Literature DB >> 33034414

Perspective on the "African American participation in Alzheimer disease research: Effective strategies" workshop, 2018.

Andrea Denny1, Marissa Streitz1, Kristin Stock2, Joyce E Balls-Berry1, Lisa L Barnes3, Goldie S Byrd4, Raina Croff5, Sujuan Gao6, Crystal M Glover3, Hugh C Hendrie7, William T Hu8, Jennifer J Manly9, Krista L Moulder1, Susan Stark10, Stephen B Thomas11, Rachel Whitmer12, Roger Wong13, John C Morris14, Jennifer H Lingler15.   

Abstract

The Washington University School of Medicine Knight Alzheimer Disease Research Center's "African American Participation in Alzheimer Disease Research: Effective Strategies" Workshop convened to address a major limitation of the ongoing scientific progress regarding Alzheimer's disease and related dementias (ADRD): participants in most ADRD research programs overwhelmingly have been limited to non-Hispanic white persons, thus precluding knowledge as to how ADRD may be represented in non-white individuals. Factors that may contribute to successful recruitment and retention of African Americans into ADRD research were discussed and organized into actionable next steps as described within this report.
© 2020 the Alzheimer's Association.

Entities:  

Keywords:  African American; Alzheimer disease; disparities; racial differences; recruitment; recruitment strategies

Year:  2020        PMID： 33034414      PMCID： PMC7887120          DOI： 10.1002/alz.12160

Source DB:  PubMed          Journal:  Alzheimers Dement        ISSN： 1552-5260            Impact factor:   21.566


  57 in total

1.  Recruitment and retention of minority participants in the health and retirement study.

Authors:  Mary B Ofstedal; David R Weir
Journal:  Gerontologist       Date:  2011-06

Review 2.  Issues and recommendations for the recruitment and retention of older ethnic minority adults into clinical research.

Authors:  P A Areán; D Gallagher-Thompson
Journal:  J Consult Clin Psychol       Date:  1996-10

3.  The National Institute on Minority Health and Health Disparities Research Framework.

Authors:  Jennifer Alvidrez; Dorothy Castille; Maryline Laude-Sharp; Adelaida Rosario; Derrick Tabor
Journal:  Am J Public Health       Date:  2019-01       Impact factor: 9.308

4.  Perceptions, knowledge, incentives, and barriers of brain donation among African American elders enrolled in an Alzheimer's research program.

Authors:  Susan Lambe; Nicole Cantwell; Fareesa Islam; Kathy Horvath; Angela L Jefferson
Journal:  Gerontologist       Date:  2010-08-02

5.  Association Between Birth in a High Stroke Mortality State, Race, and Risk of Dementia.

Authors:  Paola Gilsanz; Elizabeth Rose Mayeda; M Maria Glymour; Charles P Quesenberry; Rachel A Whitmer
Journal:  JAMA Neurol       Date:  2017-09-01       Impact factor: 18.302

6.  State School Policies as Predictors of Physical and Mental Health: A Natural Experiment in the REGARDS Cohort.

Authors:  Willa D Brenowitz; Jennifer J Manly; Audrey R Murchland; Thu T Nguyen; Sze Y Liu; M Maria Glymour; Deborah A Levine; Michael Crowe; Timothy J Hohman; Carole Dufouil; Lenore J Launer; Trey Hedden; Chloe W Eng; Virginia G Wadley; Virginia J Howard
Journal:  Am J Epidemiol       Date:  2020-05-05       Impact factor: 4.897

7.  The APOE-epsilon4 allele and the risk of Alzheimer disease among African Americans, whites, and Hispanics.

Authors:  M X Tang; Y Stern; K Marder; K Bell; B Gurland; R Lantigua; H Andrews; L Feng; B Tycko; R Mayeux
Journal:  JAMA       Date:  1998-03-11       Impact factor: 56.272

8.  Incidence of dementia and Alzheimer disease in 2 communities: Yoruba residing in Ibadan, Nigeria, and African Americans residing in Indianapolis, Indiana.

Authors:  H C Hendrie; A Ogunniyi; K S Hall; O Baiyewu; F W Unverzagt; O Gureje; S Gao; R M Evans; A O Ogunseyinde; A O Adeyinka; B Musick; S L Hui
Journal:  JAMA       Date:  2001-02-14       Impact factor: 56.272

9.  A novel intervention using interactive technology and personal narratives to reduce cancer disparities: African American breast cancer survivor stories.

