Literature DB >> 23876260

Voices not heard: a systematic review of adolescents' and emerging adults' perspectives of health care transition.

Cecily L Betz1, Marie L Lobo, Wendy M Nehring, Kim Bui.   

Abstract

BACKGROUND: A better understanding of the needs of adolescents and emerging adults with special health care needs (AEA-SHCNs) is essential to provide health care transition services that represent best practices. The purpose of this systematic review was to evaluate the research on health care transition for AEA-SHCNs from their perspectives.
METHODS: A comprehensive literature review of research publications since 2005 was performed using the PubMed, Cumulative Index to Nursing and Allied Health Literature, and EBSCO databases. Thirty-five studies met the final review criteria.
RESULTS: The process of transition from child to adult for AEA-SHCNs is complex. Individuals experiencing the transition desire to be a part of the process and want providers who will listen and be sensitive to their needs, which are often different from others receiving health care at the same facility.
CONCLUSIONS: More research that considers the voice of the AEA-SHCNs related to transition from pediatric to adult care is needed.
Copyright © 2013 Elsevier Inc. All rights reserved.

Entities:  

Keywords:  Adolescents; Emerging adults; Review of literature; Special health care needs; Systematic review; Youth

Mesh:

Year:  2013        PMID: 23876260     DOI: 10.1016/j.outlook.2013.01.008

Source DB:  PubMed          Journal:  Nurs Outlook        ISSN: 0029-6554            Impact factor:   3.250


  18 in total

1.  Assessing Disease Knowledge and Self-Management in Youth With Sickle Cell Disease Prior to Transition.

Authors:  Barbara Speller-Brown; Maureen Varty; Lisa Thaniel; Marni B Jacobs
Journal:  J Pediatr Oncol Nurs       Date:  2018-12-19       Impact factor: 1.636

2.  Pediatric to Adult Care Transition: Perspectives of Young Adults With Sickle Cell Disease.

Authors:  Jerlym S Porter; Kimberly M Wesley; Mimi S Zhao; Rebecca J Rupff; Jane S Hankins
Journal:  J Pediatr Psychol       Date:  2017-10-01

3.  Transitioning patients with inflammatory bowel disease (IBD) from adolescent to adult services: a systematic review.

Authors:  Tilean Clarke; Joanne Lusher
Journal:  Frontline Gastroenterol       Date:  2015-06-16

Review 4.  Transition of Children with Neurological Disorders.

Authors:  Ann H Tilton
Journal:  Curr Neurol Neurosci Rep       Date:  2018-03-10       Impact factor: 5.081

5.  Integration versus disintegration: a grounded theory study of adolescent and young adult development in the context of perinatally-acquired HIV infection.

Authors:  Joseph P De Santis; Ana Garcia; Aida Chaparro; Oscar Beltran
Journal:  J Pediatr Nurs       Date:  2014-01-13       Impact factor: 2.145

6.  The Role of Health Advocacy in Transitions from Pediatric to Adult Care for Children with Special Health Care Needs: Bridging Families, Provider and Community Services.

Authors:  Megumi J Okumura; Mara Saunders; Roberta S Rehm
Journal:  J Pediatr Nurs       Date:  2015-07-27       Impact factor: 2.145

7.  Health transition experiences of Canadian ventilator-assisted adolescents and their family caregivers: A qualitative interview study.

Authors:  Craig M Dale; Judy King; Reshma Amin; Sherri Katz; Douglas McKim; Jeremy Road; Louise Rose
Journal:  Paediatr Child Health       Date:  2017-06-14       Impact factor: 2.253

8.  Using telehealth to assess depression and suicide ideation and provide mental health interventions to groups of chronically ill adolescents and young adults.

Authors:  Shawna Wright; Noreen Thompson; Donna Yadrich; Amanda Bruce; Jaime R M Bonar; Ryan Spaulding; Carol E Smith
Journal:  Res Nurs Health       Date:  2020-12-11       Impact factor: 2.228

9.  Children and young people's contributions to public involvement and engagement activities in health-related research: A scoping review.

Authors:  Alison Rouncefield-Swales; Jane Harris; Bernie Carter; Lucy Bray; Toni Bewley; Rachael Martin
Journal:  PLoS One       Date:  2021-06-09       Impact factor: 3.240

10.  The Transition from Pediatric to Adult Health Care in Young Adults with Spina Bifida: Demographic and Physician-Related Correlates.

Authors:  Colleen Stiles-Shields; Tessa K Kritikos; Meredith Starnes; Zoe R Smith; Grayson N Holmbeck
Journal:  J Dev Behav Pediatr       Date:  2021-09-24       Impact factor: 2.988

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