Literature DB >> 24091717

Performance of the Family Satisfaction with the End-of-Life Care (FAMCARE) measure in an ethnically diverse cohort: psychometric analyses using item response theory.

Jeanne A Teresi1, Katherine Ornstein, Katja Ocepek-Welikson, Mildred Ramirez, Albert Siu.   

Abstract

OBJECTIVE: The Family Satisfaction with End-of-Life Care (FAMCARE) has been used widely among caregivers to individuals with cancer. The aim of this study was to evaluate the psychometric properties of this measure using item response theory (IRT).
METHODS: The analytic sample was comprised of caregivers to 1,983 patients with advanced cancer. Among the patients, 56 % were females, with mean age 59.9 years (s.d. = 11.8), 20 % were non-Hispanic Black. The majority were family members either living with (44 %) or not living with (35 %) the patient. Factor analyses and IRT were used to examine the dimensionality, information, and reliability of the FAMCARE.
RESULTS: Although a bi-factor model fit the data slightly better than did a unidimensional model, the loadings on the group factors were very low. Thus, a unidimensional model appears to provide adequate representation for the item set. The reliability estimates, calculated along the satisfaction (theta) continuum, were adequate (>0.80) for all levels of theta for which subjects had scores. Examination of the category response functions from IRT showed overlap in the lower categories with little unique information provided; moreover, the categories were not observed to be interval. Based on these analyses, a three-response category format was recommended: very satisfied, satisfied, and not satisfied. Most information was provided in the range indicative of either dissatisfaction or high satisfaction.
CONCLUSIONS: These analyses support the use of fewer response categories and provide item parameters that form a basis for developing shorter-form scales. Such a revision has the potential to reduce respondent burden.

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Year:  2013        PMID: 24091717      PMCID: PMC4151612          DOI: 10.1007/s00520-013-1988-z

Source DB:  PubMed          Journal:  Support Care Cancer        ISSN: 0941-4355            Impact factor:   3.603


  27 in total

Review 1.  A systematic review of instruments related to family caregivers of palliative care patients.

Authors:  Peter L Hudson; Tom Trauer; Suzanne Graham; Gunn Grande; Gail Ewing; Sheila Payne; Kelli I Stajduhar; Kristina Thomas
Journal:  Palliat Med       Date:  2010-07-06       Impact factor: 4.762

2.  Psychometric evaluation and calibration of health-related quality of life item banks: plans for the Patient-Reported Outcomes Measurement Information System (PROMIS).

Authors:  Bryce B Reeve; Ron D Hays; Jakob B Bjorner; Karon F Cook; Paul K Crane; Jeanne A Teresi; David Thissen; Dennis A Revicki; David J Weiss; Ronald K Hambleton; Honghu Liu; Richard Gershon; Steven P Reise; Jin-shei Lai; David Cella
Journal:  Med Care       Date:  2007-05       Impact factor: 2.983

3.  Caregiver satisfaction with out-patient oncology services: utility of the FAMCARE instrument and development of the FAMCARE-6.

Authors:  Gregory Leigh Carter; Terry J Lewin; Louisa Gianacas; Kerrie Clover; Catherine Adams
Journal:  Support Care Cancer       Date:  2010-03-28       Impact factor: 3.603

Review 4.  Relatives in end-of-life care--part 1: a systematic review of the literature the five last years, January 1999-February 2004.

Authors:  Birgitta Andershed
Journal:  J Clin Nurs       Date:  2006-09       Impact factor: 3.036

5.  Modern psychometric methods for detection of differential item functioning: application to cognitive assessment measures.

