| Literature DB >> 31423925 |
Jeanne A Teresi1,2,3,4, Katja Ocepek-Welikson1, Mildred Ramirez1,4, Katherine A Ornstein5, Suzanne Bakken6, Albert Siu5,7, José A Luchsinger8.
Abstract
Although family satisfaction is recognized as a critical indicator of quality care for persons with serious illness, Spanish-language measures are limited. The study aims were to develop a Spanish translation of the short-form Family Satisfaction With End-of-Life Care (FAMCARE), investigate its psychometric properties in Hispanic caregivers to patients with Alzheimer's disease and related dementias (ADRD; N = 317; 209 interviewed in Spanish), and add parameters to an existing item bank. Based on factor analyses, the measure was found to be essentially unidimensional. Reliabilities from a graded item response theory model were high; the average estimate was 0.93 for the total and Spanish-language subsample. Discrimination parameters were high, and the model fit adequate. This is the first study to examine the performance of the short-form FAMCARE measure among Hispanics and caregivers to patients with ADRD. The short-form measure can be recommended for Hispanics and caregivers to patients with ADRD.Entities:
Keywords: Alzheimer’s disease; FAMCARE; Spanish language; caregivers; confirmatory factor analyses; item bank; item response theory; palliative care
Mesh:
Year: 2019 PMID: 31423925 PMCID: PMC6891123 DOI: 10.1177/1074840719867345
Source DB: PubMed Journal: J Fam Nurs ISSN: 1074-8407 Impact factor: 3.818