Literature DB >> 28556620

Systematic Review of Quantitative Measures of Stakeholder Engagement.

D J Bowen1, T Hyams1, M Goodman2, K M West1, J Harris-Wai3, J-H Yu4.   

Abstract

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Year:  2017        PMID: 28556620      PMCID: PMC5593160          DOI: 10.1111/cts.12474

Source DB:  PubMed          Journal:  Clin Transl Sci        ISSN: 1752-8054            Impact factor:   4.689


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INTRODUCTION

Stakeholder engagement in research has received increasing attention in recent years.1, 2 The term “stakeholder engagement” refers to the process of meaningful involvement of those who are engaged in making decisions about programs.3 Engaging members of the target population is often key to improving the relevance of the issues studied, the procedures used for study, and the interpretation of outcomes of research studies, health promotion activities, and disease prevention initiatives.4, 5, 6 The utility of stakeholder engagement has been well established in the literature,7, 8, 9 but there are few examples of measurement and evaluation of the degree to which stakeholders are engaged in these activities and the impact of engagement on positive outcomes. These types of evaluations have been limited in scope, and largely focused on qualitative approaches.10, 11, 12, 13, 14 Qualitative methods cannot be easily compared across programs or institutions.15 Necessary reliability and validity information describing self‐reported levels of stakeholder engagement are also lacking, and is essential to identifying the impact of engagement on the scientific process and scientific discovery.

METHODS

We present the results of a systematic review of the existing quantitative measures of stakeholder engagement in published research and programs. We used the methods of Preferred Reporting Items for Systematic Reviews and Meta‐Analyses (PRISMA16) to review the literature on measures of stakeholder engagement.

Definition of sytakeholder engagement

We defined stakeholder engagement as the involvement of people who may be affected by a research finding or program. We included any type of stakeholder that was available in the literature, and included all settings and situations. We did not limit the search to research or intervention projects, because we reasoned that the field was relatively new, and therefore we might find good measures in multiple areas from which to draw our search. All authors contributed substantially to multiple aspects of the article: (1) the concept and design or analysis and interpretation of data, (2) the drafting or revision of the article, and (3) approval of the final version.

Search methods

We searched the peer‐reviewed literature using two electronic bibliographic databases: PubMed (web‐based) and the Web of Science (web‐based). These database searches for all years until 2013 were conducted between July and September 2014. The 2014 search was conducted in January 2016.

Phase I: Searching the literature

With assistance from a reference librarian, we generated a master list of search terms to use with both databases. The following Medical Subject Headings (MeSH) terms were selected: stakeholder engagement, community engagement, community engaged research. These terms were then entered into the two chosen databases using quotations to ensure that search terms were verbatim and separated by “OR” to ensure inclusion if any of the search terms were present. A master list of articles was created using Endnote X8 citation management software from these search results. All published reports from 1973 to 2014 were identified and retrieved.

Phase II: Abstract review

Two authors independently reviewed each title and abstract using predetermined inclusion and exclusion criteria and resolved disagreement through rereview and discussion until they reached consensus. Included articles appear in English, in a peer‐reviewed journal, report original research, and appear to use a quantitative measure for at least one construct reported to measure stakeholder engagement. The full texts of articles whose abstracts met our inclusion criteria were retrieved and then examined for further inclusion/exclusion criteria. Our primary exclusion criterion was an article that does not contain stakeholder engagement, then subsequently, lack of quantitative measures.

Phase III: Data Abstraction

To ensure consistency in data abstraction, we created a standardized codebook for use by all authors, based on a prior measurement review. All authors reviewed the same five studies using the codebook and identified and resolved disagreements in coding. The codebook was thereafter revised. Included studies were distributed among seven coders for data abstraction. For all studies included in the review, two authors independently coded and compared their results. Coding discrepancies within pairs were resolved through discussion among authors. We opted for this group consensus method because of the enormous variability in terminology used to describe engagement characteristics and constructs across studies. The variables extracted included constructs measured, names of measures, stakeholder group engaged, type of engagement project, whether or not the measurement was part of a training exercise, and relationship of construct to study outcome (if engagement was assessed to be related to the dependent variable in the study). Data were entered into Excel files and evidence tables were constructed, organized by article first author, and stratified by type of construct. We divided the abstracted measures into (1) measures that were collected using participant‐reported methods, no matter how the self‐report was collected, such as online, paper and pencil methods (n = 53), and (2) observational methods, defined as a variable that asked researchers to observe and quantify behaviors relevant to engagement, such as attendance at a public event (n = 51).

FLOW OF ARTICLE REVIEW

Figure 1 contains the data on article eligibility and coding patterns. The search identified 3,576 (PubMed n = 1,112, Web of Science n = 2,464) articles using our key words. Six articles were excluded for being non‐English language (one Chinese, two German, two French, and two Spanish language articles). The abstracts of these articles were translated and determined to not impact the outcome of this review. From the remaining articles, 741 were excluded for being duplicate articles found because the databases used had some degree of overlap. After initial screening, we identified 2,829 non‐duplicate English language titles (see Figure 1). Of these, 2,582 were excluded during the abstract and title screening phase of the review, leaving a total of 247 articles. We excluded 179 articles at the final coding stage because they ultimately did not meet our eligibility criteria when the full‐length article was coded and discussed. A total of 68 articles contained quantified measures of stakeholder engagement and met our final criteria.17, 18, 19, 20, 21, 22, 23, 24, 25, 26, 27, 28, 29, 30, 31, 32, 33, 34, 35, 36, 37, 38, 39, 40, 41, 42, 43, 44, 45, 46, 47, 48, 49, 50, 51, 52, 53, 54, 55, 56, 57, 58, 59, 60, 61, 62, 63, 64, 65, 66, 67, 68, 69, 70, 71, 72, 73, 74, 75, 76, 77, 78, 79, 80, 81, 82, 83, 84
Figure 1

PRISMA 2009 Flow Diagram.

PRISMA 2009 Flow Diagram.

