Literature DB >> 23448722

What does it mean to be genomically literate?: National Human Genome Research Institute Meeting Report.

Belen Hurle1, Toby Citrin, Jean F Jenkins, Kimberly A Kaphingst, Neil Lamb, Jo Ellen Roseman, Vence L Bonham.   

Abstract

Genomic discoveries will increasingly advance the science of medicine. Limited genomic literacy may adversely impact the public's understanding and use of the power of genetics and genomics in health care and public health. In November 2011, a meeting was held by the National Human Genome Research Institute to examine the challenge of achieving genomic literacy for the general public, from kindergarten to grade 12 to adult education. The role of the media in disseminating scientific messages and in perpetuating or reducing misconceptions was also discussed. Workshop participants agreed that genomic literacy will be achieved only through active engagement between genomics experts and the varied constituencies that comprise the public. This report summarizes the background, content, and outcomes from this meeting, including recommendations for a research agenda to inform decisions about how to advance genomic literacy in our society.

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Year:  2013        PMID: 23448722      PMCID: PMC4115323          DOI: 10.1038/gim.2013.14

Source DB:  PubMed          Journal:  Genet Med        ISSN: 1098-3600            Impact factor:   8.822


  25 in total

1.  Essays on science and society. Lessons from a science education portal.

Authors:  David Micklos; Susan Lauter; Amy Nisselle
Journal:  Science       Date:  2011-12-23       Impact factor: 47.728

2.  The family history--more important than ever.

Authors:  Alan E Guttmacher; Francis S Collins; Richard H Carmona
Journal:  N Engl J Med       Date:  2004-11-25       Impact factor: 91.245

Review 3.  How geneticists can help reporters to get their story right.

Authors:  Celeste M Condit
Journal:  Nat Rev Genet       Date:  2007-10       Impact factor: 53.242

Review 4.  Influence of race/ethnicity on genetic counseling and testing for hereditary breast and ovarian cancer.

Authors:  Andrea D Forman; Michael J Hall
Journal:  Breast J       Date:  2009 Sep-Oct       Impact factor: 2.431

5.  Genomics education for health care professionals in the 21st century.

Authors:  W Gregory Feero; Eric D Green
Journal:  JAMA       Date:  2011-09-07       Impact factor: 56.272

6.  Winner of Science Prize for Online Resources in Education. Making genetics easy to understand.

Authors:  Louisa A Stark; Kevin Pompei
Journal:  Science       Date:  2010-01-29       Impact factor: 47.728

7.  Communicating genetic and genomic information: health literacy and numeracy considerations.

Authors:  D H Lea; K A Kaphingst; D Bowen; I Lipkus; D W Hadley
Journal:  Public Health Genomics       Date:  2010-04-20       Impact factor: 2.000

8.  Public health genomics: the end of the beginning.

Authors:  Muin J Khoury
Journal:  Genet Med       Date:  2011-03       Impact factor: 8.822

9.  Consumers' use of web-based information and their decisions about multiplex genetic susceptibility testing.

Authors:  Kimberly A Kaphingst; Colleen M McBride; Christopher Wade; Sharon Hensley Alford; Lawrence C Brody; Andreas D Baxevanis
Journal:  J Med Internet Res       Date:  2010-09-29       Impact factor: 5.428

Review 10.  How effects on health equity are assessed in systematic reviews of interventions.

Authors:  Vivian Welch; Peter Tugwell; Mark Petticrew; Joanne de Montigny; Erin Ueffing; Betsy Kristjansson; Jessie McGowan; Maria Benkhalti Jandu; George A Wells; Kevin Brand; Janet Smylie
Journal:  Cochrane Database Syst Rev       Date:  2010-12-08
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  50 in total

1.  Assessing Genetic Literacy Awareness and Knowledge Gaps in the US Population: Results from the Health Information National Trends Survey.

Authors:  Melinda Krakow; Chelsea L Ratcliff; Bradford W Hesse; Alexandra J Greenberg-Worisek
Journal:  Public Health Genomics       Date:  2018-05-31       Impact factor: 2.000

2.  Genetic Counselors' Perspectives About Cell-Free DNA: Experiences, Challenges, and Expectations for Obstetricians.

Authors:  Patricia K Agatisa; Mary Beth Mercer; Marissa Coleridge; Ruth M Farrell
Journal:  J Genet Couns       Date:  2018-06-27       Impact factor: 2.537

3.  Self-reported race and ethnicity of US biobank participants compared to the US Census.

Authors:  Elizabeth Gross Cohn; Nalo Hamilton; Elaine L Larson; Janet K Williams
Journal:  J Community Genet       Date:  2017-06-16

4.  A New Era, New Strategies: Education and Communication Strategies to Manage Greater Access to Genomic Information.

Authors:  Megan A Lewis; Natasha Bonhomme; Cinnamon S Bloss
Journal:  Hastings Cent Rep       Date:  2018-07       Impact factor: 2.683

5.  Effects of racial and ethnic group and health literacy on responses to genomic risk information in a medically underserved population.

Authors:  Kimberly A Kaphingst; Jewel D Stafford; Lucy D'Agostino McGowan; Joann Seo; Christina R Lachance; Melody S Goodman
Journal:  Health Psychol       Date:  2015-02       Impact factor: 4.267

6.  Improving Genomic Literacy Among Cardiovascular Practitioners via a Flipped-Classroom Workshop at a National Meeting.

Authors:  Kiran Musunuru; Richard L Haspel
Journal:  Circ Cardiovasc Genet       Date:  2016-06

7.  Applying Mental Model Methods to Characterize Understanding of Gene-Environment Influences: The Case of Podoconiosis in Ethiopia.

Authors:  Caitlin G Allen; Colleen M McBride; Kibur Engdawork; Desta Ayode; Getnet Tadele
Journal:  Crit Public Health       Date:  2017-12-06

8.  Effective communication in the era of precision medicine: A pilot intervention with low health literacy patients to improve genetic counseling communication.

Authors:  Galen Joseph; Robin Lee; Rena J Pasick; Claudia Guerra; Dean Schillinger; Sara Rubin
Journal:  Eur J Med Genet       Date:  2018-12-13       Impact factor: 2.708

9.  "Not Tied Up Neatly with a Bow": Professionals' Challenging Cases in Informed Consent for Genomic Sequencing.

Authors:  Ashley N Tomlinson; Debra Skinner; Denise L Perry; Sarah R Scollon; Myra I Roche; Barbara A Bernhardt
Journal:  J Genet Couns       Date:  2015-04-26       Impact factor: 2.537

10.  How Are Information Seeking, Scanning, and Processing Related to Beliefs About the Roles of Genetics and Behavior in Cancer Causation?

Authors:  Erika A Waters; Courtney Wheeler; Jada G Hamilton
Journal:  J Health Commun       Date:  2016-09-23
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