Literature DB >> 24504623

Impact of autism in adolescents on parental quality of life.

Amaria Baghdadli1, René Pry, Cécile Michelon, Cécile Rattaz.   

Abstract

PURPOSE: To study the impact of autism spectrum disorders (ASDs) on parental quality of life (QoL) at adolescence using the parental-developmental disorders-quality of life scale (Par-DD-QoL).
METHODS: One hundred and fifty-two mothers of adolescents with ASD completed Par-DD-QoL. This scale assesses the following dimensions: emotional, daily disturbance and global QoL. This cross-sectional study uses a subset of data collected at the final time of a follow-up study (EpiTED cohort).
RESULTS: A polytomic regression identified an increase in aberrant behavior scores as the major independent risk factor for parental QoL. The identified protective factors were the increase in daily living, communication and object cognition scores and a higher number of siblings.
CONCLUSIONS: Those results suggest that there is a negative effect of externalizing behaviors and a protective effect of adaptive skills, communication and object cognition on parental QoL. Study limitations and implications are discussed.

Entities:  

Mesh:

Year:  2014        PMID: 24504623     DOI: 10.1007/s11136-014-0635-6

Source DB:  PubMed          Journal:  Qual Life Res        ISSN: 0962-9343            Impact factor:   4.147


  31 in total

Review 1.  Practitioner review: stress intervention for parents of children with intellectual disabilities.

Authors:  Richard P Hastings; Alexandra Beck
Journal:  J Child Psychol Psychiatry       Date:  2004-11       Impact factor: 8.982

2.  Economic implications of caregiving at midlife: comparing parents with and without children who have developmental disabilities.

Authors:  Susan L Parish; Marsha Mailick Seltzer; Jan S Greenberg; Frank Floyd
Journal:  Ment Retard       Date:  2004-12

3.  The impact of behaviour problems on caregiver stress in young people with autism spectrum disorders.

Authors:  L Lecavalier; S Leone; J Wiltz
Journal:  J Intellect Disabil Res       Date:  2006-03

4.  Mother-child relationship quality among adolescents and adults with autism.

Authors:  Gael I Orsmond; Marsha Mailick Seltzer; Jan S Greenberg; Marty Wyngaarden Krauss
Journal:  Am J Ment Retard       Date:  2006-03

5.  Parent quality of life in the context of pediatric inflammatory bowel disease.

Authors:  Rachel Neff Greenley; Carin Cunningham
Journal:  J Pediatr Psychol       Date:  2008-06-24

6.  Coping by redefinition: cognitive appraisals in mothers of children with autism and children without autism.

Authors:  Belgin Tunali; Thomas G Power
Journal:  J Autism Dev Disord       Date:  2002-02

7.  What happens to children with PDD when they grow up? Prospective follow-up of 219 children from preschool age to mid-childhood.

Authors:  A Baghdadli; M-C Picot; C Michelon; J Bodet; E Pernon; C Burstezjn; J Hochmann; A Lazartigues; R Pry; C Aussilloux
Journal:  Acta Psychiatr Scand       Date:  2007-05       Impact factor: 6.392

8.  Searching for acceptance: challenges encountered while raising a child with autism.

Authors:  Matthew J Altiere; Silvia von Kluge
Journal:  J Intellect Dev Disabil       Date:  2009-06

9.  Development, evaluation and validation of a new instrument for measurement quality of life in the parents of children with chronic disease.

Authors:  Małgorzata Farnik; Grzegorz Brożek; Władysław Pierzchała; Jan E Zejda; Michał Skrzypek; Łukasz Walczak
Journal:  Health Qual Life Outcomes       Date:  2010-12-23       Impact factor: 3.186

10.  Impairment of quality of life in parents of children and adolescents with pervasive developmental disorder.

Authors:  Diego Mugno; Liliana Ruta; Valentina Genitori D'Arrigo; Luigi Mazzone
Journal:  Health Qual Life Outcomes       Date:  2007-04-27       Impact factor: 3.186

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  16 in total

1.  Quality of Life, Coping Styles, Stress Levels, and Time Use in Mothers of Children with Autism Spectrum Disorders: Comparing Single Versus Coupled Households.

Authors:  Tomomi McAuliffe; Reinie Cordier; Sharmila Vaz; Yvonne Thomas; Torbjorn Falkmer
Journal:  J Autism Dev Disord       Date:  2017-10

Review 2.  Predictors of an earlier diagnosis of Autism Spectrum Disorder in children and adolescents: a systematic review (1987-2017).

Authors:  Julie Loubersac; Cécile Michelon; Laetitia Ferrando; Marie-Christine Picot; Amaria Baghdadli
Journal:  Eur Child Adolesc Psychiatry       Date:  2021-04-28       Impact factor: 4.785

3.  Quality of Life in Parents of Young Adults with ASD: EpiTED Cohort.

Authors:  Cécile Rattaz; Cécile Michelon; Herbert Roeyers; Amaria Baghdadli
Journal:  J Autism Dev Disord       Date:  2017-09

4.  Depression in Parents of Children Diagnosed with Autism Spectrum Disorder: A Claims-Based Analysis.

Authors:  Austin C Cohrs; Douglas L Leslie
Journal:  J Autism Dev Disord       Date:  2017-05

5.  Evaluation of the social validity and implementation process of a psychoeducational program for parents of a child with Autism Spectrum Disorder.

Authors:  Carol Sankey; Sophie Girard; Emilie Cappe
Journal:  Int J Dev Disabil       Date:  2019-04-20

6.  The moderating role of age in the relationship between different stressors and the quality of life of the relatives of people with intellectual disabilities.

Authors:  Lucía Oñate; Esther Calvete
Journal:  Qual Life Res       Date:  2019-06-27       Impact factor: 4.147

7.  The Role of Choice and Control in the Impact of Autism Waiver Services on Family Quality of Life and Child Progress.

Authors:  Karen Goldrich Eskow; Gregory S Chasson; Jean Ann Summers
Journal:  J Autism Dev Disord       Date:  2019-05

8.  Life Satisfaction Among Mothers of Individuals with Prader-Willi Syndrome.

Authors:  Carolyn M Shivers; Caroline L Leonczyk; Elisabeth M Dykens
Journal:  J Autism Dev Disord       Date:  2016-06

9.  Rationale and protocol for using a smartphone application to study autism spectrum disorders: SMARTAUTISM.

Authors:  Olivier Bonnot; Dominique Bonneau; Aude Doudard; Philippe Duverger
Journal:  BMJ Open       Date:  2016-11-22       Impact factor: 2.692

10.  Effects of a Physical Exercise Program (PEP-Aut) on Autistic Children's Stereotyped Behavior, Metabolic and Physical Activity Profiles, Physical Fitness, and Health-Related Quality of Life: A Study Protocol.

Authors:  José Pedro Ferreira; Chrystiane Vasconcelos Andrade Toscano; Aristides Machado Rodrigues; Guilherme Eustaquio Furtado; Mauro Gomes Barros; Rildo Souza Wanderley; Humberto Moreira Carvalho
Journal:  Front Public Health       Date:  2018-03-02
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