Literature DB >> 24134371

Building trust for engagement of minorities in human subjects research: is the glass half full, half empty, or the wrong size?

Sandra C Quinn1, Nancy E Kass, Stephen B Thomas.   

Abstract

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Year:  2013        PMID： 24134371      PMCID： PMC3966693          DOI： 10.2105/AJPH.2013.301685

Source DB:  PubMed          Journal:  Am J Public Health        ISSN： 0090-0036            Impact factor:   9.308


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  8 in total

1.  Protecting communities in research: current guidelines and limits of extrapolation.

Authors:  C Weijer; G Goldsand; E J Emanuel
Journal:  Nat Genet       Date:  1999-11       Impact factor: 38.330

2.  Ethics. Protecting communities in biomedical research.

Authors:  C Weijer; E J Emanuel
Journal:  Science       Date:  2000-08-18       Impact factor: 47.728

3.  Survey of community engagement in NIH-funded research.

Authors:  Nancy E Hood; Tracy Brewer; Rebecca Jackson; Mary Ellen Wewers
Journal:  Clin Transl Sci       Date:  2010-02       Impact factor: 4.689

Review 4.  Toward a fourth generation of disparities research to achieve health equity.

Authors:  Stephen B Thomas; Sandra Crouse Quinn; James Butler; Craig S Fryer; Mary A Garza
Journal:  Annu Rev Public Health       Date:  2011       Impact factor: 21.981

5.  Inclusion of women, minorities, and children in clinical trials: opinions of research ethics board administrators.

Authors:  Holly A Taylor
Journal:  J Empir Res Hum Res Ethics       Date:  2009-06       Impact factor: 1.742

6.  Implementation of NIH inclusion guidelines: survey of NIH study section members.

Authors:  Holly A Taylor
Journal:  Clin Trials       Date:  2008       Impact factor: 2.486

7.  The Belmont Report. Ethical principles and guidelines for the protection of human subjects of research.

Authors: 
Journal:  J Am Coll Dent       Date:  2014

Review 8.  Are racial and ethnic minorities less willing to participate in health research?

Authors:  David Wendler; Raynard Kington; Jennifer Madans; Gretchen Van Wye; Heidi Christ-Schmidt; Laura A Pratt; Otis W Brawley; Cary P Gross; Ezekiel Emanuel
Journal:  PLoS Med       Date:  2005-12-06       Impact factor: 11.069
  8 in total
  13 in total

1.  EVALUATING COMMUNITY ENGAGEMENT IN RESEARCH: QUANTITATIVE MEASURE DEVELOPMENT.

Authors:  Melody S Goodman; Vetta L Sanders Thompson; Cassandra Arroyo Johnson; Renee Gennarelli; Bettina F Drake; Pravleen Bajwa; Maranda Witherspoon; Deborah Bowen
Journal:  J Community Psychol       Date:  2016-12-13

2.  Advancing suicide prevention research with rural American Indian and Alaska Native populations.

Authors:  Lisa Wexler; Michael Chandler; Joseph P Gone; Mary Cwik; Laurence J Kirmayer; Teresa LaFromboise; Teresa Brockie; Victoria O'Keefe; John Walkup; James Allen
Journal:  Am J Public Health       Date:  2015-03-19       Impact factor: 9.308

Review 3.  International Society of Psychiatric Genetics Ethics Committee: Issues facing us.

Authors:  Gabriel Lázaro-Muñoz; Maya Sabatello; Laura Huckins; Holly Peay; Franziska Degenhardt; Bettina Meiser; Todd Lencz; Takahiro Soda; Anna Docherty; David Crepaz-Keay; Jehannine Austin; Roseann E Peterson; Lea K Davis
Journal:  Am J Med Genet B Neuropsychiatr Genet       Date:  2019-05-23       Impact factor: 3.568

4.  Perspective on the "African American participation in Alzheimer disease research: Effective strategies" workshop, 2018.

Authors:  Andrea Denny; Marissa Streitz; Kristin Stock; Joyce E Balls-Berry; Lisa L Barnes; Goldie S Byrd; Raina Croff; Sujuan Gao; Crystal M Glover; Hugh C Hendrie; William T Hu; Jennifer J Manly; Krista L Moulder; Susan Stark; Stephen B Thomas; Rachel Whitmer; Roger Wong; John C Morris; Jennifer H Lingler
Journal:  Alzheimers Dement       Date:  2020-08-17       Impact factor: 21.566

5.  African American women's perceptions and attitudes regarding participation in medical research: the Mayo Clinic/The Links, Incorporated partnership.

Authors:  LaPrincess C Brewer; Sharonne N Hayes; Monica W Parker; Joyce E Balls-Berry; Michele Y Halyard; Vivian W Pinn; Carmen Radecki Breitkopf
Journal:  J Womens Health (Larchmt)       Date:  2014-07-21       Impact factor: 2.681

Review 6.  African Americans in Standard Behavioral Treatment for Obesity, 2001-2015: What Have We Learned?

Authors:  Rachel W Goode; Mindi A Styn; Dara D Mendez; Tiffany L Gary-Webb
Journal:  West J Nurs Res       Date:  2017-02-01       Impact factor: 1.967

7.  Involving Community Health Workers in the Centers for Population Health and Health Disparities Research Projects: Benefits and Challenges.

Authors:  Jessica L Krok-Schoen; Rory C Weier; Sarah D Hohl; Beti Thompson; Electra D Paskett
Journal:  J Health Care Poor Underserved       Date:  2016

8.  The Health Equity Leadership Institute (HELI): Developing workforce capacity for health disparities research.

Authors:  James Butler; Craig S Fryer; Earlise Ward; Katelyn Westaby; Alexandra Adams; Sarah L Esmond; Mary A Garza; Janice A Hogle; Linda M Scholl; Sandra C Quinn; Stephen B Thomas; Christine A Sorkness
Journal:  J Clin Transl Sci       Date:  2017-06-19

9.  Setting and motivation in the decision to participate: An approach to the engagement of diverse samples in mobile research.

Authors:  Susan Racine Passmore; Erica Casper; Jeffery E Olgin; Carol Maguire; Gregory M Marcus; Mark J Pletcher; Stephen B Thomas
Journal:  Contemp Clin Trials Commun       Date:  2019-08-10

10.  "Not just dogs, but rabid dogs": tensions and conflicts amongst research volunteers in Malawi.

Authors:  Mackwellings Phiri; Kate Gooding; Deborah Nyirenda; Rodrick Sambakunsi; Moses Kelly Kumwenda; Nicola Desmond
Journal:  Glob Bioeth       Date:  2018-09-03
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