Literature DB >> 23917281

Mandatory extended searches in all genome sequencing: "incidental findings," patient autonomy, and shared decision making.

Lainie Friedman Ross1, Mark A Rothstein, Ellen Wright Clayton.   

Abstract

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Year:  2013        PMID： 23917281     DOI： 10.1001/jama.2013.41700

Source DB:  PubMed          Journal:  JAMA        ISSN： 0098-7484            Impact factor:   56.272


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  52 in total

1.  Practical guidance on informed consent for pediatric participants in a biorepository.

Authors:  Kyle B Brothers; John A Lynch; Sharon A Aufox; John J Connolly; Bruce D Gelb; Ingrid A Holm; Saskia C Sanderson; Jennifer B McCormick; Janet L Williams; Wendy A Wolf; Armand H M Antommaria; Ellen W Clayton
Journal:  Mayo Clin Proc       Date:  2014-09-26       Impact factor: 7.616

2.  Compare and contrast: a cross-national study across UK, USA and Greek experts regarding return of incidental findings from clinical sequencing.

Authors:  Elli G Gourna; Natalie Armstrong; Susan E Wallace
Journal:  Eur J Hum Genet       Date:  2015-06-10       Impact factor: 4.246

3.  A primer in genomics for social and behavioral investigators.

Authors:  Erin Turbitt; Barbara B Biesecker
Journal:  Transl Behav Med       Date:  2020-05-20       Impact factor: 3.046

4.  Incidental or secondary findings: an integrative and patient-inclusive approach to the current debate.

Authors:  Marlies Saelaert; Heidi Mertes; Elfride De Baere; Ignaas Devisch
Journal:  Eur J Hum Genet       Date:  2018-07-03       Impact factor: 4.246

5.  The fiduciary relationship model for managing clinical genomic "incidental" findings.

Authors:  Gabriel Lázaro-Muñoz
Journal:  J Law Med Ethics       Date:  2014       Impact factor: 1.718

6.  Canadian Research Ethics Board Leadership Attitudes to the Return of Genetic Research Results to Individuals and Their Families.

Authors:  Conrad V Fernandez; P Pearl O'Rourke; Laura M Beskow
Journal:  J Law Med Ethics       Date:  2015       Impact factor: 1.718

7.  Attitudes of non-African American focus group participants toward return of results from exome and whole genome sequencing.

Authors:  Joon-Ho Yu; Julia Crouch; Seema M Jamal; Michael J Bamshad; Holly K Tabor
Journal:  Am J Med Genet A       Date:  2014-05-20       Impact factor: 2.802

8.  Return of genomic results to research participants: the floor, the ceiling, and the choices in between.

Authors:  Gail P Jarvik; Laura M Amendola; Jonathan S Berg; Kyle Brothers; Ellen W Clayton; Wendy Chung; Barbara J Evans; James P Evans; Stephanie M Fullerton; Carlos J Gallego; Nanibaa' A Garrison; Stacy W Gray; Ingrid A Holm; Iftikhar J Kullo; Lisa Soleymani Lehmann; Cathy McCarty; Cynthia A Prows; Heidi L Rehm; Richard R Sharp; Joseph Salama; Saskia Sanderson; Sara L Van Driest; Marc S Williams; Susan M Wolf; Wendy A Wolf; Wylie Burke
Journal:  Am J Hum Genet       Date:  2014-05-08       Impact factor: 11.025

9.  Researchers' Perspectives on Informed Consent and Ethical Review of Biobank Research in South Africa: A Cross-Sectional Study.

Authors:  Erisa Mwaka; Lyn Horn
Journal:  J Empir Res Hum Res Ethics       Date:  2019-08-05       Impact factor: 1.742

Review 10.  Genome-Wide Sequencing for Prenatal Detection of Fetal Single-Gene Disorders.

Authors:  Ignatia B van den Veyver; Christine M Eng
Journal:  Cold Spring Harb Perspect Med       Date:  2015-08-07       Impact factor: 6.915
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