COMPILATION OF REVIEWED MEASURES

Table 1 contains the 53 participant‐reported measurements of stakeholder engagement found in 38 studies identified in our search. In each of these studies, participants indicated the extent of their engagement in the project using responses to one or more scales. The types of projects included here were broad: research projects, community input projects, and interventions. As seen from this table, none of the articles use the same stakeholder measure. Only a small number of reviewed articles (5 out of 53; 13%) reported psychometric data about the measure. Some of the measures (5 out of 53; 13%) had reliability calculated in the form of alpha coefficients, yet none of the scales presented any information on content validity or on other types of validity (i.e., criterion, construct). The stakeholder populations targeted in these studies widely varied, from members of a defined general public to participants in community groups and members of advisory boards. Only 25 of 53 (47%) measures reported assessment and testing of the significance of the relationship of participant‐reported engagement measure to outcome. Of those that assessed the relationship of measure to outcome, 100% of the studies indicated a significant relationship between engagement measure and at least one of the outcomes.
Table 1

Observational measures of engagement 1973–2014

CitationType of projectMeasure of EngagementDescription of measures# items used for measurementStakeholder studiedStatistics on measure?Relate measure to outcome?If yes, what is the result?
17. An, 2008InterventionUtilizationUtilization measures capturing use of quitplan.com's informational resources4Tobacco users who are new registrants to quitplan.comNoneYesUse of interactive quitting tools were associated with increased abstinence rates
17. An, 2008InterventionUtilizationUtilization measures capturing use of quitplan.com's interaction with the online community3Tobacco users who are new registrants to quitplan.comNoneYesOne‐to‐one messaging with other members of the online community, was associated with increased abstinence rates
18. Andreae, 2012Cross‐sectional SurveyReferralsReferrals from community members1Members of the community in a network around primary care officesNoneNo
18. Andreae, 2012Cross‐sectional surveyInvolvementReferrals from primary care office staff1Staff of primary care offices who were engaged to participate in recruitment processNoneNo
18. Andreae, 2012Cross‐sectional SurveyRecruitmentReferrals from community members1Community members hired to facilitate recruitmentNoneNo
19. Andrews, 2008SurveyCitizenship‐related activitiesA list of opportunities for public participation in local government; respondents select the most important activities undertaken.1English local government officersNoneNo
19. Andrews, 2008SurveyCitizen empowermentVarious indicators including voter turnout, website hits, attendance at events; some used Best Value Performance Indicators or community safety indicatorsMany; varied across authoritiesEnglish local government officersNoneNo
20. Ayuso, 2011Cross‐sectional surveyInternal Stakeholder EngagementPercentage of skilled employees and executives receiving a regular (e.g., at least once per year) formal evaluation of their performance, percentage of employees to follow a company training program specific to their job category, percentage of employees hired based on a validated recruitment process/selection test.3EmployeesAlpha > .60YesKnowledge sourced from engagement with internal stakeholders, and engagement with external stakeholders contributed to a firm's sustainable innovation orientation.
20. Ayuso, 2011Cross‐sectional surveyExternal Stakeholder Engagement1) How the external company engages with external stakeholders and 2) does the company regularly conduct satisfaction surveys or perception studies of the following stakeholders?2Outside companiesAlpha close to .7YesThe engagement was correlated with company's sustainable innovation orientation.
21. Clark, 2010InterventionCoalition Self‐Assessment SurveyAssesses level of involvement of individual coalition members suing Likert‐type scale (four categories = peripheral, intermittent, ongoing, core)Not ReportedCoalitions of community residents and community‐based organizationsNoYesCoalitions with more engaged (core or ongoing) partners had greater asthma policy and systems changes
21. Clark, 2010InterventionCoalition trackingAssesses level of involvement of individual coalition members suing Likert‐type scale (four categories = peripheral, intermittent, ongoing, core)MultipleCoalitions of community residents and community‐based organizationsNoYesCoalitions with more engaged (core or ongoing) partners had greater asthma policy and systems changes
22. Fahrenwald, 2013Longitudinal study preparationParticipationNumber of each type of outreach/engagement activityMultipleGovernment, healthcare systems, social services, child care, churches and non‐profits, media, major employers, other grassroots partnersNoYesRecruitment outcomes
23. Fothergill, 2011Community placed researchCommunity engagementReports of regular church attendance (once per week or more) and participation in any secular organizationsunclearMothers of a cohort of first graders from Woodlawn, a largely Afr. Am. Community on the south side of ChicagoNoYesAssociation between social integration and health significant health
23. Fothergill, 2011Community placed researchCommunity engagementReports of regular church attendance (once per week or more) and participation in any secular organizations30Mothers of a cohort of first graders from an African American community in ChicagoNoYesPersistently engaged women less likely to report anxious or depressed mood than those with early CE only. Persistent and diverse CE was more highly associated with better physical functioning than was persistent CE.
