Literature DB >> 23435715

Promoting public awareness and engagement in genome sciences.

Susanne B Haga1, Katie D Rosanbalm, Larry Boles, Genevieve M Tindall, Troy M Livingston, Julianne M O'Daniel.   

Abstract

Public understanding of genetic concepts and associated ethical and policy issues can enable informed deliberation and decision-making. Effective strategies for increasing public understanding involve providing forums incorporating the unique perspectives and attitudes of the public, while allowing opportunities to learn first-hand from scientists about genome research and related applications. Through a partnership between the Duke Institute for Genome Sciences & Policy (IGSP) and the Museum of Life and Science in Durham, NC, we developed and piloted a program aimed to bridge the concepts of formal (public school) and informal (community-based science museum) science learning with the experiential context of family and participatory learning. Called Genome Diner, we piloted the program with 40 genetic/genomic researchers, 76 middle school students and their parents (n = 83) from Durham, NC. Program impact was assessed via pre/post surveys for each participant group. Following participation, parents were significantly more likely to correctly interpret the implications of a genome research finding, and both students and parents indicated higher interest in research as well as higher confidence in accessing and understanding genome research. Genetic literacy of parents and students was not affected by participation in the program, likely due to the relatively high knowledge scores pre-Diner: 88.3 % and 78.5 %, respectively. The interactive format of Genome Diner provided an opportunity for students and parents to explore and discuss interests and issues about genomic research alongside genome scientists, positively influencing attitudes toward genetic research and researchers themselves. These interactions are critical for maintaining public interest and knowledge about genomic research and applications.

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Mesh:

Year:  2013        PMID: 23435715      PMCID: PMC3688701          DOI: 10.1007/s10897-013-9577-3

Source DB:  PubMed          Journal:  J Genet Couns        ISSN: 1059-7700            Impact factor:   2.537


  20 in total

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Journal:  Cancer Epidemiol Biomarkers Prev       Date:  1999-04       Impact factor: 4.254

5.  Warranted concerns, warranted outlooks: a focus group study of public understandings of genetic research.

Authors:  Benjamin R Bates; John A Lynch; Jennifer L Bevan; Celeste M Condit
Journal:  Soc Sci Med       Date:  2005-01       Impact factor: 4.634

6.  Characteristics of clinical trials registered in ClinicalTrials.gov, 2007-2010.

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7.  Attitudes and beliefs of African Americans toward participation in medical research.

Authors:  G Corbie-Smith; S B Thomas; M V Williams; S Moody-Ayers
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8.  Understanding participation by African Americans in cancer genetics research.

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Journal:  J Natl Med Assoc       Date:  2012 Jul-Aug       Impact factor: 1.798

9.  African Americans' responses to genetic explanations of lung cancer disparities and their willingness to participate in clinical genetics research.

Authors:  Della Brown White; Laura M Koehly; Adedamola Omogbehin; Colleen M McBride
Journal:  Genet Med       Date:  2010-08       Impact factor: 8.822

10.  Enhancing geneticists' perspectives of the public through community engagement.

Authors:  Julianne M O'Daniel; Katie D Rosanbalm; Larry Boles; Genevieve M Tindall; Troy M Livingston; Susanne B Haga
Journal:  Genet Med       Date:  2012-01-19       Impact factor: 8.822

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Authors:  Brittany Harding; Rylan Egan; Peter Kannu; Jennifer J MacKenzie
Journal:  J Genet Couns       Date:  2016-10-17       Impact factor: 2.537

2.  Systematic Review of Quantitative Measures of Stakeholder Engagement.

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Journal:  Clin Transl Sci       Date:  2017-05-29       Impact factor: 4.689

3.  Citizen science to further precision medicine: from vision to implementation.

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Journal:  JAMIA Open       Date:  2019-12-03

4.  Evaluating and Engaging: Using Participatory Video With Kenyan Secondary School Students to Explore Engagement With Health Research.

Authors:  Alun Davies; Chris High; Nancy Mwangome; Rebecca Hanlin; Caroline Jones
Journal:  Front Public Health       Date:  2022-03-17

5.  Initiating a network to support engagement between health researchers and schools: recommendations from an international meeting of schools engagement practitioners held in Kilifi, Kenya.

Authors:  Alun Davies; Grace Mwango; Bernard Appiah; James J Callery; Vu Duy Thanh; Nozibusiso Gumede; Robert Inglis; Shane McCracken; Kestern Mkoola; Kagisho Montjane; Alice Ochanda; Charity Shonai; Kathryn Woods-Townsend
Journal:  Wellcome Open Res       Date:  2020-07-07
  5 in total

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