Literature DB >> 16464931

Growing up and moving on in rheumatology: development and preliminary evaluation of a transitional care programme for a multicentre cohort of adolescents with juvenile idiopathic arthritis.

Janet E McDonagh1, Karen L Shaw, Taunton R Southwood.   

Abstract

This article describes the development and initial evaluation of an evidence-based transitional care programme recently implemented in a multicentre controlled trial in the United Kingdom. The individual components of the programme are described. Evaluation of the acceptability and utilization of these components employed questionnaires administered to users (adolescents with juvenile idiopathic arthritis and their parents) and providers (rheumatology health professionals). The results confirm the acceptability and utilization of the programme components in addition to further innovative developments during the course of the study. In conclusion, the evidence-based transitional care programme components reported here are acceptable and useful to both user and provider and are potentially feasible in clinical practice in a revised format.

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Year:  2006        PMID: 16464931     DOI: 10.1177/1367493506060203

Source DB:  PubMed          Journal:  J Child Health Care        ISSN: 1367-4935            Impact factor:   1.979


  30 in total

1.  Why bother talking to teenagers?

Authors:  Samir Dawlatly
Journal:  Br J Gen Pract       Date:  2012-02       Impact factor: 5.386

2.  Lost in transition? Between paediatric and adult services.

Authors:  Janet E McDonagh; Russell M Viner
Journal:  BMJ       Date:  2006-02-25

Review 3.  Transition of care from paediatric to adult rheumatology.

Authors:  Janet E McDonagh
Journal:  Arch Dis Child       Date:  2007-09       Impact factor: 3.791

4.  Transitional care in inflammatory bowel disease.

Authors:  Jessica R Philpott
Journal:  Gastroenterol Hepatol (N Y)       Date:  2011-01

Review 5.  Juvenile idiopathic arthritis: the paediatric perspective.

Authors:  Alison Jordan; Janet E McDonagh
Journal:  Pediatr Radiol       Date:  2006-05-11

6.  Growing up and moving on. A multicentre UK audit of the transfer of adolescents with juvenile idiopathic arthritis from paediatric to adult centred care.

Authors:  L P Robertson; J E McDonagh; T R Southwood; K L Shaw
Journal:  Ann Rheum Dis       Date:  2005-06-30       Impact factor: 19.103

Review 7.  Transition of care from paediatric to adult services in haematology.

Authors:  Paula H B Bolton-Maggs
Journal:  Arch Dis Child       Date:  2007-09       Impact factor: 3.791

8.  Consensus of the Spanish society of pediatric rheumatology for transition management from pediatric to adult care in rheumatic patients with childhood onset.

Authors:  Inmaculada Calvo; Jordi Antón; Sagrario Bustabad; Marisol Camacho; Jaime de Inocencio; M Luz Gamir; Jenaro Graña; Lucía La Cruz; Juan Carlos López Robledillo; Marta Medrano; Rosa Merino; Consuelo Modesto; Esmeralda Nuñez; M Jesús Rua; Vicenç Torrente-Segarra; Carmen Vargas; Loreto Carmona; Estíbaliz Loza
Journal:  Rheumatol Int       Date:  2015-04-28       Impact factor: 2.631

9.  High rates of unsuccessful transfer to adult care among young adults with juvenile idiopathic arthritis.

Authors:  Elizabeth Hazel; Xun Zhang; Ciarán M Duffy; Sarah Campillo
Journal:  Pediatr Rheumatol Online J       Date:  2010-01-11       Impact factor: 3.054

10.  The challenges of transferring chronic illness patients to adult care: reflections from pediatric and adult rheumatology at a US academic center.

Authors:  Aimee O Hersh; Shirley Pang; Megan L Curran; Diana S Milojevic; Emily von Scheven
Journal:  Pediatr Rheumatol Online J       Date:  2009-06-08       Impact factor: 3.054

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