24. Frew, 2008Cross‐sectionalCommunity InvolvementSurvey of evaluative measures, demographics, social interaction, and health information‐seeking behaviors.32Attendees of public LGBT and AIDS awareness events in AtlantaNoYesCommunity involvement associated with likelihood to return to another HIV vaccination research event in the future.
25. Frew, 2011Cross‐sectionalCommunity Engagement in HIV Vaccine ResearchCross‐sectional survey consisting of evaluative measures, demographics, social interaction, and health information‐seeking behaviors was conducted. Multivariate analysis.3Prospective study participants at public eventsNoNo
26. Galichet, 2010Application analysisLevel of stakeholder inclusiveness in the application processAssessment of inclusiveness based on 4 criteria: 1) evidence of Health Systems Coordination Committee meeting 2x/year, 2) at least 4 int'l stakeholders participate in application process, 3) presence of 1 or more‐ private sector, civil society, independent health professionals, academics, 4) evidence of stakeholder attendance at prep meetings. Each criteria = 1 point. Applications rated 1–4 (highly inclusive to non‐inclusive).4Gov't stakeholders, external stakeholders in‐country, int'l (i.e., Ministry of Finance, NGOs, health professionals)NoYesHigher levels of inclusiveness correlated positively with application approval Strong correlation between the evaluation of inclusiveness and the assessment of the proposals by the Independent Review Committee.
27. Gregson, 2013Cross‐sectional survey (at two time points)ParticipationSelf‐reported participation in activities of local community organizations to which participants reported membership.Unclear5260 adults interviewed in two consecutive rounds Between 2003–2008NoYesNo relationship between participation and outcomes
28. Hess, 2001Cross‐sectional surveysCitizen input indexIndex combining data from seven situations where engagement in district is possible7District is focusNoNo
29. Hood, 2010Online questionnaireLevel of community engagementStudies categorized in either Level 1 or Level 2 of community engagement. Level One included activities that had CBPR principles such as a community advisory Group or other meaningful involvement.2NIH‐funded Investigators at a large Midwestern University that has an NIH CTSANoNo
29. Hood, 2010Community connected researchLevel of community engagementFocus groups for community input; MOA/MOU with non‐univ group; data collection not at univ site; special events or recognition for participants; share study findings with community reps.5NIH‐funded Investigators at a large Midwestern University that has an NIH CTSANoNo
29. Hood, 2010Community connected researchCommunity involvement in individual steps of research processOnline survey e‐mailed to principal investigators of recent NIH‐funded studies11NIH‐funded Investigators at a large Midwestern University that has an NIH CTSANoNo
30. Hughes, 2006National random telephone surveyCommunity LifeCommunity Connections (number of group memberships), Community Norms (feelings of trust and reciprocity in community)2Australian adults who responded to 'Families, Social Capital, and Citizenship' Project.' National random sampleNoYesFamily life measures predicted both measures of community life
31. Jolibert, 2012Cross‐sectional surveyParticipationCounts of stakeholders involved in the biodiversity research project1Selected project coordinators and partners in 38 biodiversity research projectsNoNo
31. Jolibert, 2012Cross‐sectional surveyCommunicationTypes of communication between research projects and stakeholders1Selected project coordinators and partners in 38 biodiversity research projectsNoNo
32. Kagan, 2012SurveyCommunity involvementHow people viewed (a) the frequency of activities indicative of community involvement, (b) the means for identifying, prioritizing, and supporting CAB needs, and (c) mission and operational challenges.25Community advisory boardsNoNo
32. Kagan, 2012SurveyFrequency of activities reflective of community involvementRated (on a 7‐point Likert‐type scale of 1 [never] to 7 [always]), the perceived frequency of occurrence of 25 best practice activities, 11 of which were CAB‐based and 14 describing RS functions.11Community advisory boardsNoNo
32. Kagan, 2012SurveyRelevance of research activitiesRated (on a 7‐point Likert‐type scale of 1 [never] to 7 [always]), the perceived frequency of occurrence of 25 best practice activities, 11 of which were CAB‐based and 14 describing RS functions.6Community advisory boardsNoNo
32. Kagan, 2012SurveyCommunication and collaboration activitiesRated (on a 7‐point Likert‐type scale of 1 [never] to 7 [always]), the perceived frequency of occurrence of 25 best practice activities, 11 of which were CAB‐based and 14 describing RS functions.8Community advisory boardsNoNo
33. Kamuya, 2013Cross‐sectional surveyParticipationNumber of meetings attended number of members2Community representativesNoNo
34. Kyle, 2010Cross‐sectional SurveyRatings of home and community protection activitiesRespondents first indicated Y/N to whether they did specific activity. Then rated likelihood of doing activity in the future along 5‐point scale Items grouped into 4 conceptual domains.13Residents in Southern CA; primarily white, educated menNoYesCommunity attachment was strongly predictive of community‐based activities.
35. Litt, 2013Cross‐sectional SurveyStakeholder engagement.Questions on 10 community activities on a 5‐point Likert scale (1 = never, 2 = rarely [<2 times], 3 = sometimes [2–5 times], 4 = often [most of the time], 5 = very frequently or ongoing) (19).15Active living collaborationsNoNo
36. McNaughton, 2012Community engagement case studyengagement activitiesnumber of each type of outreach/engagement activity3Community members and community leaders (Australian)NoYes
