Literature DB >> 24469692

The troubles of telling: managing communication about the end of life.

Alex Broom1, Emma Kirby, Phillip Good, Julia Wootton, Jon Adams.   

Abstract

Communication about palliative care represents one of the most difficult interpersonal aspects of medicine. Delivering the "terminal" diagnosis has traditionally been the focus of research, yet transitions to specialist palliative care are equally critical clinical moments. Here we focus on 20 medical specialists' strategies for engaging patients around referral to specialist palliative care. Our aim was to develop an understanding of the logics that underpin their communication strategies when negotiating this transition. We draw on qualitative interviews to explore their accounts of deciding whether and when to engage in referral discussions; the role of uncertainty and the need for hope in shaping communication; and their perceptions of how patient biographies might shape their approaches to, and communication about, the end of life. On the basis of our analysis, we argue that communication is embedded in social relations of hope, justice, and uncertainty, as well as being shaped by patient biographies.

Entities:  

Keywords:  communication; end-of-life issues; interviews, semistructured; palliative care; uncertainty

Mesh:

Year:  2014        PMID: 24469692     DOI: 10.1177/1049732313519709

Source DB:  PubMed          Journal:  Qual Health Res        ISSN: 1049-7323


  6 in total

1.  Relationships between personal attitudes about death and communication with terminally ill patients: How oncology clinicians grapple with mortality.

Authors:  Rachel A Rodenbach; Kyle E Rodenbach; Mohamedtaki A Tejani; Ronald M Epstein
Journal:  Patient Educ Couns       Date:  2015-10-23

2.  The role and significance of nurses in managing transitions to palliative care: a qualitative study.

Authors:  Emma Kirby; Alex Broom; Phillip Good
Journal:  BMJ Open       Date:  2014-09-30       Impact factor: 2.692

3.  Characterizing uncertainty in goals-of-care discussions among black and white patients: a qualitative study.

Authors:  Annie T Chen; Shelley Tsui; Rashmi K Sharma
Journal:  BMC Palliat Care       Date:  2022-02-17       Impact factor: 3.234

4.  Dying From Cancer: Communication, Empathy, and the Clinical Imagination.

Authors:  Larry D Cripe; Richard M Frankel
Journal:  J Patient Exp       Date:  2017-05-11

5.  "It doesn't exist…": negotiating palliative care from a culturally and linguistically diverse patient and caregiver perspective.

Authors:  Emma Kirby; Zarnie Lwin; Katherine Kenny; Alex Broom; Holi Birman; Phillip Good
Journal:  BMC Palliat Care       Date:  2018-07-02       Impact factor: 3.234

6.  Access to inpatient palliative care among cancer patients in France: an analysis based on the national cancer cohort.

Authors:  Asmaa Janah; Christine Le Bihan-Benjamin; Julien Mancini; Anne-Déborah Bouhnik; Philippe-Jean Bousquet; Marc-Karim Bendiane
Journal:  BMC Health Serv Res       Date:  2020-08-26       Impact factor: 2.655

  6 in total

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