Literature DB >> 24234722

Genetic counseling for pregnant adolescents.

T Peters-Brown1, L Fry-Mehltretter.   

Abstract

The genetic counseling literature has a paucity of information on how to provide genetic counseling services to adolescents, especially those who are pregnant. The adolescent population should be viewed as a separate culture, complete with their own beliefs and viewpoints, which are dependent upon the developmental growth tasks of puberty. The completion of these tasks is complicated by pregnancy, which has its own set of developmental goals. The adolescent struggle with developmental goals interferes with the ability to identify consequences, predict future outcomes, and communicate self-revealing statements or decisions effectively. Instead, the adolescent has an egocentric frame of reference and seeks peer approval. The genetic counseling dilemmas presented by pregnant adolescents are illustrated through two case reports. A model based on our own experience and a literature review for successful counseling of adolescents is presented, and utilizes the foundation of trust, patience, and nonjudgmental behavior. Techniques that address the adolescent's concern for autonomy and peer approval are important, and can be achieved through nonthreatening, open-ended questions that promote self-expression. Incorporation of these techniques in genetic counseling and in graduate training will enhance genetic counseling services to the adolescent population.

Year:  1996        PMID: 24234722     DOI: 10.1007/BF01408370

Source DB:  PubMed          Journal:  J Genet Couns        ISSN: 1059-7700            Impact factor:   2.537


  16 in total

Review 1.  Assessing mood states in pregnancy: survey of the literature.

Authors:  S L Tunis; M S Golbus
Journal:  Obstet Gynecol Surv       Date:  1991-06       Impact factor: 2.347

2.  Counseling adolescents with congenital heart disease.

Authors:  K Uzark
Journal:  J Cardiovasc Nurs       Date:  1992-04       Impact factor: 2.083

3.  Presymptomatic testing for Huntington disease: reply to Sharpe.

Authors:  K A Quaid
Journal:  Am J Med Genet       Date:  1994-02-01

4.  The ability of adolescents to predict future outcome. Part II: Therapeutic enhancement of predictive skills.

Authors:  P V Trad
Journal:  Adolescence       Date:  1993

5.  The ability of adolescents to predict future outcome. Part I: Assessing predictive abilities.

Authors:  P V Trad
Journal:  Adolescence       Date:  1993

6.  Presymptomatic testing for Huntington disease: is there a duty to test those under the age of eighteen years?

Authors:  N F Sharpe
Journal:  Am J Med Genet       Date:  1993-04-15

Review 7.  Helping pregnant teenagers.

Authors:  D Bluestein; M E Starling
Journal:  West J Med       Date:  1994-08

Review 8.  Changing adolescents' sexual behaviour: perceived risk, self-efficacy and anticipated regret.

Authors:  J van der Pligt; R Richard
Journal:  Patient Educ Couns       Date:  1994-07

9.  The use of preventive health care services: carrier testing for the genetic disorder haemophilia.

Authors:  I Varekamp; T P Suurmeijer; F R Rosendaal; A H Bröcker-Vriends
Journal:  Soc Sci Med       Date:  1993-09       Impact factor: 4.634

10.  The use of structured scenarios in genetic counselling.

Authors:  J R Arnold; E J Winsor
Journal:  Clin Genet       Date:  1984-06       Impact factor: 4.438

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  10 in total

1.  A qualitative study exploring genetic counsellors' experiences of counselling children.

Authors:  Fiona Ulph; James Leong; Cris Glazebrook; Ellen Townsend
Journal:  Eur J Hum Genet       Date:  2010-06-09       Impact factor: 4.246

2.  Counseling adolescents and the challenges for genetic counselors.

Authors:  Alice Callard; Jessica Williams; Heather Skirton
Journal:  J Genet Couns       Date:  2011-12-03       Impact factor: 2.537

3.  Predictive testing of eighteen year olds: counseling challenges.

Authors:  Clara L Gaff; Elly Lynch; Lesley Spencer
Journal:  J Genet Couns       Date:  2006-08       Impact factor: 2.537

4.  Assessing the informational needs of adolescents with a genetic condition: what do they want to know?

Authors:  Marta Szybowska; Stacy Hewson; Beverley J Antle; Riyana Babul-Hirji
Journal:  J Genet Couns       Date:  2007-04       Impact factor: 2.537

5.  The challenge of developmentally appropriate care: predictive genetic testing in young people for familial adenomatous polyposis.

Authors:  Rony E Duncan; Lynn Gillam; Julian Savulescu; Robert Williamson; John G Rogers; Martin B Delatycki
Journal:  Fam Cancer       Date:  2009-09-17       Impact factor: 2.375

6.  The Experience of Leader-Led Peer Supervision: Genetic Counselors' Perspectives.

Authors:  E Hiller; J M Rosenfield
Journal:  J Genet Couns       Date:  2000-10       Impact factor: 2.537

7.  "There's a whole different way of working with adolescents": interviews with Australian Genetic Counselors about their experiences with adolescent clients.

Authors:  Cheryl Tse; Margaret Sahhar; Jane Wallace; Rony E Duncan
Journal:  J Genet Couns       Date:  2013-05-18       Impact factor: 2.537

8.  A framework for youth-friendly genetic counseling.

Authors:  Mary-Anne Young; Kate Thompson; Jeremy Lewin; Lucy Holland
Journal:  J Community Genet       Date:  2019-11-05

9.  Genetic counselors' experiences with adolescent patients in prenatal genetic counseling.

Authors:  Catherine M Griswold; Stephanie S Ashley; Shannan DeLany Dixon; Jessica L Scott
Journal:  J Genet Couns       Date:  2010-12-07       Impact factor: 2.537

10.  Experience with genetic counseling: the adolescent perspective.

Authors:  Amanda Pichini; Cheryl Shuman; Karen Sappleton; Miriam Kaufman; David Chitayat; Riyana Babul-Hirji
Journal:  J Genet Couns       Date:  2015-11-17       Impact factor: 2.537

  10 in total

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