Am Med Inform Assoc       Date:  2017-05-01       Impact factor: 4.497

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