Literature DB >> 30689081

The Role of Choice and Control in the Impact of Autism Waiver Services on Family Quality of Life and Child Progress.

Karen Goldrich Eskow1, Gregory S Chasson2, Jean Ann Summers3.   

Abstract

Home and Community-Based Services (HCBS) Waivers provide support and services to families with a child/youth with autism spectrum disorder (ASD). Research indicates HCBS Waivers are positively related to family quality of life (FQoL) and Child Progress. This study replicated and expanded prior research using propensity score matching of 460 families. Results support prior findings that HCBS waivers have a positive impact on FQoL and aspects of child progress. This study also found that having choices in the selection of services and service providers, as well as control over day-to-day provision of services, strengthened both the child and family impacts of the Waiver services. In addition, the study provides preliminary evidence for psychometric properties of a quick and inexpensive parent-report of ASD severity.

Entities:  

Keywords:  Autism services; Family quality of life; Home and Community-Based Services Waiver; Medicaid

Mesh:

Year:  2019        PMID: 30689081     DOI: 10.1007/s10803-019-03886-5

Source DB:  PubMed          Journal:  J Autism Dev Disord        ISSN: 0162-3257


  48 in total

1.  Parent-rated anxiety symptoms in children with pervasive developmental disorders: frequency and association with core autism symptoms and cognitive functioning.

Authors:  Denis G Sukhodolsky; Lawrence Scahill; Kenneth D Gadow; L Eugene Arnold; Michael G Aman; Christopher J McDougle; James T McCracken; Elaine Tierney; Susan Williams White; Luc Lecavalier; Benedetto Vitiello
Journal:  J Abnorm Child Psychol       Date:  2007-08-03

2.  The diagnosis of autism and Asperger syndrome: findings from a survey of 770 families.

Authors:  P Howlin; A Asgharian
Journal:  Dev Med Child Neurol       Date:  1999-12       Impact factor: 5.449

3.  The American Academy of Developmental Medicine and Dentistry: eliminating health disparities for individuals with mental retardation and other developmental disabilities.

Authors:  Sanford J Fenton; Henry Hood; Matthew Holder; Philip B May; Wendy E Mouradian
Journal:  J Dent Educ       Date:  2003-12       Impact factor: 2.264

4.  Family quality of life: a qualitative inquiry.

Authors:  Denise Poston; Ann Turnbull; Jiyeon Park; Hasheem Mannan; Janet Marquis; Mian Wang
Journal:  Ment Retard       Date:  2003-10

5.  Family system and coping behaviors: a comparison between parents of children with autistic spectrum disorders and parents with non-autistic children.

Authors:  Bengt Sivberg
Journal:  Autism       Date:  2002-12

6.  The symptoms of autism spectrum disorders in adolescence and adulthood.

Authors:  Marsha Mailick Seltzer; Marty Wyngaarden Krauss; Paul T Shattuck; Gael Orsmond; April Swe; Catherine Lord
Journal:  J Autism Dev Disord       Date:  2003-12

7.  Psychiatric disorders in children with autism spectrum disorders: prevalence, comorbidity, and associated factors in a population-derived sample.

Authors:  Emily Simonoff; Andrew Pickles; Tony Charman; Susie Chandler; Tom Loucas; Gillian Baird
Journal:  J Am Acad Child Adolesc Psychiatry       Date:  2008-08       Impact factor: 8.829

8.  Children with autism: quality of life and parental concerns.

Authors:  Li-Ching Lee; Rebecca A Harrington; Brian B Louie; Craig J Newschaffer
Journal:  J Autism Dev Disord       Date:  2007-12-06

9.  Adult outcome for children with autism.

Authors:  Patricia Howlin; Susan Goode; Jane Hutton; Michael Rutter
Journal:  J Child Psychol Psychiatry       Date:  2004-02       Impact factor: 8.982

10.  Impairment of quality of life in parents of children and adolescents with pervasive developmental disorder.

Authors:  Diego Mugno; Liliana Ruta; Valentina Genitori D'Arrigo; Luigi Mazzone
Journal:  Health Qual Life Outcomes       Date:  2007-04-27       Impact factor: 3.186

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  5 in total

1.  Characterization of Family-Directed Care Coordination and Involvement in Behavioral Treatments in an Autism-Specific Medicaid Waiver.

Authors:  Gregory S Chasson; Karen Goldrich Eskow; Jean Ann Summers; Taylor M Dreher
Journal:  J Autism Dev Disord       Date:  2021-02

2.  Key stakeholder perspectives on obstacles to an autism-specific Medicaid waiver service delivery model.

Authors:  Calliope Holingue; Yeon Jang; Gazi Azad; Rebecca Landa
Journal:  J Appl Res Intellect Disabil       Date:  2021-09-23

3.  States' use of Medicaid to meet the needs of autistic individuals.

Authors:  Lindsay Lawer Shea; Kaitlin H Koffer Miller; Kate Verstreate; Sha Tao; David Mandell
Journal:  Health Serv Res       Date:  2021-07-12       Impact factor: 3.402

4.  The Association of the Medicaid 1915(c) Home and Community-Based Services Waivers with Emergency Department Utilization among Youth with Autism Spectrum Disorder.

Authors:  Guodong Liu; Diana L Velott; Lan Kong; Andrew W Dick; David S Mandell; Bradley D Stein; Michael J Murray; Djibril M Ba; Zuleyha Cidav; Douglas L Leslie
Journal:  J Autism Dev Disord       Date:  2021-05-09

5.  A community-engaged approach to examining barriers and facilitators to accessing autism services in Korean immigrant families.

Authors:  Vanessa C Fong; Bo Sang Lee; Grace Iarocci
Journal:  Autism       Date:  2021-07-21
  5 in total

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