Literature DB >> 24153239

Barriers to study enrollment in patients with advanced cancer referred to a phase I clinical trials unit.

Siqing Fu1, Lacey McQuinn, Aung Naing, Jennifer J Wheler, Filip Janku, Gerald S Falchook, Sarina A Piha-Paul, Dennis Tu, Adrienne Howard, Apostolia Tsimberidou, Ralph Zinner, David S Hong, Razelle Kurzrock.   

Abstract

UNLABELLED: We conducted this retrospective study to identify reasons that patients referred to a phase I clinical trial failed to enroll or delayed enrollment onto the trial.
MATERIALS AND METHODS: Outcome analyses were conducted independently on data collected from electronic medical records of two sets of consecutive patients referred to a phase I clinical trial facility at MD Anderson Cancer Center. Data from the first set of 300 patients were used to determine relevant variables affecting enrollment; data from the second set of 957 patients were then analyzed for these variables.
RESULTS: Results from the two sets of patients were similar. Approximately 55% of patients were enrolled in a phase I trial. Patients referred from within MD Anderson were more likely to be enrolled than patients seen originally outside the institution (p = .006); black patients were more likely than white patients to enroll (69% vs. 43%; p = .04). The median interval from the initial visit to initiation of treatments was 19 days. Major reasons for failure to enroll included failure to return to the clinic (36%), opting for treatment in another clinic (17%), hospice referral (11%), early death (10%), and lack of financial clearance (5%). Treatment was delayed for three weeks or more in 250 patients; in 85 patients (34%), the delay was caused by financial and insurance issues.
CONCLUSION: Failure to return to the clinic, pursuit of other therapy, and rapid deterioration were the major reasons for failure to enroll; lengthy financial clearance was the most common reason for delayed enrollment onto a phase I trial.

Entities:  

Keywords:  Barrier; Consults; Enrollment; New patients; Patient referral; Phase I trial

Mesh:

Year:  2013        PMID: 24153239      PMCID: PMC3868426          DOI: 10.1634/theoncologist.2013-0202

Source DB:  PubMed          Journal:  Oncologist        ISSN: 1083-7159


  31 in total

1.  Advance care planning in patients with cancer referred to a phase I clinical trials program: the MD Anderson Cancer Center experience.

Authors:  Siqing Fu; F Diane Barber; Aung Naing; Jennifer Wheler; David Hong; Gerald Falchook; Sarina Piha-Paul; Apostolia Tsimberidou; Adrienne Howard; Razelle Kurzrock
Journal:  J Clin Oncol       Date:  2012-07-09       Impact factor: 44.544

Review 2.  Never too old? Age should not be a barrier to enrollment in cancer clinical trials.

Authors:  Matti S Aapro; Claus-Henning Köhne; Harvey Jay Cohen; Martine Extermann
Journal:  Oncologist       Date:  2005-03

3.  Trends in the risks and benefits to patients with cancer participating in phase 1 clinical trials.

Authors:  Thomas G Roberts; Bernardo H Goulart; Lee Squitieri; Sarah C Stallings; Elkan F Halpern; Bruce A Chabner; G Scott Gazelle; Stan N Finkelstein; Jeffrey W Clark
Journal:  JAMA       Date:  2004-11-03       Impact factor: 56.272

4.  Risks and benefits of phase 1 oncology trials, 1991 through 2002.

Authors:  Elizabeth Horstmann; Mary S McCabe; Louise Grochow; Seiichiro Yamamoto; Larry Rubinstein; Troy Budd; Dale Shoemaker; Ezekiel J Emanuel; Christine Grady
Journal:  N Engl J Med       Date:  2005-03-03       Impact factor: 91.245

5.  Evaluation of patient enrollment in oncology phase I clinical trials.

Authors:  Diane A J van der Biessen; Merlijn A Cranendonk; Gaia Schiavon; Bronno van der Holt; Erik A C Wiemer; Ferry A L M Eskens; Jaap Verweij; Maja J A de Jonge; Ron H J Mathijssen
Journal:  Oncologist       Date:  2013-02-21

6.  Personalized medicine in a phase I clinical trials program: the MD Anderson Cancer Center initiative.

Authors:  Apostolia-Maria Tsimberidou; Nancy G Iskander; David S Hong; Jennifer J Wheler; Gerald S Falchook; Siqing Fu; Sarina Piha-Paul; Aung Naing; Filip Janku; Rajyalakshmi Luthra; Yang Ye; Sijin Wen; Donald Berry; Razelle Kurzrock
Journal:  Clin Cancer Res       Date:  2012-09-10       Impact factor: 12.531

7.  Participation in cancer clinical trials: race-, sex-, and age-based disparities.

Authors:  Vivek H Murthy; Harlan M Krumholz; Cary P Gross
Journal:  JAMA       Date:  2004-06-09       Impact factor: 56.272

8.  Descriptions of benefits and risks in consent forms for phase 1 oncology trials.

Authors:  Sam Horng; Ezekiel J Emanuel; Benjamin Wilfond; Jonathan Rackoff; Karen Martz; Christine Grady
Journal:  N Engl J Med       Date:  2002-12-26       Impact factor: 91.245

9.  Barriers to clinical trial participation by older women with breast cancer.

Authors:  M Margaret Kemeny; Bercedis L Peterson; Alice B Kornblith; Hyman B Muss; Judith Wheeler; Ellis Levine; Nancy Bartlett; Gini Fleming; Harvey J Cohen
Journal:  J Clin Oncol       Date:  2003-06-15       Impact factor: 44.544

10.  Barriers in phase I cancer clinical trials referrals and enrollment: five-year experience at the Princess Margaret Hospital.

