Katherine A Ornstein1, Jeanne A Teresi2, Katja Ocepek-Welikson3, Mildred Ramirez4, Diane E Meier5, R Sean Morrison5, Albert L Siu5. 1. Department of Geriatrics and Palliative Medicine, Icahn School of Medicine at Mount Sinai, New York, New York, USA; Institute for Translational Epidemiology, Icahn School of Medicine at Mount Sinai, New York, New York, USA. Electronic address: Katherine.ornstein@mssm.edu. 2. Research Division, Hebrew Home at Riverdale, New York, New York, USA; Measurement and Data Management Core, Mount Sinai Medical Center, New York, New York, USA; Columbia University Stroud Center, New York State Psychiatric Institute, New York, New York, USA. 3. Research Division, Hebrew Home at Riverdale, New York, New York, USA. 4. Research Division, Hebrew Home at Riverdale, New York, New York, USA; Measurement and Data Management Core, Mount Sinai Medical Center, New York, New York, USA; Division of Geriatrics and Palliative Care, Weill Cornell Medical Center, New York, New York, USA. 5. Department of Geriatrics and Palliative Medicine, Icahn School of Medicine at Mount Sinai, New York, New York, USA.
Abstract
CONTEXT: Family satisfaction is an important and commonly used research measure. Yet current measures of family satisfaction are lengthy and may be unnecessarily burdensome--particularly in the setting of serious illness. OBJECTIVES: To use an item bank to develop short forms of the Family Satisfaction with End-of-Life Care (FAMCARE) scale, which measures family satisfaction with care. METHODS: To shorten the existing 20-item FAMCARE measure, item response theory parameters from an item bank were used to select the most informative items. The psychometric properties of the new short-form scales were examined. The item bank was based on data from family members from an ethnically diverse sample of 1983 patients with advanced cancer. RESULTS: Evidence for the new short-form scales supported essential unidimensionality. Reliability estimates from several methods were relatively high, ranging from 0.84 for the five-item scale to 0.94 for the 10-item scale across different age, gender, education, ethnic, and relationship groups. CONCLUSION: The FAMCARE-10 and FAMCARE-5 short-form scales evidenced high reliability across sociodemographic subgroups and are potentially less burdensome and time-consuming scales for monitoring family satisfaction among seriously ill patients.
CONTEXT: Family satisfaction is an important and commonly used research measure. Yet current measures of family satisfaction are lengthy and may be unnecessarily burdensome--particularly in the setting of serious illness. OBJECTIVES: To use an item bank to develop short forms of the Family Satisfaction with End-of-Life Care (FAMCARE) scale, which measures family satisfaction with care. METHODS: To shorten the existing 20-item FAMCARE measure, item response theory parameters from an item bank were used to select the most informative items. The psychometric properties of the new short-form scales were examined. The item bank was based on data from family members from an ethnically diverse sample of 1983 patients with advanced cancer. RESULTS: Evidence for the new short-form scales supported essential unidimensionality. Reliability estimates from several methods were relatively high, ranging from 0.84 for the five-item scale to 0.94 for the 10-item scale across different age, gender, education, ethnic, and relationship groups. CONCLUSION: The FAMCARE-10 and FAMCARE-5 short-form scales evidenced high reliability across sociodemographic subgroups and are potentially less burdensome and time-consuming scales for monitoring family satisfaction among seriously ill patients.
Authors: Peter L Hudson; Tom Trauer; Suzanne Graham; Gunn Grande; Gail Ewing; Sheila Payne; Kelli I Stajduhar; Kristina Thomas Journal: Palliat Med Date: 2010-07-06 Impact factor: 4.762
Authors: Eva Grunfeld; Doug Coyle; Timothy Whelan; Jennifer Clinch; Leonard Reyno; Craig C Earle; Andrew Willan; Raymond Viola; Marjorie Coristine; Teresa Janz; Robert Glossop Journal: CMAJ Date: 2004-06-08 Impact factor: 8.262
Authors: Katherine A Ornstein; Joan Penrod; Julie B Schnur; Cardinale B Smith; Jeanne A Teresi; Melissa M Garrido; Karen McKendrick; Albert L Siu; Diane E Meier; R Sean Morrison Journal: J Palliat Med Date: 2017-02-10 Impact factor: 2.947
Authors: Jeanne A Teresi; Katja Ocepek-Welikson; Mildred Ramirez; Marjorie Kleinman; Katherine Ornstein; Albert Siu; Jose Luchsinger Journal: Palliat Support Care Date: 2020-10