| Literature DB >> 24485282 |
Anna P Nieboer1, Jane M Cramm, Henk M Sonneveld, Marij E Roebroeck, Anneloes van Staa, Mathilde M H Strating.
Abstract
BACKGROUND: The purpose of this study was to describe the interventions implemented in a quality improvement programme to improve transitional care and evaluate its effectiveness in reducing bottlenecks as perceived by professionals and improving chronically ill adolescents' experiences with care delivery.Entities:
Mesh:
Year: 2014 PMID: 24485282 PMCID: PMC3913627 DOI: 10.1186/1472-6963-14-47
Source DB: PubMed Journal: BMC Health Serv Res ISSN: 1472-6963 Impact factor: 2.655
Bottlenecks in transitional care perceived by professionals (n = 72)
| No joint mission between paediatric and adult care | 3.4 (1.0) | 1.8 (0.6) | 1.6 (0.9) | <0.001 |
| Parents have trouble ceding control to adolescents | 3.1 (0.7) | 2.6 (0.6) | 0.5 (0.7) | <0.001 |
| Lack of coordination between paediatric and adult care | 3.0 (0.8) | 1.8 (0.4) | 1.2 (0.8) | <0.001 |
| Adolescents take too little responsibility for self-care | 2.9 (0.7) | 2.5 (0.5) | 0.4 (0.6) | <0.001 |
| Lack of resources for joint care services | 2.7 (0.9) | 1.8 (0.6) | 0.9 (1.0) | <0.001 |
| Psychosocial problems of adolescents | 2.7 (0.5) | 2.5 (0.5) | 0.2 (0.5) | 0.027 |
| Non-compliance of adolescents with therapy | 2.7 (0.7) | 2.4 (0.5) | 0.3 (0.6) | <0.001 |
| Social participation of adolescents | 2.3 (0.6) | 2.2 (0.6) | 0.2 (0.5) | 0.005 |
SD, standard deviation; T0, beginning of ‘On Your Own Feet Ahead!’ quality improvement programme; T1, one year later. Only data from respondents who completed the questionnaire at both T0 and T1 were included in the analyses.
Adolescents’ perceptions of current care (n = 242)
| Has staff who know how to talk and listen to teenagers | 5.7 (1.7) | 5.7 (1.5) | 0.0 (1.9) | 0.813 |
| Treats me as an individual and understands my specific needs | 5.5 (1.7) | 5.4 (1.8) | 0.1 (2.2) | 0.312 |
| Has staff who understand the realities of being a teenager | 5.6 (1.7) | 5.4 (1.7) | 0.1 (2.1) | 0.364 |
| Providers work well together | 5.5 (1.6) | 5.3 (1.8) | 0.2 (2.0) | 0.092 |
| Is interested in me as a person, not just the illness | 5.3 (1.8) | 5.2 (1.8) | 0.1 (2.3) | 0.454 |
| Allows me to make my own decisions about health care options in my own time | 5.3 (1.8) | 5.2 (1.9) | 0.1 (2.3) | 0.337 |
| Gives me opportunities to be seen in the clinic alone (if i want to) | 5.4 (2.0) | 5.8 (1.7) | -0.4 (2.0) | <0.001 |
| Provides information to other professionals involved in my health care (e.g. family doctor) | 4.8 (1.8) | 4.7 (1.8) | 0.1 (2.3) | 0.673 |
| Allows me to decide who should be in the consultation/examination room | 4.6 (2.2) | 5.0 (2.0) | -0.4 (2.5) | <0.05 |
| Helps me to prepare for my move to adult services | 4.4 (1.9) | 4.5 (2.0) | -0.1 (2.4) | 0.470 |
| Helps me to plan for my future | 4.1 (1.9) | 4.2 (2.0) | 0.0 (2.4) | 0.913 |
| Providers from paediatric and adult care arrange joint appointments/consulting hours for adolescents | 4.1 (2.0) | 4.0 (2.1) | 0.1 (2.5) | 0.423 |
| Helps me to improve independence by using an action plan | 4.0 (2.0) | 4.0 (1.9) | 0.0 (2.4) | 0.848 |
| Does not waste my time at the clinic | 4.3 (2.0) | 4.2 (1.9) | 0.1 (2.4) | 0.626 |
| Has staff who i can talk to about sensitive or difficult issues | 4.9 (2.0) | 5.0 (1.9) | -0.1 (2.3) | 0.575 |
| Has a specific staff member who is coordinating my transitional care | 3.7 (1.9) | 4.0 (1.9) | -0.3 (2.3) | 0.083 |
SD, standard deviation; T0, beginning of ‘On Your Own Feet Ahead!’ quality improvement programme; T1, one year later. Only data from respondents who completed the questionnaire at both T0 and T1 were included in the analyses.