Literature DB >> 28624963

Quality of Life in Parents of Young Adults with ASD: EpiTED Cohort.

Cécile Rattaz1,2, Cécile Michelon1,3, Herbert Roeyers4, Amaria Baghdadli5,6.   

Abstract

The impact of ASD on parental QOL was evaluated in the EpiTED cohort study at early adulthood. Two-third of parents of young adults with ASD (66.7%) reported that their QoL was at least moderately altered. The perceived impact of ASD on parental QoL was related to the young adults' level of adaptive skills, as well as to symptom severity and the presence of challenging behaviors, which appeared to be the main risk factor. The study of change between adolescence and early adulthood showed that parents whose children had a decrease in challenging behaviors perceived a decreased impact on their QoL. These results argue for the importance to propose specific interventions to target associated challenging behaviors in ASD.

Entities:  

Keywords:  Autism; Cohort; Parental QoL; Young adult

Mesh:

Year:  2017        PMID: 28624963     DOI: 10.1007/s10803-017-3197-y

Source DB:  PubMed          Journal:  J Autism Dev Disord        ISSN: 0162-3257


  31 in total

1.  Satisfaction with formal support and education for children with autism spectrum disorder: the voices of the parents.

Authors:  J Renty; H Roeyers
Journal:  Child Care Health Dev       Date:  2006-05       Impact factor: 2.508

2.  The impact of behaviour problems on caregiver stress in young people with autism spectrum disorders.

Authors:  L Lecavalier; S Leone; J Wiltz
Journal:  J Intellect Disabil Res       Date:  2006-03

3.  Transition satisfaction and family well being among parents of young adults with severe intellectual disability.

Authors:  Cameron L Neece; Bonnie R Kraemer; Jan Blacher
Journal:  Intellect Dev Disabil       Date:  2009-02

4.  Transitions from school for young adults with intellectual disability: Parental perspectives on "life as an adjustment".

Authors:  Michael D Davies; Wendi Beamish
Journal:  J Intellect Dev Disabil       Date:  2009-09

5.  Autism in adults: symptom patterns and early childhood predictors. Use of the DISCO in a community sample followed from childhood.

Authors:  Eva Billstedt; I Carina Gillberg; Christopher Gillberg
Journal:  J Child Psychol Psychiatry       Date:  2007-11       Impact factor: 8.982

6.  Family Quality of Life During the Transition to Adulthood for Individuals With Intellectual Disability and/or Autism Spectrum Disorders.

Authors:  Thomas L Boehm; Erik W Carter; Julie Lounds Taylor
Journal:  Am J Intellect Dev Disabil       Date:  2015-09

7.  Transition and change in adolescents and young adults with autism: longitudinal effects on maternal well-being.

Authors:  Julie Lounds; Marsha Mailick Seltzer; Jan S Greenberg; Paul T Shattuck
Journal:  Am J Ment Retard       Date:  2007-11

8.  The symptoms of autism spectrum disorders in adolescence and adulthood.

Authors:  Marsha Mailick Seltzer; Marty Wyngaarden Krauss; Paul T Shattuck; Gael Orsmond; April Swe; Catherine Lord
Journal:  J Autism Dev Disord       Date:  2003-12

9.  Autism Diagnostic Interview-Revised: a revised version of a diagnostic interview for caregivers of individuals with possible pervasive developmental disorders.

Authors:  C Lord; M Rutter; A Le Couteur
Journal:  J Autism Dev Disord       Date:  1994-10

10.  Parenting stress among parents of children with Neurodevelopmental Disorders.

Authors:  Francesco Craig; Francesca Felicia Operto; Andrea De Giacomo; Lucia Margari; Alessandro Frolli; Massimiliano Conson; Sara Ivagnes; Marianna Monaco; Francesco Margari
Journal:  Psychiatry Res       Date:  2016-06-01       Impact factor: 3.222

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  6 in total

1.  Correction to: Fifteen-Year Prospective Follow-Up Study of Adult Outcomes of Autism Spectrum Disorders Among Children Attending Centers in Five Regional Departments in France: The EpiTED Cohort.

Authors:  Amaria Baghdadli; Cécile Rattaz; Cécile Michelon; Eric Pernon; Kerim Munir
Journal:  J Autism Dev Disord       Date:  2019-06

2.  The moderating role of age in the relationship between different stressors and the quality of life of the relatives of people with intellectual disabilities.

Authors:  Lucía Oñate; Esther Calvete
Journal:  Qual Life Res       Date:  2019-06-27       Impact factor: 4.147

3.  Dyadic Effect of Coping on the Perceived Impact of ASD of Children on Parental Quality of Life: Report from the ELENA Cohort.

Authors:  Leïla Brillet; Marianne Peries; Christelle Vernhet; Cécile Rattaz; Cécile Michelon; Amaria Baghdadli
Journal:  J Autism Dev Disord       Date:  2022-01-07

4.  Perceptions of parents of the impact of autism spectrum disorder on their quality of life and correlates: comparison between mothers and fathers.

Authors:  Christelle Vernhet; Cécile Michelon; Florine Dellapiazza; Cécile Rattaz; Marie-Maude Geoffray; Herbert Roeyers; Marie-Christine Picot; Amaria Baghdadli
Journal:  Qual Life Res       Date:  2021-11-25       Impact factor: 4.147

5.  Investigating the natural history and prognostic factors of ASD in children: the multicEntric Longitudinal study of childrEN with ASD - the ELENA study protocol.

Authors:  Amaria Baghdadli; Stéphanie Miot; Cécile Rattaz; Tasnime Akbaraly; Marie-Maude Geoffray; Cécile Michelon; Julie Loubersac; Sabine Traver; Marion Mortamais; Sandrine Sonié; Julien Pottelette; Laurence Robel; Mario Speranza; Stéphanie Vesperini; Thierry Maffre; Bruno Falissard; Marie-Christine Picot
Journal:  BMJ Open       Date:  2019-06-19       Impact factor: 2.692

6.  Predictors of the Quality of Life of Informal Carers of Adults on the Autism Spectrum.

Authors:  Marisse T Sonido; Ye In Hwang; Preeyaporn Srasuebkul; Julian N Trollor; Samuel R C Arnold
Journal:  J Autism Dev Disord       Date:  2021-07-12
  6 in total

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