37. Nahar, 2012InterventionAttendanceNumber of and attendance at women' s groups2women of childbearing age and new married in rural BangladeshNoYesApproximately 29% of women who gave birth and were interviewed as part of the community‐surveillance system during the period January 2009 to June 2010 reported attending women's groups, compared to 3% prior to scale‐up.
38. O'Brien, 2009InterventionChange in the use of community servicesThe number of services used by each patient one year before the CTO was issued (range 1–3). Measures the number of services used one year after the CTO is issued (range 1–4).1Psychiatric patients in Ontario, CanadaNoYesA significant increase in the number of community services was found for patients following the issuance of a CTO.
39. Overstreet, 2005Cross‐sectional surveyCommunity engagement behaviors (predictor variable)Parent reporting of voting, church attendance, and activity at their local community center.3159 economically disadvantaged African American parents living in an urban settingNoYesParent engagement and contextual variables predicted school involvement outcomes, but specific predictors varied by child's grade level.
39. Overstreet, 2005Cross‐sectional surveyParental involvement in schooling (outcome variable)Parent reporting of visiting their child's classroom, attending events at school, and membership of the parent–teacher organization. Summed to composite measure.4159 economically disadvantaged African American parents living in an urban settingalpha = .62YesParent engagement and contextual variables predicted school involvement outcomes
40. Phillips, 2014Cluster randomized trialCompetency in partnership, collaboration, and community engagementSelf‐assessment of competency in partnership collaboration and community engagement1Mentees in the research to reality pilot mentorship program of NCINoNo
41. Pitama, 2011Description of CBPR epidemiological studyStudy response rates in three groups of study samplesThe final disposition for each person selected was coded according to the American Association for Public Opinion Research (AAPOR) guidelines for in‐person household surveys and response rates were calculated conservatively using Response Rate 1 which includes all persons of unknown eligibility in the denominator.1Wairoa Maori, Christchurch Maori, Christchurch non‐MaoriNoYesMaori research approach successfully recruited participants
42. Polson, 2013Cross‐sectional surveyHow many formal or informal groups or clubs do you belong to, in your area, that meet at least monthly?Count of formal or informal groups or clubs1general male publicFactor loading from principal component analyses presentedNo
43. Rinner, 2009GIS case studyParticipation (type and amount)Measure of participation in the ArguMap application. Factors: registrations, active participants, starter threads, contributions, new threads, replies (first‐order, second‐order, third‐order, and fourth‐order).10Residents within or near the 'Queen West Triangle' in TorontoNoNo
44. Rose, 2008Cross‐sectional surveyActive engagement with thecommunityMeasured frequency of active and passive types of community involvement.5Older adults in 7 Latin American and Caribbean citiesNoYesNo significance in the association active community engagement and active living.
45. Saewyc, 2008Cross‐sectional surveyCommunity engagementLevel of involvement in extracurricular activities and volunteering.UnclearAdolescents in British ColumbiaNoYesHigh levels of protective factors were strongly linked to lower rates of self‐reported risk behaviors and greater health.
46. Shah, 2002Cross‐sectional SurveyCivic engagementAn additive index from three items.3Residents of defined communityalpha = .3YesInternet use related to civic participation
47. Sirin, 2011Cross‐sectional surveyDevelopmental Assets Profile (Search Institute, 2004).Single item measure of community engagement (In the past year, have you worked with others in your neighborhood to address a problem or improve something?)1general male publicNoNo
48. Tiffany, 2012InterventionIntensityAnalysis of how long involved in program1Adolescents engaged in after school activities in NYCExtensive factor analyses reported; alphas = .66‐.No
48. Tiffany, 2012InterventionDurationAnalysis of how long involved in program1Adolescents engaged in after school activities in NYCExtensive factor analyses reported; alphas = .66‐.No
49. Van Voorhees, 2008SurveyCommunity environment and engagementNeighborhood relations, community involvement, religious activities, delinquency, and adverse events.15Representative sample of U.S. adolescents in grades 7–12 with oversampling of African American youth from high educational backgroundsNoYesA supportive community and constructive involvement were related to new‐onset depressive episodes.
50. Westfall, 2012Surveycommunity engagementParticipation with new colleagues2Conference attendeesNoNo
51. Wilkins, 2013InterventionInventory of community involvementInventory made up of (1) Number and type of community representatives (CRs) with formal roles in each CTSA. (2) Roles of CRs in the CTSAs. (3) Inclusion of CRs in committee and overall leadership. (4) Policies that govern CRs involvement. (5) Time commitments expected of CRs. (6) Types and amount of compensation to CRs. (7) Best practices in engaging CRs. (8) Barriers to engaging CRs.8CTSAsNoNo
Observational measures of engagement 1973–2014 A total of 50 separate observational measures were used to assess stakeholder engagement by counting or recording behaviors, from a total of 34 articles identified in the search (Table 2). The observational measures of engagement included “counts of referrals” and “attendance at events.” No reliability data were presented along with the identification of each measure in this table. No attempts were made in any of the studies to support the validity of the observational measures of engagement through measuring a hypothetically related construct alongside the observational measures. Many of the measures were related to outcomes as part of the study but the outcome testing used a variety of measures.
Table 2

