Literature DB >> 22138889

Counseling adolescents and the challenges for genetic counselors.

Alice Callard1, Jessica Williams, Heather Skirton.   

Abstract

Genetic counselors may have an important role in helping the adolescent make an informed decision with regard to genetic testing and in helping them to adjust to genetic risk information. However, counseling techniques that are used with adults may not be always be suited to the adolescent population. Adolescence is a time of development during which separation from the family and formation of identity is achieved. The process of this development may impact the genetic counseling relationship. Family relationships may have a strong influence on the client's decision to have genetic testing. Additionally, it may be difficult to engage the client as adolescents may not have the ability to think abstractly and consider the short and long term consequences of genetic testing. It is helpful therefore to discuss the counseling process and techniques that may be useful when counseling these clients. This paper presents two case studies that illustrate some of the difficulties that may occur when counseling adolescents for genetic testing. The authors' have reflected on their clinical experience with these clients and this is presented here to add to the growing literature on this subject.

Mesh:

Year:  2011        PMID: 22138889     DOI: 10.1007/s10897-011-9460-z

Source DB:  PubMed          Journal:  J Genet Couns        ISSN: 1059-7700            Impact factor:   2.537


  19 in total

1.  Balancing autonomy and responsibility: the ethics of generating and disclosing genetic information.

Authors:  N Hallowell; C Foster; R Eeles; A Ardern-Jones; V Murday; M Watson
Journal:  J Med Ethics       Date:  2003-04       Impact factor: 2.903

2.  Predictive testing of eighteen year olds: counseling challenges.

Authors:  Clara L Gaff; Elly Lynch; Lesley Spencer
Journal:  J Genet Couns       Date:  2006-08       Impact factor: 2.537

3.  Living with genetic risk: effect on adolescent self-concept.

Authors:  Allyn McConkie-Rosell; Gail A Spiridigliozzi; Elizabeth Melvin; Deborah V Dawson; Ave M Lachiewicz
Journal:  Am J Med Genet C Semin Med Genet       Date:  2008-02-15       Impact factor: 3.908

4.  Chronically ill adolescents' experiences of communicating with doctors: a qualitative study.

Authors:  Bryony A Beresford; Patricia Sloper
Journal:  J Adolesc Health       Date:  2003-09       Impact factor: 5.012

5.  Genetic counseling for pregnant adolescents.

Authors:  T Peters-Brown; L Fry-Mehltretter
Journal:  J Genet Couns       Date:  1996-12       Impact factor: 2.537

6.  Psychological Aspects of Genetic Counseling. X. Advanced Counseling Techniques.

Authors:  S Kessler
Journal:  J Genet Couns       Date:  1997-12       Impact factor: 2.537

7.  The genetic testing of children. Working Party of the Clinical Genetics Society (UK)

Authors:  A Clarke
Journal:  J Med Genet       Date:  1994-10       Impact factor: 6.318

8.  The requirement for informed consent prior to nursing care procedures.

Authors:  Helen Aveyard
Journal:  J Adv Nurs       Date:  2002-02       Impact factor: 3.187

9.  Dynamic mapping of human cortical development during childhood through early adulthood.

Authors:  Nitin Gogtay; Jay N Giedd; Leslie Lusk; Kiralee M Hayashi; Deanna Greenstein; A Catherine Vaituzis; Tom F Nugent; David H Herman; Liv S Clasen; Arthur W Toga; Judith L Rapoport; Paul M Thompson
Journal:  Proc Natl Acad Sci U S A       Date:  2004-05-17       Impact factor: 11.205

10.  "Family matters": a conceptual framework for genetic testing in children.

Authors:  Allyn McConkie-Rosell; Gail A Spiridigliozzi
Journal:  J Genet Couns       Date:  2004-02       Impact factor: 2.537

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  3 in total

1.  "There's a whole different way of working with adolescents": interviews with Australian Genetic Counselors about their experiences with adolescent clients.

Authors:  Cheryl Tse; Margaret Sahhar; Jane Wallace; Rony E Duncan
Journal:  J Genet Couns       Date:  2013-05-18       Impact factor: 2.537

2.  A framework for youth-friendly genetic counseling.

Authors:  Mary-Anne Young; Kate Thompson; Jeremy Lewin; Lucy Holland
Journal:  J Community Genet       Date:  2019-11-05

3.  Experience with genetic counseling: the adolescent perspective.

Authors:  Amanda Pichini; Cheryl Shuman; Karen Sappleton; Miriam Kaufman; David Chitayat; Riyana Babul-Hirji
Journal:  J Genet Couns       Date:  2015-11-17       Impact factor: 2.537

  3 in total

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