Authors:  Jeremy Ho; Gregory R Pond; Colin Newman; Martha Maclean; Eric X Chen; Amit M Oza; Lillian L Siu
Journal:  BMC Cancer       Date:  2006-11-08       Impact factor: 4.430

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  13 in total

1.  Recognizing the Financial Burden of Cancer Patients in Clinical Trials.

Authors:  Ryan D Nipp; Elizabeth Powell; Bruce Chabner; Beverly Moy
Journal:  Oncologist       Date:  2015-05-18

2.  Referrals to a Phase I Clinic and Trial Enrollment in the Molecular Screening Era.

Authors:  Tira Tan; Michael Rheaume; Lisa Wang; Helen Chow; Anna Spreafico; Aaron R Hansen; Albiruni R A Razak; Lillian L Siu; Philippe L Bedard
Journal:  Oncologist       Date:  2019-03-04

3.  Before Consent: Qualitative Analysis of Deliberations of Patients With Advanced Cancer About Early-Phase Clinical Trials.

Authors:  Sarah B Garrett; Thea M Matthews; Corey M Abramson; Christopher J Koenig; Fay J Hlubocky; Christopher K Daugherty; Pamela N Munster; Daniel Dohan
Journal:  JCO Oncol Pract       Date:  2019-10-11

Review 4.  Strategies addressing barriers to clinical trial enrollment of underrepresented populations: a systematic review.

Authors:  Caren Heller; Joyce E Balls-Berry; Jill Dumbauld Nery; Patricia J Erwin; Dawn Littleton; Mimi Kim; Winston P Kuo
Journal:  Contemp Clin Trials       Date:  2014-08-15       Impact factor: 2.226

5.  Improving Patient Participation in Cancer Clinical Trials: A Qualitative Analysis of HSRProj & RePORTER.

Authors:  Lynette Hammond Gerido; Zhe He
Journal:  Stud Health Technol Inform       Date:  2019-08-21

6.  Financial Burden of Cancer Clinical Trial Participation and the Impact of a Cancer Care Equity Program.

Authors:  Ryan D Nipp; Hang Lee; Elizabeth Powell; Nicole E Birrer; Emily Poles; Daniel Finkelstein; Karen Winkfield; Sanja Percac-Lima; Bruce Chabner; Beverly Moy
Journal:  Oncologist       Date:  2016-03-14

7.  A Case-Control Study Brings to Light the Causes of Screen Failures in Phase 1 Cancer Clinical Trials.

Authors:  Emmanuelle Kempf; Nathalie Lemoine; Gabrielle Tergemina-Clain; Anthony Turpin; Sophie Postel-Vinay; Emilie Lanoy; Jean-Charles Soria; Christophe Massard; Antoine Hollebecque
Journal:  PLoS One       Date:  2016-05-05       Impact factor: 3.240

8.  Continuous anti-angiogenic therapy after tumor progression in patients with recurrent high-grade epithelial ovarian cancer: phase I trial experience.

Authors:  Ming-Mo Hou; Zhijie Wang; Filip Janku; Sarina Piha-Paul; Aung Naing; David Hong; Shannon Westin; Robert L Coleman; Anil K Sood; Apostolia M Tsimberidou; Vivek Subbiah; Jennifer Wheler; Ralph Zinner; Karen Lu; Funda Meric-Bernstam; Siqing Fu
Journal:  Oncotarget       Date:  2016-06-07

9.  Antiangiogenesis and gene aberration-related therapy may improve overall survival in patients with concurrent KRAS and TP53 hotspot mutant cancer.

Authors:  Zhijie Wang; Sarina Piha-Paul; Filip Janku; Vivek Subbiah; Naiyi Shi; Jing Gong; Chetna Wathoo; Kenna Shaw; Kenneth Hess; Russell Broaddus; Aung Naing; David Hong; Apostolia M Tsimberidou; Daniel Karp; James Yao; Funda Meric-Bernstam; Siqing Fu
Journal:  Oncotarget       Date:  2017-05-16

10.  "When Offered to Participate": A Systematic Review and Meta-Analysis of Patient Agreement to Participate in Cancer Clinical Trials.

Authors:  Joseph M Unger; Dawn L Hershman; Cathee Till; Lori M Minasian; Raymond U Osarogiagbon; Mark E Fleury; Riha Vaidya
Journal:  J Natl Cancer Inst       Date:  2021-03-01       Impact factor: 13.506

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