Participant‐reported measures of engagement, 1973–2014

CitationType of projectMeasure of engagementDescription of measures# items used for measurementStakeholder studiedStatistics on measure?Relate measure to outcome?If yes, what is the result?
52. Algesheimer, 2005SurveyCommunity identificationStrength of the consumer's relationship with the brand community.5Car club membersalpha = .92YesCommunity engagement related to normative community pressure
52. Algesheimer, 2005SurveyCommunity engagementConsumer's intrinsic motivations to interact and cooperate with community members.4Car club membersalpha = .88YesCommunity engagement related to normative pressure positively; community participation intentions, community recommendation intentions, membership continuance intentions
19. Andrews, 2008SurveyEffective citizenshipImportance of supporting citizenship through engagement, and delivery structures (government departments) utilized to do so2English local government officersNoNo
19. Andrews, 2008SurveyEngaging local citizensSuccessful citizenship‐related activities to build culture of engagement in local government, and changes in internal working practices to enhance this.2English local government officersNoNo
20. Ayuso, 2011Cross‐sectional surveyCustomer and employee engagementSingle item on how the company incorporates customer feedback. For employees: lay‐offs and worker displacement policies, company systems for collecting and handling employee grievances and complaints, company‐specific job training, and selection rigor in company recruiting systems.1 and 4Employees and customersNoYesengagement related to corporate social responsibility measured in terms of fiscal investment in socially responsible areas
53. Brown, 2003Cross‐sectional surveyFuture serviceLikelihood of practicing in underserved areas1Practitioners of community and public healthNoNo
54. Bruning, 2006Cross‐sectional surveyResident engagement with the local universityAttendance a public event at the university in the past 6 months.1Local residentsNoYesAttendance a university event is positively associated with respondent's positive perception of the university, and consideration of the university as an asset to the community.
55. Chiu, 2005Cross‐sectional SurveyCynicism about community engagement"I don't see the point in participating in social services or community affairs, there is not much you can change."1Employed Hong Kong residentsNoYesCynicism about community engagement is the outcome variable; 5 categories of predictor variables were tested.
55. Chiu, 2005Cross‐sectional SurveyJudgment of a good societyImportance of having more people who are willing to serve that society in a good society1Employed Hong Kong residentsNoYesIncreased importance placed on having more people willing to serve in a good society was found to predict less cynicism about community engagement.
55. Chiu, 2005SurveyPerception of deprivationOther people having more opportunities1Employed Hong Kong residentsNoYesIncreased perception of one's own social deprivation was found to predict increased cynicism about community engagement.
55. Chiu, 2005SurveyPerception ofbrk one's value to society"I feel valued by society"1Employed Hong Kong residentsNoYesDecreased perception of value to society was found to predict increased cynicism about community engagement.
55. Chiu, 2005SurveySocial TrustGeneral view of trusting others; Levels of trust in five groups of people. Mean of these values taken as composite variable.2Employed Hong Kong residentsNoYesIncreased social trust found to predict less cynicism about community engagement.
56. Chung, 2009SurveyCommunity engagementThe perception that individual problems (in the study, depression and mental wellness) are problems of the community as a whole, on a 5 point scale (ranging from strongly agree to strongly disagree)4Eligible attendees at the Talking Wellness eventsNoYesCollective efficacy to improve depression care related to community engagement
56. Chung, 2009SurveyCollective efficacyAbility of group to improve depression care1Eligible attendees at the Talking Wellness eventsFactor analysis mentioned but no data reportedYesCollective efficacy related to community engagement in terms of addressing depression. In confirmatory analyses, exposure to spoken word presentations and previous exposure to CPPR initiatives increased perceived collective efficacy
57. Beringer, 2012Cross‐sectional SurveyStakeholder engagement'Two‐dimensional, 6 × 9 question matrix: Stakeholders marked a cross next to the position in the organization responsible for each of the nine specified activities.9Internal stakeholders of 223 portfolios, managers who were supposed to be operatively involved in project portfolio management processes.NoNo
58. Cuillier, 2008Cross‐sectional SurveyAttitudes toward community engagementImportance of six activities in the respondent's life.6Public via random‐digit dial national phone surveysalpha at least .70YesCommunity engagement is positively related to support for press access.
59. Davis, 2012Cross‐sectional surveyQuestions on engagement with ARSSurvey of participants on their views of using the ARS agreed or strongly agreed that they felt comfortable sharing their thoughts and opinions3Town hall meeting participantsNoNo
60. De Freitas, 2013Cross‐sectional surveyStakeholders' views and understanding of the public participation processSurvey: choose among a set of five definitions for an effective communication and engagement process.1Participants were representative of diverse and key stakeholder groups and sectors in the regionNoNo
60. De Freitas, 2013Cross‐sectional surveyPerceptions of public participation processesRatings of the level of importance (with categories 1 = not at all important to 5 = extremely important) for 17 statements about possible outcomes and attributes of an effective engagement program in natural resource management.1Participants were representative of diverse and key stakeholder groups and sectors in the regionalpha = .80No
61. Deverka, 2012Survey

Representation

Process

Information

Outcomes

A online Likert‐scale for each component29Variety (Patients, consumers, healthcare providers, industry, purchasers and payers, and policymakers and regulators)NoYesEngagement related to goal of establishing a stakeholder‐driven priority‐setting process for cancer genomics comparative effectiveness research in a clinical trials cooperative
62. Khodyakov, 2012SurveyCommunity Engagement Research IndexList of 12 research activities that community partners participate in, (1 = “Community partners did not participate in this activity”; 2 = “Community partners consulted on this activity”; and 3 = “Community partners were actively engaged in this activity.”)12Community partnersNoNo
63. Durrant, 2012SurveyCommunity involvement"I help out in the community." And "I am an active member of a club or community organization."2pupils participating in the Youth Community Action pilotfactor analysis mentionNo
64. Haga, 2013SurveyPositive feelingsSurvey instrument with trust and worry items7 and 4Middle school students and their parents/guardians

alpha = .7

alpha = .6

No
65. Henderson, 2013SurveyPreferences for knowledge exchange preferences for research collaboration perspectives on the proposed research agendaStakeholders knowledge exchange preferences, stakeholders research collaboration preferences, stakeholder research agenda perspectives3Multiple stakeholders primary sectors for survey respondents include: mental health, health, addictions, child welfare, education, justice, and others such as housing, shelters, outreach or employment servicesNoNo
66. Hoffman, 2010SurveyCommunity service questionnairePerceptions of the importance of community service activity and civic engagement. Likert‐based scale12Undergrad students from Metropolitan State University in St. Paul, MNNoNo
67. Human‐Vogel, 2012SurveyCommunity engagementOne overall scale with four subscales, each using five items to measure Satisfaction, Quality of alternatives mindfulness, and investment size30Midcourse undergraduatesalpha = 0.91YesSeveral aspects of commitment to Community engagement related to spending time with cultural groups other than their own.
68. Jaskiewicz, 2013InterventionInstitutional recruitment scales

What planned and actual procedures were used by Healthy HotSpot staff to recruit community institutions

What planned and actual procedures were used by community partners to recruit stores

