Literature DB >> 26883647

Life Satisfaction Among Mothers of Individuals with Prader-Willi Syndrome.

Carolyn M Shivers1,2,3, Caroline L Leonczyk4,5, Elisabeth M Dykens4,6.   

Abstract

Mothers of individuals with Prader-Willi syndrome (PWS) often experience numerous stressors, even when compared to mothers of children with other intellectual and developmental disabilities. Despite this, these mothers show great variability in self-reported life satisfaction. Using data from a longitudinal study of individuals with PWS and their families, the present study analyzed factors related to maternal life satisfaction, both cross-sectionally and over time. Results show that both child factors (e.g., behavior problems, hyperphagia) and maternal factors (e.g., stress, coping style) were significantly related to maternal life satisfaction. However, none of the tested variables predicted change in life satisfaction over time. Research and practice implications are discussed.

Entities:  

Keywords:  Coping; Life satisfaction; Mothers; Prader-Willi syndrome

Mesh：

Year:  2016        PMID： 26883647     DOI： 10.1007/s10803-016-2741-5

Source DB:  PubMed          Journal:  J Autism Dev Disord        ISSN： 0162-3257


  43 in total

1.  The Satisfaction With Life Scale.

Authors:  E Diener; R A Emmons; R J Larsen; S Griffin
Journal:  J Pers Assess       Date:  1985-02

2.  Families of children with Prader-Willi syndrome: stress-support and relations to child characteristics.

Authors:  R M Hodapp; E M Dykens; L L Masino
Journal:  J Autism Dev Disord       Date:  1997-02

3.  The impact of Prader-Willi syndrome on the family's quality of life and caregiving, and the unaffected siblings' psychosocial adjustment.

Authors:  M M Mazaheri; R D Rae-Seebach; H E Preston; M Schmidt; S Kountz-Edwards; N Field; S Cassidy; W Packman
Journal:  J Intellect Disabil Res       Date:  2012-10-12

4.  Life satisfaction and depression in a 15-year follow-up of healthy adults.

Authors:  Heli Koivumaa-Honkanen; Jaakko Kaprio; Risto Honkanen; Heimo Viinamäki; Markku Koskenvuo
Journal:  Soc Psychiatry Psychiatr Epidemiol       Date:  2004-12       Impact factor: 4.328

5.  Psychosocial problems, coping strategies, and the need for information of parents of children with Prader-Willi syndrome and Angelman syndrome.

Authors:  H W van den Borne; R H van Hooren; M van Gestel; P Rienmeijer; J P Fryns; L M Curfs
Journal:  Patient Educ Couns       Date:  1999-11

6.  Maladaptive and compulsive behavior in Prader-Willi syndrome: new insights from older adults.

Authors:  Elisabeth M Dykens
Journal:  Am J Ment Retard       Date:  2004-03

7.  Risk and resistance factors in the adaptation of parents of children with severe physical disability.

Authors:  P Sloper; S Turner
Journal:  J Child Psychol Psychiatry       Date:  1993-02       Impact factor: 8.982

8.  Characteristics of the eating disorder in Prader-Willi syndrome: implications for treatment.

Authors:  A J Holland; J Treasure; P Coskeran; J Dallow
Journal:  J Intellect Disabil Res       Date:  1995-10

9.  Trajectories of diurnal cortisol in mothers of children with autism and other developmental disabilities: relations to health and mental health.

Authors:  Elisabeth M Dykens; Warren Lambert
Journal:  J Autism Dev Disord       Date:  2013-10

10.  A comparison of coping strategies of aging mothers of adults with mental illness or mental retardation.

Authors:  M M Seltzer; J S Greenberg; M W Krauss
Journal:  Psychol Aging       Date:  1995-03
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  7 in total

1.  Social Support as Mediator and Moderator of the Relationship Between Parenting Stress and Life Satisfaction Among the Chinese Parents of Children with ASD.

Authors:  Ming-Hui Lu; Guang-Hai Wang; Hao Lei; Meng-Liang Shi; Rui Zhu; Fan Jiang
Journal:  J Autism Dev Disord       Date:  2018-04

2.  Associations Between Hyperphagia, Symptoms of Sleep Breathing Disorder, Behaviour Difficulties and Caregiver Well-Being in Prader-Willi Syndrome: A Preliminary Study.

Authors:  Jessica Mackay; Gillian M Nixon; Antony R Lafferty; Geoff Ambler; Nitin Kapur; Philip B Bergman; Cara Schofield; Chris Seton; Andrew Tai; Elaine Tham; Komal Vora; Patricia Crock; Charles Verge; Yassmin Musthaffa; Greg Blecher; Daan Caudri; Helen Leonard; Peter Jacoby; Andrew Wilson; Catherine S Choong; Jenny Downs
Journal:  J Autism Dev Disord       Date:  2021-09-08

3.  The Continued Impact of the COVID-19 Pandemic on Pediatric Obesity: A Commentary on the Return to a Healthy New "Normal".

Authors:  Eileen Chaves; Sheethal D Reddy; Adelle Cadieux; Jessica Tomasula; Kimberly Reynolds
Journal:  Int J Environ Res Public Health       Date:  2022-05-05       Impact factor: 4.614

Review 4.  A cross-comparison of cognitive ability across 8 genomic disorders.

Authors:  Michael Mortillo; Jennifer G Mulle
Journal:  Curr Opin Genet Dev       Date:  2021-05-31       Impact factor: 4.665

5.  Parental stress and adjustment in the context of rare genetic syndromes: A scoping review.

Authors:  Jacqueline Fitzgerald; Louise Gallagher
Journal:  J Intellect Disabil       Date:  2021-04-19

Review 6.  Requirements for improving health and well-being of children with Prader-Willi syndrome and their families.

Authors:  Jessica Mackay; Zoe McCallum; Geoffrey R Ambler; Komal Vora; Gillian Nixon; Philip Bergman; Nora Shields; Kate Milner; Nitin Kapur; Patricia Crock; Daan Caudri; Jaqueline Curran; Charles Verge; Chris Seton; Andrew Tai; Elaine Tham; Yassmin Musthaffa; Antony R Lafferty; Greg Blecher; Jessica Harper; Cara Schofield; Aleisha Nielsen; Andrew Wilson; Helen Leonard; Catherine S Choong; Jenny Downs
Journal:  J Paediatr Child Health       Date:  2019-06-30       Impact factor: 1.954

7.  Examining the Effectiveness of Group Positive Parenting Training on Increasing Hope and Life Satisfaction in Mothers of Children with Autism.

Authors:  Seyed Omid Sotoudeh Navroodi; Mojgan Nicknam; Ameneh Ahmadi; Fatemeh Pooragha Roodbarde; Saeed Azami
Journal:  Iran J Psychiatry       Date:  2018-04
  7 in total

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