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Literature DB >> 24592834

The right to an open future concerning genetic information.

Annelien L Bredenoord¹, Martine C de Vries, Hans van Delden.

Abstract

Mesh：

Year: 2014 PMID： 24592834 DOI： 10.1080/15265161.2013.879952

Source DB: PubMed Journal: Am J Bioeth ISSN： 1526-5161 Impact factor: 11.229

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11 in total

1. Foetal surgery and using in utero therapies to reduce the degree of disability after birth. Could it be morally defensible or even morally required?

Authors: Constantinos Kanaris
Journal: Med Health Care Philos Date: 2017-03

2. Newborn Sequencing in Genomic Medicine and Public Health.

Authors: Jonathan S Berg; Pankaj B Agrawal; Donald B Bailey; Alan H Beggs; Steven E Brenner; Amy M Brower; Julie A Cakici; Ozge Ceyhan-Birsoy; Kee Chan; Flavia Chen; Robert J Currier; Dmitry Dukhovny; Robert C Green; Julie Harris-Wai; Ingrid A Holm; Brenda Iglesias; Galen Joseph; Stephen F Kingsmore; Barbara A Koenig; Pui-Yan Kwok; John Lantos; Steven J Leeder; Megan A Lewis; Amy L McGuire; Laura V Milko; Sean D Mooney; Richard B Parad; Stacey Pereira; Joshua Petrikin; Bradford C Powell; Cynthia M Powell; Jennifer M Puck; Heidi L Rehm; Neil Risch; Myra Roche; Joseph T Shieh; Narayanan Veeraraghavan; Michael S Watson; Laurel Willig; Timothy W Yu; Tiina Urv; Anastasia L Wise
Journal: Pediatrics Date: 2017-01-17 Impact factor: 7.124

Review 3. Genomic medicine for kidney disease.

Authors: Emily E Groopman; Hila Milo Rasouly; Ali G Gharavi
Journal: Nat Rev Nephrol Date: 2018-01-08 Impact factor: 28.314

The right to an open future concerning genetic information.

1. Foetal surgery and using in utero therapies to reduce the degree of disability after birth. Could it be morally defensible or even morally required?

2. Newborn Sequencing in Genomic Medicine and Public Health.

Review 3. Genomic medicine for kidney disease.

4. Against Genetic Tests for Athletic Talent: The Primacy of the Phenotype.

5. Perceived Benefits, Risks, and Utility of Newborn Genomic Sequencing in the BabySeq Project.

6. Whole-exome sequencing in pediatrics: parents' considerations toward return of unsolicited findings for their child.

7. Rethinking the "open future" argument against predictive genetic testing of children.

8. To disclose, or not to disclose? Context matters.

Review 9. When Children Become Adults: Should Biobanks Re-Contact?

10. Predictive Genetic Testing of Children for Adult-Onset Conditions: Negotiating Requests with Parents.