3Community partners are municipal governments, nonprofit organizations and faith‐based institutions in addition to the corner stores they recruitedNoNo
69. Kang, 2013SurveyNeighborhood belongingThe 4‐item subjective belonging index measuring feelings of attachment to a residential area.4225 elders recruited from five elderly colleges in Daegu, S. Koreaalpha = .76YesKorean elders who used media frequently connected with local organizations, were actively involved in neighborhood activities and volunteering."
69. Kang, 2013SurveyPerceived collective efficacyMeasure level of confidence regarding their neighbors' willingness to participate in neighborhood problem solving process3225 elders recruited from five elderly colleges in Daegu, S. Koreaalpha = .76YesKorean elders who used media frequently connected with local organizations, and had conversations with neighbors often were actively involved in neighborhood activities and volunteering.
69. Kang, 2013SurveyVolunteeringThe degree to which respondents believed their neighbors would volunteer in the future based on past experiences.2225 elders recruited from five elderly colleges in Daegu, S. Koreaalpha = .68YesKorean elders who volunteered with local organizations, and had conversations with neighbors were actively involved in neighborhood activities and volunteering.
69. Kang, 2013SurveyLength of residence and homeownershipIndicate the number of years they had lived at their current residence1225 elders recruited from five elderly colleges in Daegu, S. Koreaalpha = .84Yes"Results found that Korean elders who used media frequently connected with local organizations, and had conversations with neighbors often were actively involved in neighborhood activities and volunteering."
69. Kang, 2013SurveyScope of connections to community organizationsBelonging to any of five different types of organizations: (1) sports or recreational, (2) religious, (3) neighborhood, (4) political, (5) other.1225 elders recruited from five elderly colleges in Daegu, S. KoreaAlpha = .76Yes"Results found that Korean elders who used media frequently connected with local organizations, and had conversations with neighbors often were actively involved in neighborhood activities and volunteering."
70. Kazemipur, 2011SurveyCanadian General Social SurveySelf‐Interest Social Engagement, Cultural‐Community Participation, Political party activism, Political Information acquiring and sharing, Confidence in private institutions, Voting, Trust, Volunteering, Neighborliness, Group activity, Political expression, Social networks, Donation‐Youth‐Business, Confidence in public institution, Religion45General public, stakeholder in governmentFactor analysis and alphas presented for 15 subscalesNo
71. Krauss, 2012SurveySchool engagement6‐item scale measuring the respondents' adherence to the education goals and values of their school.6895 third year Muslim high school students from 19 schools throughout the Klang Valley (greater Kuala Lumpur region).alpha = .74YesSchool engagement significantly predicted religiosity for the full sample of students from both types of families
71. Krauss, 2012SurveyMosque involvement6‐item scale measuring the respondents' adherence to the education goals and values of their school.2895 third year Muslim high school students from 18 public secondary schools throughout the Klang Valley (greater Kuala Lumpur region).NoYesMosque involvement significantly predicted religiosity for the full sample of students from both types of families
71. Krauss, 2012SurveyYouth organization involvement6‐item scale measuring the respondents' adherence to the education goals and values of their school.2895 third year Muslim high school students from 18 public secondary schools throughout the Klang Valley (greater Kuala Lumpur region).NoYesYouth organization involvement significantly predicted religiosity for the full sample of students from both types of families
34. Kyle, 2010SurveyCommunity attachment scaleItems measured along 5‐point scale of 1 = strongly disagree to 5 = strongly agree.9Residents in Southern CA; primarily white, educated menAlpha = .91YesThose most attached to their homes and community were more likely to report current use of the Firewise techniques and expressed greater likelihood of future use. Community attachment was more strongly predictive of community‐based activities.
72. Lee, 2009Author report/literature reviewPercent skilled attendance at birthMeta‐analysis of community mobilization using 4 studies9Skilled birth attendantNoYesThere was evidence that community mobilization with high levels of community engagement can increase institutional births and reduce perinatal and early neonatal mortality.
73. McComas, 2011SurveyPerceived fairness of university decision makersRespondents were asked how respondents perceived university decision makers would behave toward them and their community.9Tompkins county property owners selected from property tax rollsalpha = .93YesA significant positive relationship between fairness and support.
74. Narsavage, 2003SurveyEffects of service learningQuantitative pre and post‐testing.14Students from a service learning classNoNo
75. Nokes, 2005InterventionCivic engagementAttitudes toward community involvement, influence of the service learning experience on choice of major and profession, and personal reflections on the service learning experience12Nursing studentsalpha = "acceptable"YesParticipants' civic engagement scores increased significantly after the intervention.
76. Orians, 2009SurveyCharacteristics of networks (assessed both before and after the implementation)Participants rated several aspects of PACE involvement4Individuals in communities implementing PACENoNoThe measures were outcomes of program implementation.
77. Peterson, 2006SurveyCoalition structure and processesFactors identified as important for community involvement.UnclearMembers of Allies Against Asthma coalitionsNoNo
78. Phillipson, 2012SurveyPerceived impact on the stakeholders policies or practices and knowledge or understandingResponse on 4 point scale1Multiple types of stakeholders in projectsNoYesA close relationship is found between mechanisms and approaches to knowledge exchange and the spread of benefits for researchers and stakeholders.
78. Phillipson, 2012SurveyPerceived impact on research relevance and scientific qualityResponse on a 5 point scale1Multiple types of stakeholders in projectsNoNo
79. Puddifoot, 2003SurveyTwelve items measuring personal community identity and 12 items measuring general community identityPersonal view of the quality of community life and others view of community life24residents of defined communityNoNo
80. Rawstorne, 2007Cohort studyCommunity engagementDependent variable; Whether or not participants felt they were part of a positive community.1People living with positive HIV diagnosisNoYesHistorical time of diagnosis and factors related to living with HIV help explain HIV‐positive community engagement.
43. Rinner, 2009SurveyAssessment of the engagement experienceParticipants were asked to rate six statements on a five‐point scale from strongly agree to strongly disagree.7Residents within or near the 'Queen West Triangle' in TorontoNoNo
81. Rosenberger, 2014SurveyCommunity engagementWhich of gay or bisexual functions or activities they had participated in the city where they lived.18Coalition members affiliated with CTCAlphas not less than .55No
82. Shapiro, 2013SurveyGoal‐directedness Efficiency Opportunity for participation CohesionParticipant surveys17Coalition members affiliated with CTCFactor analysis, with “reasonable” loadingsNon/a
83. Thompson, 2010Post‐test following a participatory planning workshopParticipants' perceived benefits of attending the workshopsNew Ecological Paradigm Scale assessment and four questions.UnclearScientists, decision makers and stakeholdersNoYesParticipants gained a greater understanding of complexity and system dynamics related to urban air shed
84. Tiernan, 2013SurveyCommunity Integration Measure

Feel like they belong in their community;

Know their way around their community;

Know the rules;

Feel accepted;

Can be independent in their community;

Like where they live,

Feel close to others;

Know people well enough to say hello;

Have fun things to do; and

10. Have productive activities to do in their community.

10Older African Americans who participate in researchalpha = .83YesCommunity engagement significantly related to well‐being.
48. Tiffany, 2012InterventionTiffany‐Eckenrode Program Participation Scale (TEPPS)Measuring theoretically significant characteristics of program participation: Personal Development, Voice/Influence, Safety/Support, and Community Engagement21Adolescents engaged in after school activities in NYCalpha = .90No
Participant‐reported measures of engagement, 1973–2014 Representation Process Information Outcomes alpha = .7 alpha = .6 What planned and actual procedures were used by Healthy HotSpot staff to recruit community institutions What planned and actual procedures were used by community partners to recruit stores Feel like they belong in their community; Know their way around their community; Know the rules; Feel accepted; Can be independent in their community; Like where they live, Feel close to others; Know people well enough to say hello; Have fun things to do; and 10. Have productive activities to do in their community.

