Jenny K R Francis1, Ariel M de Roche2, Christine Mauro3, Sara E Landers2, Jane Chang4, Marina Catallozzi5, Carmen Radecki Breitkopf6, Susan L Rosenthal7. 1. Department of Pediatrics, Columbia University Medical Center, Vagelos College of Physicians and Surgeons, New York, New York; NewYork-Presbyterian Hospital, New York, New York. Electronic address: jenny.francis@utsouthwestern.edu. 2. Department of Pediatrics, Columbia University Medical Center, Vagelos College of Physicians and Surgeons, New York, New York. 3. Department of Biostatistics, Columbia University Medical Center, Mailman School of Public Health, New York, New York. 4. Department of Pediatrics, Weill Cornell Medical College, New York, New York. 5. Department of Pediatrics, Columbia University Medical Center, Vagelos College of Physicians and Surgeons, New York, New York; NewYork-Presbyterian Hospital, New York, New York; Heilbrunn Department of Population & Family Health, Columbia University Medical Center, Mailman School of Public Health, New York, New York. 6. Department of Health Sciences Research, Mayo Clinic, Rochester, Minnesota. 7. Department of Pediatrics, Columbia University Medical Center, Vagelos College of Physicians and Surgeons, New York, New York; NewYork-Presbyterian Hospital, New York, New York; Department of Psychiatry, Columbia University Medical Center, Vagelos College of Physicians and Surgeons, New York, New York.
Abstract
STUDY OBJECTIVE: In this study we describe adolescent and parent retention and changes in willingness to participate (WTP) in research among adolescents, parents, and adolescent-parent dyads. DESIGN AND SETTING: Adolescent-parent dyads were recruited to participate in a longitudinal study to assess research participation attitudes using simultaneous individual interviews of the adolescent and parent with a return visit 1 year later using the same interview. PARTICIPANTS: Adolescents (14-17 years old) and their parents. INTERVENTIONS: None. MAIN OUTCOME MEASURES: The relationship between participant characteristics and dyad retention was assessed. WTP was measured on a Likert scale and dichotomized (willing/unwilling) to assess changes in WTP attitudes over time for adolescents, parents, and dyads. RESULTS: Eighty-three percent of the 300 dyads were retained. Dyads in which there was successful contact with the parent before follow-up were more likely to be retained (odds ratio, 4.88; 95% confidence interval, 2.57-9.26). For adolescents at baseline, 59% were willing to participate and 55% were willing to participate at follow-up (McNemar S = 0.91; P = .34). For parents at baseline, 51% were willing to participate and 57% were willing to participate at follow-up (McNemar S = 5.12; P = .02). For dyads at baseline, 57% were concordant (in either direction) and 70% of dyads were concordant at follow-up (McNemar S = 10.56; P = .001). CONCLUSION: Over 1 year, parent contact might positively influence successful adolescent retention. Parents become more willing to let their adolescents participate over time, with dyads becoming more concordant about research participation.
STUDY OBJECTIVE: In this study we describe adolescent and parent retention and changes in willingness to participate (WTP) in research among adolescents, parents, and adolescent-parent dyads. DESIGN AND SETTING: Adolescent-parent dyads were recruited to participate in a longitudinal study to assess research participation attitudes using simultaneous individual interviews of the adolescent and parent with a return visit 1 year later using the same interview. PARTICIPANTS: Adolescents (14-17 years old) and their parents. INTERVENTIONS: None. MAIN OUTCOME MEASURES: The relationship between participant characteristics and dyad retention was assessed. WTP was measured on a Likert scale and dichotomized (willing/unwilling) to assess changes in WTP attitudes over time for adolescents, parents, and dyads. RESULTS: Eighty-three percent of the 300 dyads were retained. Dyads in which there was successful contact with the parent before follow-up were more likely to be retained (odds ratio, 4.88; 95% confidence interval, 2.57-9.26). For adolescents at baseline, 59% were willing to participate and 55% were willing to participate at follow-up (McNemar S = 0.91; P = .34). For parents at baseline, 51% were willing to participate and 57% were willing to participate at follow-up (McNemar S = 5.12; P = .02). For dyads at baseline, 57% were concordant (in either direction) and 70% of dyads were concordant at follow-up (McNemar S = 10.56; P = .001). CONCLUSION: Over 1 year, parent contact might positively influence successful adolescent retention. Parents become more willing to let their adolescents participate over time, with dyads becoming more concordant about research participation.
Authors: Janet L Brody; Robert D Annett; David G Scherer; Mandy L Perryman; Keely M W Cofrin Journal: J Adolesc Health Date: 2005-09 Impact factor: 5.012
Authors: Jenny K R Francis; Lauren Dapena Fraiz; Ariel M de Roche; Marina Catallozzi; Carmen Radecki Breitkopf; Susan L Rosenthal Journal: J Empir Res Hum Res Ethics Date: 2017-12-10 Impact factor: 1.742
Authors: Susan L Rosenthal; Ariel M de Roche; Marina Catallozzi; Carmen Radecki Breitkopf; Lisa S Ipp; Jane Chang; Jenny K R Francis; Mei-Chen Hu Journal: J Pediatr Adolesc Gynecol Date: 2016-01-25 Impact factor: 1.814
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Authors: Melissa K Miller; Lauren S Chernick; Monika K Goyal; Jennifer L Reed; Fahd A Ahmad; Erin F Hoehn; Michelle S Pickett; Kristin Stukus; Cynthia J Mollen Journal: Acad Emerg Med Date: 2019-07-26 Impact factor: 3.451
Authors: Rebecca K Tsevat; Carmen Radecki Breitkopf; Sara E Landers; Ariel M de Roche; Christine Mauro; Lisa S Ipp; Marina Catallozzi; Susan L Rosenthal Journal: J Empir Res Hum Res Ethics Date: 2018-08-13 Impact factor: 1.742