Literature DB >> 23607974

Parents, adolescents, and consent for research participation.

Ana S Iltis1.   

Abstract

Decisions concerning children in the health care setting have engendered significant controversy and sparked ethics policies and statements, legal action, and guidelines regarding who ought to make decisions involving children and how such decisions ought to be made. Traditionally, parents have been the default decision-makers for children not only with regard to health care but with regard to other matters, such as religious practice and education. In recent decades, there has been a steady trend away from the view that parents are in authority over their children and toward the view that children are rights-bearers who should be granted greater authority over themselves. The mature minor doctrine refers to the decision to grant mature minors the authority to make decisions traditionally reserved for their parents. This essay (1) documents the trend towards expanding the understanding of some minors as "mature" and hence as having the right and authority to give informed consent, (2) examines the reasons for which some commentators have a special interest in expanding the mature minor doctrine to the research setting and allowing minors to enroll in research without parental permission, and (3) defends the view that the mature minor doctrine, regardless of its application to clinical health care decisions, ought to be set aside in the research setting in favor of greater parental involvement.

Entities:  

Keywords:  adolescents; decision-making; decisional capacity; informed consent; mature minor; parents

Mesh:

Year:  2013        PMID: 23607974     DOI: 10.1093/jmp/jht012

Source DB:  PubMed          Journal:  J Med Philos        ISSN: 0360-5310


  7 in total

1.  Legal Barriers to Adolescent Participation in Research About HIV and Other Sexually Transmitted Infections.

Authors:  Quianta L Moore; Mary E Paul; Amy L McGuire; Mary A Majumder
Journal:  Am J Public Health       Date:  2015-11-12       Impact factor: 9.308

2.  Management of Adolescent-Parent Dyads' Discordance for Willingness to Participate in a Reproductive Health Clinical Trial.

Authors:  Jenny K R Francis; Lauren Dapena Fraiz; Ariel M de Roche; Marina Catallozzi; Carmen Radecki Breitkopf; Susan L Rosenthal
Journal:  J Empir Res Hum Res Ethics       Date:  2017-12-10       Impact factor: 1.742

Review 3.  Ethics of pharmacological research involving adolescents.

Authors:  Eva Welisch; Luis A Altamirano-Diaz
Journal:  Paediatr Drugs       Date:  2015-02       Impact factor: 3.022

4.  Validity of a three-item dating abuse victimization screening tool in a 11-21 year old sample.

Authors:  Emily F Rothman; Julia K Campbell; Ariel M Hoch; Megan Bair-Merritt; Carlos A Cuevas; Bruce Taylor; Elizabeth A Mumford
Journal:  BMC Pediatr       Date:  2022-06-10       Impact factor: 2.567

5.  Adolescent-Parent Dyadic Retention in an Interview Study and Changes in Willingness to Participate in a Hypothetical Microbicide Safety Study.

Authors:  Jenny K R Francis; Ariel M de Roche; Christine Mauro; Sara E Landers; Jane Chang; Marina Catallozzi; Carmen Radecki Breitkopf; Susan L Rosenthal
Journal:  J Pediatr Adolesc Gynecol       Date:  2018-06-12       Impact factor: 1.814

6.  Participation of Children in Medical Decision-Making: Challenges and Potential Solutions.

Authors:  Vida Jeremic; Karine Sénécal; Pascal Borry; Davit Chokoshvili; Danya F Vears
Journal:  J Bioeth Inq       Date:  2016-09-21       Impact factor: 1.352

7.  Physicians' Attitudes Toward Adolescent Confidentiality Services: Scale Development and Validation.

Authors:  Vida Jeremić Stojković; Smiljana Cvjetković; Bojana Matejić
Journal:  Zdr Varst       Date:  2020-04-06
  7 in total

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