SUMMARY OF FINDINGS

We systematically reviewed the literature on existing measures of stakeholder engagement. We found a variety of measurements, with differing qualities and development trajectories. Some were simply counts of event attendance, while others were theoretically based and developed with sound psychometric principles and analyses. The variability in the process of identifying these measures listed in the articles found for this review was considerable, making grouped analysis difficult. Many of these measures were participant head counts by researchers or participants themselves. As such, these do not really measure any sort of engagement directly. Therefore, we cannot tell if these measures actually assess engagement or some other cluster of factors that motivate people to attend events and activities. On the one hand, these counted types of measures are relatively easy to obtain and can be gathered from documents that already exist, such as meeting minutes or counts of attendees at events. Thus, they are an easy measure to gather and use, and are often presented without much extra work. But likely we need more data before considering that high attendance equates to high engagement in a process, particularly in light of potential confounders such as incentives for attendance. These types of data would be relatively easy to collect and produce, and this systematic review points to the need for these corroborating data. Also, there is no consensus in the literature on defining engagement, what kind of engagement is desired, and how involved a community member must be to be considered “engaged.” These are all likely context‐dependent, and therefore expectations of consensus are not relevant. The participant‐reported measures of engagement are varied and diverse in their names, definitions, and purposes. Data on the psychometric properties of scales were generally lacking, although some investigators provided some limited data on scale performance, presented in Table 1. The scales measured a broad range of concepts, including motivations for participating, strength of relationship between researcher and community, comfort with community activities, and familiarity with community members. This breadth indicates that we need clearer definitions of the construct(s) involved in engagement before new development occurs. In most of the publications, the development process was not detailed and no plans were proposed to identify scale psychometric properties. This absence could pose a problem when comparing across multiple communities or when attempting to obtain a point estimate of engagement to better understand a research process or community or stakeholder's actual involvement, especially in large‐scale research efforts. Weiner and others have identified a similar lack in the implementation science literature as well,85 pointing to a potential challenge for new efforts, such as Patient‐Centered Outcomes Research Institute and the Precision Medicine Initiative.

LIMITATIONS OF THE PRESENT REVIEW

There were several choices that we made that limit the generalizability of the findings. First, we did not formally rate the quality of each measurement study. We found that our initial attempts to rate measurement quality resulted in low ratings, due to the absence of psychometric data. This is likely due to the early nature of this field, but future work will hopefully find improvements in the methodological development of measures for engagement. We did not review related constructs that could be used to assess some component of, or were related to, engagement, given the lack of definitional clarity and term usage across literatures. Therefore, we likely did not include measures that could have provided some information on this topic. Our focus on English‐language articles is a limitation of the data as presented; however, our assessment of the non‐English articles we were able to translate indicates that this did not seem to bias the review.

FUTURE DIRECTIONS FOR RESEARCH AND PRACTICE

What is the right kind of engagement measure to use? First, we clearly need to develop better scales that (1) use a theory or model, (2) provide psychometric data, (3) can be short and used with large‐scale projects, and (4) pick up the key elements of engagement that are critically important for involvement in health‐related projects. These are high standards indeed, but feasible. Some scales exist, but because relationships and purposes of engagement vary so widely, selecting the right scale for the situation will depend on context, goals, and relationship. It is possible that no single scale will likely meet every need. This ultimately is an empirical question. Given the increasing interest among researchers and funders in improving health outcomes through engagement of diverse stakeholders (communities, groups, individuals) in health‐related research and programs, we recommend greater attention to developing good quality (validated, yet flexible) measures that can help us assess the level of engagement throughout an ongoing process, specific to varying types of engagement, and health outcomes related to the engagement process. Better measures would be particularly helpful in assessing engagement of diverse groups of stakeholders in a research project. When stakeholders can communicate their values in a research team, those values often influence the research process and can be an important source of new research questions, as well as a source of more accurate interpretations of the research findings.86 Some of the most interesting conceptual work is going on in qualitative projects. Qualitative data can accompany or inform quantitative approaches in mixed methods projects. For example, Schulz and colleagues10, 12 applied both qualitative and quantitative approaches to evaluate process and group dynamics in community‐based participatory research (CBPR) projects. Their evaluation addressed perceptions of openness, trust, and ownership, and informed an annual quantitative survey in which partnership members rated these aspects of group functioning. Questions such as one's “sense of ownership/belonging to the group” may be construed as measuring a deep level of engagement. More qualitative research can improve the field's understanding of how various stakeholders describe their expectations for levels of engagement and inform quantitative scales representing engagement in the words and thoughts of the original stakeholders. The volume of research in this area has increased over the last few years, so we are hopeful that we will see the development of high‐quality measures in these large studies.
  54 in total

1.  Engaging the community in coalition efforts to address childhood asthma.

Authors:  Jane W Peterson; Laurie L Lachance; Frances D Butterfoss; Christy R Houle; Elisa A Nicholas; Lisa A Gilmore; Marielena Lara; Amy R Friedman
Journal:  Health Promot Pract       Date:  2006-04

