Literature DB >> 23686516

"There's a whole different way of working with adolescents": interviews with Australian Genetic Counselors about their experiences with adolescent clients.

Cheryl Tse1, Margaret Sahhar, Jane Wallace, Rony E Duncan.   

Abstract

Adolescence is a developmental period marked by unique physical, psychological and social changes. Guidelines about working with adolescents are available to health professionals in other fields, yet few resources are tailored specifically to genetic counselors. The current qualitative study explored the experiences of genetic counselors who work with adolescent clients to determine whether challenges exist and if further training and support are needed. Semi-structured interviews were conducted with 11 genetic counselors from Australia. Interview transcripts were analyzed using thematic analysis from which 7 key themes emerged: 1) Adolescents: A distinct client group? 2) Characteristics of adolescents; 3) Strategies for working with adolescents; 4) Confidentiality; 5) Parental involvement and presence in sessions; 6) Benefits of working with adolescents; and 7) The effectiveness of past training and education. The findings hold important implications for clinical practice and may inform future training programs and guidelines for genetic counselors internationally.

Mesh:

Year:  2013        PMID: 23686516     DOI: 10.1007/s10897-013-9601-7

Source DB:  PubMed          Journal:  J Genet Couns        ISSN: 1059-7700            Impact factor:   2.537


  15 in total

1.  Counseling adolescents and the challenges for genetic counselors.

Authors:  Alice Callard; Jessica Williams; Heather Skirton
Journal:  J Genet Couns       Date:  2011-12-03       Impact factor: 2.537

2.  Adolescence: a foundation for future health.

Authors:  Susan M Sawyer; Rima A Afifi; Linda H Bearinger; Sarah-Jayne Blakemore; Bruce Dick; Alex C Ezeh; George C Patton
Journal:  Lancet       Date:  2012-04-25       Impact factor: 79.321

Review 3.  Adolescent development.

Authors:  Deborah Christie; Russell Viner
Journal:  BMJ       Date:  2005-02-05

4.  Predictive testing of eighteen year olds: counseling challenges.

Authors:  Clara L Gaff; Elly Lynch; Lesley Spencer
Journal:  J Genet Couns       Date:  2006-08       Impact factor: 2.537

5.  Genetic counseling for pregnant adolescents.

Authors:  T Peters-Brown; L Fry-Mehltretter
Journal:  J Genet Couns       Date:  1996-12       Impact factor: 2.537

6.  The challenge of developmentally appropriate care: predictive genetic testing in young people for familial adenomatous polyposis.

Authors:  Rony E Duncan; Lynn Gillam; Julian Savulescu; Robert Williamson; John G Rogers; Martin B Delatycki
Journal:  Fam Cancer       Date:  2009-09-17       Impact factor: 2.375

7.  Influence of physician confidentiality assurances on adolescents' willingness to disclose information and seek future health care. A randomized controlled trial.

Authors:  C A Ford; S G Millstein; B L Halpern-Felsher; C E Irwin
Journal:  JAMA       Date:  1997-09-24       Impact factor: 56.272

8.  Career satisfaction in adolescent medicine. A survey of physicians trained over a 20-year period.

Authors:  T J Silber; L J D'Angelo; L W Greenberg
Journal:  J Adolesc Health Care       Date:  1989-03

9.  Access to medical care for adolescents: results from the 1997 Commonwealth Fund Survey of the Health of Adolescent Girls.

Authors:  J D Klein; K M Wilson; M McNulty; C Kapphahn; K S Collins
Journal:  J Adolesc Health       Date:  1999-08       Impact factor: 5.012

Review 10.  Predictive genetic testing in young people: when is it appropriate?

Authors:  R E Duncan
Journal:  J Paediatr Child Health       Date:  2004-11       Impact factor: 1.954

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  4 in total

1.  A framework for youth-friendly genetic counseling.

Authors:  Mary-Anne Young; Kate Thompson; Jeremy Lewin; Lucy Holland
Journal:  J Community Genet       Date:  2019-11-05

2.  A qualitative study to explore how professionals in the United Kingdom make decisions to test children for a sickle cell carrier status.

Authors:  Melissa Noke; Sarah Peters; Alison Wearden; Fiona Ulph
Journal:  Eur J Hum Genet       Date:  2015-05-27       Impact factor: 4.246

3.  Experience with genetic counseling: the adolescent perspective.

Authors:  Amanda Pichini; Cheryl Shuman; Karen Sappleton; Miriam Kaufman; David Chitayat; Riyana Babul-Hirji
Journal:  J Genet Couns       Date:  2015-11-17       Impact factor: 2.537

Review 4.  Genomic Health Literacy Interventions in Pediatrics: Scoping Review.

Authors:  Aarushi Gupta; Joseph A Cafazzo; Maarten J IJzerman; Joost F Swart; Sebastiaan Vastert; Nico M Wulffraat; Susanne Benseler; Deborah Marshall; Rae Yeung; Marinka Twilt
Journal:  J Med Internet Res       Date:  2021-12-24       Impact factor: 5.428

  4 in total

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