Literature DB >> 26562103

Legal Barriers to Adolescent Participation in Research About HIV and Other Sexually Transmitted Infections.

Quianta L Moore1, Mary E Paul1, Amy L McGuire1, Mary A Majumder1.   

Abstract

Whether adolescents can participate in clinical trials of pharmacologic therapies for HIV prevention, such as preexposure prophylaxis, without parental permission hinges on state minor consent laws. Very few of these laws explicitly authorize adolescents to consent to preventive services for HIV and other sexually transmitted infections. Unclear state laws may lead to research cessation. We have summarized legal, ethical, and policy considerations related to adolescents' participation in HIV and sexually transmitted infection prevention research in the United States, and we have explored strategies for facilitating adolescents' access.

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Year:  2015        PMID： 26562103      PMCID： PMC4695940          DOI： 10.2105/AJPH.2015.302940

Source DB:  PubMed          Journal:  Am J Public Health        ISSN： 0090-0036            Impact factor:   9.308


  14 in total

1.  Mature minors should have the right to refuse life-sustaining medical treatment.

Authors:  M T Derish; K V Heuvel
Journal:  J Law Med Ethics       Date:  2000       Impact factor: 1.718

Review 2.  Parental consent and adolescent risk behavior research.

Authors:  Beth Baldwin Tigges
Journal:  J Nurs Scholarsh       Date:  2003       Impact factor: 3.176

3.  Research consent by adolescent minors and institutional review boards.

Authors:  K A Mammel; D W Kaplan
Journal:  J Adolesc Health       Date:  1995-11       Impact factor: 5.012

Review 4.  State adolescent consent laws and implications for HIV pre-exposure prophylaxis.

Authors:  Lindsay Culp; Lisa Caucci
Journal:  Am J Prev Med       Date:  2013-01       Impact factor: 5.043

Review 5.  The legal authority of mature minors to consent to general medical treatment.

Authors:  Doriane Lambelet Coleman; Philip M Rosoff
Journal:  Pediatrics       Date:  2013-03-25       Impact factor: 7.124

6.  The competency of children and adolescents to make informed treatment decisions.

Authors:  L A Weithorn; S B Campbell
Journal:  Child Dev       Date:  1982-12

7.  Ethical challenges of decision making with pregnant patients who have schizophrenia.

Authors:  Laurence B McCullough; John H Coverdale; Frank A Chervenak
Journal:  Am J Obstet Gynecol       Date:  2002-09       Impact factor: 8.661

8.  Preexposure prophylaxis for adolescents and young adults at risk for HIV infection: is an ounce of prevention worth a pound of cure?

Authors:  Jill E Pace; George K Siberry; Rohan Hazra; Bill G Kapogiannis
Journal:  Clin Infect Dis       Date:  2012-12-07       Impact factor: 9.079

9.  Ethical approaches to adolescent participation in sexual health research.

Authors:  Sarah Flicker; Adrian Guta
Journal:  J Adolesc Health       Date:  2007-12-03       Impact factor: 5.012

10.  Informed consent, parental permission, and assent in pediatric practice. Committee on Bioethics, American Academy of Pediatrics.

Authors: 
Journal:  Pediatrics       Date:  1995-02       Impact factor: 7.124
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  11 in total

1.  Adolescent and Parent Perceptions about Participation in Biomedical Sexual Health Trials.

Authors:  Sara E Landers; Jenny K R Francis; Marilyn C Morris; Christine Mauro; Susan L Rosenthal
Journal:  Ethics Hum Res       Date:  2020-05

2.  Surveillance studies involving HIV testing are needed: Will at-risk youth participate?

Authors:  Aaliyah Gray; Kathryn Macapagal; Brian Mustanski; Celia B Fisher
Journal:  Health Psychol       Date:  2019-09-12       Impact factor: 4.267

3.  Sexual health research among youth representing minority populations: To waive or not to waive parental consent.

Authors:  Bridgette M Brawner; Madeline Y Sutton
Journal:  Ethics Behav       Date:  2018

4.  HIV Rates Are Increasing in Gay/Bisexual Teens: IRB Barriers to Research Must Be Resolved to Bend the Curve.

Authors:  Brian Mustanski; Celia B Fisher
Journal:  Am J Prev Med       Date:  2016-04-06       Impact factor: 5.043

5.  Adolescent and Parent Willingness to Participate in Microbicide Safety Studies.

Authors:  Marina Catallozzi; Ariel M de Roche; Mei-Chen Hu; Carmen Radecki Breitkopf; Jane Chang; Lisa S Ipp; Jenny K R Francis; Susan L Rosenthal
Journal:  J Pediatr Adolesc Gynecol       Date:  2016-07-02       Impact factor: 1.814

6.  Adolescents' and Parents' Attitudes Toward Adolescent Clinical Trial Participation: Changes Over One Year.

Authors:  Rebecca K Tsevat; Carmen Radecki Breitkopf; Sara E Landers; Ariel M de Roche; Christine Mauro; Lisa S Ipp; Marina Catallozzi; Susan L Rosenthal
Journal:  J Empir Res Hum Res Ethics       Date:  2018-08-13       Impact factor: 1.742

7.  Competence to Consent to Oral and Injectable PrEP Trials Among Adolescent Males Who Have Sex with Males.

Authors:  Celia B Fisher; Leah Ibrahim Puri; Kathryn Macapagal; Leah Feuerstahler; Jungwon Rachael Ahn; Brian Mustanski
Journal:  AIDS Behav       Date:  2020-11-27

8.  Preventing HIV among adolescents with oral PrEP: observations and challenges in the United States and South Africa.

Authors:  Sybil Hosek; Connie Celum; Craig M Wilson; Bill Kapogiannis; Sinead Delany-Moretlwe; Linda-Gail Bekker
Journal:  J Int AIDS Soc       Date:  2016-10-18       Impact factor: 5.396

Review 9.  Getting youth PrEPared: adolescent consent laws and implications for the availability of PrEP among youth in countries outside of the United States.

Authors:  Tamara Taggart; Keosha T Bond; Tiarney D Ritchwood; Justin C Smith
Journal:  J Int AIDS Soc       Date:  2019-07       Impact factor: 5.396

10.  A retrospective study of HIV pre-exposure prophylaxis counselling among non-Hispanic Black youth diagnosed with bacterial sexually transmitted infections in the United States, 2014-2019.

Authors:  Dovie L Watson; Pamela A Shaw; Danielle T Petsis; Julia Pickel; José A Bauermeister; Ian Frank; Sarah M Wood; Robert Gross
Journal:  J Int AIDS Soc       Date:  2022-02       Impact factor: 5.396
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