2.  Ethical challenges for the "outside" researcher in community-based participatory research.

Authors:  Meredith Minkler
Journal:  Health Educ Behav       Date:  2004-12

3.  Preferred reporting items for systematic reviews and meta-analyses: the PRISMA statement.

Authors:  David Moher; Alessandro Liberati; Jennifer Tetzlaff; Douglas G Altman
Journal:  J Clin Epidemiol       Date:  2009-07-23       Impact factor: 6.437

4.  A Kaupapa Māori approach to a community cohort study of heart disease in New Zealand.

Authors:  Suzanne Pitama; J Elisabeth Wells; Allamanda Faatoese; Karen Tikao-Mason; Paul Robertson; Tania Huria; Tawhirimatea Gillies; Rob Doughty; Gillian Whalley; Richard Troughton; Ian Sheerin; Mark Richards; Vicky A Cameron
Journal:  Aust N Z J Public Health       Date:  2011-06       Impact factor: 2.939

5.  Socioecological influences on community involvement in HIV vaccine research.

Authors:  Paula M Frew; Matthew Archibald; Brooke Hixson; Carlos del Rio
Journal:  Vaccine       Date:  2011-06-29       Impact factor: 3.641

Review 6.  A systematic review of stakeholder engagement in comparative effectiveness and patient-centered outcomes research.

Authors:  Thomas W Concannon; Melissa Fuster; Tully Saunders; Kamal Patel; John B Wong; Laurel K Leslie; Joseph Lau
Journal:  J Gen Intern Med       Date:  2014-06-04       Impact factor: 5.128

7.  Sexual behaviors, sexual health practices, and community engagement among gay and bisexually identified men living in rural areas of the United States.

Authors:  Joshua G Rosenberger; Vanessa Schick; Phillip Schnarrs; David S Novak; Michael Reece
Journal:  J Homosex       Date:  2014

8.  Community treatment orders: beyond hospital utilization rates examining the association of community treatment orders with community engagement and supportive housing.

Authors:  Ann-Marie O'Brien; Susan J Farrell; Sylvie Faulkner
Journal:  Community Ment Health J       Date:  2009-09-01

9.  The importance of long-term social research in enabling participation and developing engagement strategies for new dengue control technologies.

Authors:  Darlene McNaughton
Journal:  PLoS Negl Trop Dis       Date:  2012-08-28

10.  Community representatives' involvement in Clinical and Translational Science Awardee activities.

Authors:  Consuelo H Wilkins; Mark Spofford; Neely Williams; Corliss McKeever; Shauntice Allen; Jen Brown; Jennifer Opp; Alan Richmond; A Hal Strelnick
Journal:  Clin Transl Sci       Date:  2013-06-10       Impact factor: 4.689

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  18 in total

1.  Construct validation of the Research Engagement Survey Tool (REST).

Authors:  Melody S Goodman; Nicole Ackermann; Zoé Haskell-Craig; Sherrill Jackson; Deborah J Bowen; Vetta L Sanders Thompson
Journal:  Res Involv Engagem       Date:  2022-06-16

2.  Parenting Programs for Underserved Populations in Low- and Middle-Income Countries: Issues of Scientific Integrity and Social Justice.

Authors:  Ana A Baumann; Anilena Mejia; Jamie M Lachman; J Rubén Parra Cardona; Gabriela López-Zerón; Nancy G Amador Buenabad; Eunice Vargas; Melanie M Domenech Rodríguez
Journal:  Glob Soc Welf       Date:  2018-09-08

3.  Content validation of a quantitative stakeholder engagement measure.

Authors:  Melody S Goodman; Nicole Ackermann; Deborah J Bowen; Vetta Thompson
Journal:  J Community Psychol       Date:  2019-09-02

4.  A Stakeholder-Engaged Process for Adapting an Evidence-Based Intervention for Posttraumatic Stress Disorder for Peer Delivery.

Authors:  Amantia A Ametaj; Ash M Smith; Sarah E Valentine
Journal:  Adm Policy Ment Health       Date:  2021-04-04

5.  Utilizing patient advocates in Parkinson's disease: A proposed framework for patient engagement and the modern metrics that can determine its success.

Authors:  Megan Feeney; Christiana Evers; Danielle Agpalo; Lisa Cone; Jori Fleisher; Karlin Schroeder
Journal:  Health Expect       Date:  2020-05-03       Impact factor: 3.377

6.  Patient and public engagement in research and health system decision making: A systematic review of evaluation tools.

Authors:  Antoine Boivin; Audrey L'Espérance; François-Pierre Gauvin; Vincent Dumez; Ann C Macaulay; Pascale Lehoux; Julia Abelson
Journal:  Health Expect       Date:  2018-07-30       Impact factor: 3.377

7.  Reaching Consensus on Principles of Stakeholder Engagement in Research.

Authors:  Melody S Goodman; Nicole Ackermann; Deborah J Bowen; Delphi Panel; Vetta Sanders Thompson
Journal:  Prog Community Health Partnersh       Date:  2020

8.  Improving Community Advisory Board Engagement in Precision Medicine Research to Reduce Health Disparities.

Authors:  Erin Connors; Rebecca Selove; Juan Canedo; Maureen Sanderson; Pamela Hull; Marilyn Adams; Ila McDermott; Calvin Barlow; Denice Johns-Porter; Caree McAfee; Karen Gilliam; Oscar Miller; Nora Cox; Mary Kay Fadden; Stephen King; Hilary Tindle
Journal:  J Health Dispar Res Pract       Date:  2019

9.  Rules of engagement: perspectives on stakeholder engagement for genomic biobanking research in South Africa.

Authors:  Ciara Staunton; Paulina Tindana; Melany Hendricks; Keymanthri Moodley
Journal:  BMC Med Ethics       Date:  2018-02-27       Impact factor: 2.652

10.  Stakeholder engagement to inform HIV clinical trials: a systematic review of the evidence.

Authors:  Suzanne Day; Meredith Blumberg; Thi Vu; Yang Zhao; Stuart Rennie; Joseph D Tucker
Journal:  J Int AIDS Soc       Date:  2018-10       Impact factor: 5.396

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