Authors:  J A Teresi; M Kleinman; K Ocepek-Welikson
Journal:  Stat Med       Date:  2000 Jun 15-30       Impact factor: 2.373

6.  The relatives' perspective on advanced cancer care in Denmark. A cross-sectional survey.

Authors:  Anna T Johnsen; Lone Ross; Morten A Petersen; Line Lund; Mogens Groenvold
Journal:  Support Care Cancer       Date:  2012-04-15       Impact factor: 3.603

7.  The FAMCARE-Patient scale: measuring satisfaction with care of outpatients with advanced cancer.

Authors:  Christopher Lo; Debika Burman; Sarah Hales; Nadia Swami; Gary Rodin; Camilla Zimmermann
Journal:  Eur J Cancer       Date:  2009-09-26       Impact factor: 9.162

8.  Family caregiver burden: results of a longitudinal study of breast cancer patients and their principal caregivers.

Authors:  Eva Grunfeld; Doug Coyle; Timothy Whelan; Jennifer Clinch; Leonard Reyno; Craig C Earle; Andrew Willan; Raymond Viola; Marjorie Coristine; Teresa Janz; Robert Glossop
Journal:  CMAJ       Date:  2004-06-08       Impact factor: 8.262

9.  Measuring quality of palliative care: psychometric properties of the FAMCARE Scale.

Authors:  Gerd Inger Ringdal; Marit S Jordhøy; Stein Kaasa
Journal:  Qual Life Res       Date:  2003-03       Impact factor: 4.147

10.  On the Use, the Misuse, and the Very Limited Usefulness of Cronbach's Alpha.

Authors:  Klaas Sijtsma
Journal:  Psychometrika       Date:  2008-12-11       Impact factor: 2.500

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  7 in total

1.  Psychometric Properties of a Spanish-Language Version of a Short-Form FAMCARE: Applications to Caregivers of Patients With Alzheimer's Disease and Related Dementias.

Authors:  Jeanne A Teresi; Katja Ocepek-Welikson; Mildred Ramirez; Katherine A Ornstein; Suzanne Bakken; Albert Siu; José A Luchsinger
Journal:  J Fam Nurs       Date:  2019-08-17       Impact factor: 3.818

2.  The Use of a Brief 5-Item Measure of Family Satisfaction as a Critical Quality Indicator in Advanced Cancer Care: A Multisite Comparison.

Authors:  Katherine A Ornstein; Joan Penrod; Julie B Schnur; Cardinale B Smith; Jeanne A Teresi; Melissa M Garrido; Karen McKendrick; Albert L Siu; Diane E Meier; R Sean Morrison
Journal:  J Palliat Med       Date:  2017-02-10       Impact factor: 2.947

3.  Use of an Item Bank to Develop Two Short-Form FAMCARE Scales to Measure Family Satisfaction With Care in the Setting of Serious Illness.

Authors:  Katherine A Ornstein; Jeanne A Teresi; Katja Ocepek-Welikson; Mildred Ramirez; Diane E Meier; R Sean Morrison; Albert L Siu
Journal:  J Pain Symptom Manage       Date:  2014-12-27       Impact factor: 3.612

4.  Evaluation of measurement equivalence of the Family Satisfaction with the End-of-Life Care in an ethnically diverse cohort: tests of differential item functioning.

Authors:  Jeanne A Teresi; Katja Ocepek-Welikson; Mildred Ramirez; Marjorie Kleinman; Katherine Ornstein; Albert Siu
Journal:  Palliat Med       Date:  2014-08-26       Impact factor: 4.762

5.  Evaluation of measurement equivalence of the Family Satisfaction with the End-of-Life Care (FAMCARE): Tests of differential item functioning between Hispanic and non-Hispanic White caregivers.

Authors:  Jeanne A Teresi; Katja Ocepek-Welikson; Mildred Ramirez; Marjorie Kleinman; Katherine Ornstein; Albert Siu; Jose Luchsinger
Journal:  Palliat Support Care       Date:  2020-10

6.  Patient-physician discordance in goals of care for patients with advanced cancer.

Authors:  S L Douglas; B J Daly; N J Meropol; A R Lipson
Journal:  Curr Oncol       Date:  2019-12-01       Impact factor: 3.677

Review 7.  Hospital-Based Palliative Care: Quality Metrics That Matter.

Authors:  Rhonda Gradwohl; Jeannine M Brant
Journal:  J Adv Pract Oncol       Date:  2015-11-01
  7 in total

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