Authors:  Maria Pérez; Julianne A Sefko; Deb Ksiazek; Balaji Golla; Chris Casey; Julie A Margenthaler; Graham Colditz; Matthew W Kreuter; Donna B Jeffe
Journal:  J Cancer Surviv       Date:  2013-09-13       Impact factor: 4.442

10.  Historical Differences in School Term Length and Measured Blood Pressure: Contributions to Persistent Racial Disparities among US-Born Adults.

Authors:  Sze Yan Liu; Jennifer J Manly; Benjamin D Capistrant; M Maria Glymour
Journal:  PLoS One       Date:  2015-06-15       Impact factor: 3.240
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  10 in total

1.  Together We Make the Difference: National Strategy for Recruitment and Participation in Alzheimer's and Related Dementias Clinical Research.

Authors:  Cerise L Elliott
Journal:  Ethn Dis       Date:  2020-11-19       Impact factor: 1.847

2.  Testing an Alzheimer's Disease Educational Approach in Two African American Neighborhoods in Florida.

Authors:  Caroline D Bergeron; Maisha T Robinson; Floyd B Willis; Monica L Albertie; Jolita D Wainwright; Michelle R Fudge; Francine C Parfitt; Julia E Crook; Colleen T Ball; John A Lucas
Journal:  J Racial Ethn Health Disparities       Date:  2021-10-13

3.  Development of a Comprehensive Battery to Collect Social and Structural Determinants of Health (SSDOH) in Cognitively Normal or Very Mildly Impaired Persons.

Authors:  Marissa L Streitz; Andrea Denny; Chengjie Xiong; Lena McCue; Shana D Stites; Sharnita Midgett; Dawn Mechanic-Hamilton; Krista L Moulder; John C Morris; Joyce Balls-Berry
Journal:  Alzheimer Dis Assoc Disord       Date:  2022-04-06       Impact factor: 2.357

4.  Traversing the Aging Research and Health Equity Divide: Toward Intersectional Frameworks of Research Justice and Participation.

Authors:  Andrea Gilmore-Bykovskyi; Raina Croff; Crystal M Glover; Jonathan D Jackson; Jason Resendez; Adriana Perez; Megan Zuelsdorff; Gina Green-Harris; Jennifer J Manly
Journal:  Gerontologist       Date:  2022-05-26

5.  What Influences the Willingness of Blacks and African Americans to Enroll in Preclinical Alzheimer's Disease Biomarker Research? A Qualitative Vignette Analysis.

Authors:  Fred B Ketchum; Claire M Erickson; Nathaniel A Chin; Carey E Gleason; Nickolas H Lambrou; Susan Flowers Benton; Lindsay R Clark
Journal:  J Alzheimers Dis       Date:  2022       Impact factor: 4.160

6.  Addressing Challenges in Recruiting Diverse Populations for Research: Practical Experience From a P20 Center.

Authors:  Fay Wright; Susan Kohl Malone; Agnes Wong; Gail D'Eramo Melkus; Victoria Vaughan Dickson
Journal:  Nurs Res       Date:  2022-01-24       Impact factor: 2.364

7.  Challenges and opportunities in conducting research with older adults with dementia during COVID-19 and beyond.

Authors:  Rashmi K Sharma; Andrew Teng; Mary Grace Asirot; Jean O Taylor; Soo Borson; Anne M Turner
Journal:  J Am Geriatr Soc       Date:  2022-03-21       Impact factor: 7.538

8.  Predictors of Willingness to Enroll in Hypothetical Alzheimer Disease Biomarker Studies that Disclose Personal Results.

Authors:  Claire M Erickson; Nathaniel A Chin; Frederick B Ketchum; Erin M Jonaitis; Megan L Zuelsdorff; Carey E Gleason; Lindsay R Clark
Journal:  Alzheimer Dis Assoc Disord       Date:  2022-02-04       Impact factor: 2.357

9.  Implications of preclinical Alzheimer's disease biomarker disclosure for US policy and society.

Authors:  Claire M Erickson; Lindsay R Clark; Fred B Ketchum; Nathaniel A Chin; Carey E Gleason; Emily A Largent
Journal:  Alzheimers Dement (Amst)       Date:  2022-08-25

Review 10.  Alzheimer disease in African American individuals: increased incidence or not enough data?

Authors:  Lisa L Barnes
Journal:  Nat Rev Neurol       Date:  2021-12-06       Impact factor: 44.711
  10 in total

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