Literature DB >> 23349510

Comprehension of a simplified assent form in a vaccine trial for adolescents.

Sonia Lee1, Bill G Kapogiannis, Patricia M Flynn, Bret J Rudy, James Bethel, Sushma Ahmad, Diane Tucker, Sue Ellen Abdalian, Dannie Hoffman, Craig M Wilson, Coleen K Cunningham.   

Abstract

INTRODUCTION: Future HIV vaccine efficacy trials with adolescents will need to ensure that participants comprehend study concepts in order to confer true informed assent. A Hepatitis B vaccine trial with adolescents offers valuable opportunity to test youth understanding of vaccine trial requirements in general.
METHODS: Youth reviewed a simplified assent form with study investigators and then completed a comprehension questionnaire. Once enrolled, all youth were tested for HIV and confirmed to be HIV-negative.
RESULTS: 123 youth completed the questionnaire (mean age=15 years; 63% male; 70% Hispanic). Overall, only 69 (56%) youth answered all six questions correctly.
CONCLUSIONS: Youth enrolled in a Hepatitis B vaccine trial demonstrated variable comprehension of the study design and various methodological concepts, such as treatment group masking.

Entities:  

Keywords:  Clinical trials; HIV Infection and AIDS; Informed Consent; Minors/Parental Consent

Mesh:

Substances:

Year:  2013        PMID: 23349510      PMCID: PMC3655100          DOI: 10.1136/medethics-2012-101286

Source DB:  PubMed          Journal:  J Med Ethics        ISSN: 0306-6800            Impact factor:   2.903


  11 in total

1.  Behavioral considerations for engaging youth in HIV clinical research.

Authors:  Sybil G Hosek; Gregory D Zimet
Journal:  J Acquir Immune Defic Syndr       Date:  2010-07       Impact factor: 3.731

2.  Improving comprehension for HIV vaccine trial information among adolescents at risk of HIV.

Authors:  D A Murphy; D Hoffman; G R Seage; M Belzer; J Xu; S J Durako; M Geiger
Journal:  AIDS Care       Date:  2007-01

3.  What do our patients understand about their trial participation? Assessing patients' understanding of their informed consent consultation about randomised clinical trials.

Authors:  C Behrendt; T Gölz; C Roesler; H Bertz; A Wünsch
Journal:  J Med Ethics       Date:  2010-11-23       Impact factor: 2.903

4.  Inclusion of adolescents in preventive HIV vaccine trials: public health policy and research design at a crossroads.

Authors:  Heather B Jaspan; Coleen K Cunningham; Tim J P Tucker; Peter F Wright; Steve G Self; Rebecca L Sheets; Audrey S Rogers; Linda-Gail Bekker; Craig M Wilson; Ann Duerr; Judith N Wasserheit
Journal:  J Acquir Immune Defic Syndr       Date:  2008-01-01       Impact factor: 3.731

5.  Obtaining informed consent: observations from community research with refugee and impoverished youth.

Authors:  R Nakkash; J Makhoul; R Afifi
Journal:  J Med Ethics       Date:  2009-10       Impact factor: 2.903

6.  Adolescent HIV prevalence, sexual risk, and willingness to participate in HIV vaccine trials.

Authors:  Heather B Jaspan; Jessica R Berwick; Landon Myer; Catherine Mathews; Alan J Flisher; Robin Wood; Linda-Gail Bekker
Journal:  J Adolesc Health       Date:  2006-07-31       Impact factor: 5.012

7.  Randomized trial to determine safety and immunogenicity of two strategies for hepatitis B vaccination in healthy urban adolescents in the United States.

Authors:  Coleen K Cunningham; Bret J Rudy; Jiahong Xu; James Bethel; Bill G Kapogiannis; Sushma Ahmad; Craig M Wilson; Patricia M Flynn
Journal:  Pediatr Infect Dis J       Date:  2010-06       Impact factor: 2.129

8.  HIV vaccine trial preparedness among Spanish-speaking Latinos in the US.

Authors:  R A Brooks; P A Newman; N Duan; D J Ortiz
Journal:  AIDS Care       Date:  2007-01

9.  Adolescent and adult participation in an HIV vaccine trial preparedness cohort in South Africa.

Authors:  Keren Middelkoop; Landon Myer; Daniella Mark; Sibonisile P Mthimunye; Joalida Smit; Robin Wood; Linda-Gail Bekker
Journal:  J Adolesc Health       Date:  2008-03-06       Impact factor: 5.012

10.  Rolling up our sleeves now to reap the benefits later: preparing the community for an adolescent HIV vaccine.

Authors:  Bill G Kapogiannis; Sonia S Lee
Journal:  Curr Opin HIV AIDS       Date:  2007-09       Impact factor: 4.283

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  4 in total

1.  Beyond informed consent: ethical considerations in the design and implementation of sexual and reproductive health research among adolescents.

Authors:  Morenike Oluwatoyin Folayan; Bridget Haire; Abigail Harrison; Olawunmi Fatusi; Brandon Brown
Journal:  Afr J Reprod Health       Date:  2014-09

Review 2.  Informed consent in pediatric research.

Authors:  Tom Leibson; Gideon Koren
Journal:  Paediatr Drugs       Date:  2015-02       Impact factor: 3.022

3.  Adolescents with substance use disorder and assent/consent: Empirical data on understanding biobank risks in genomic research.

Authors:  Marilyn E Coors; Kristen M Raymond; Christian J Hopfer; Joseph Sakai; Shannon K McWilliams; Susan Young; Susan K Mikulich-Gilbertson
Journal:  Drug Alcohol Depend       Date:  2015-12-21       Impact factor: 4.492

4.  Improving assent in health research: a rapid systematic review.

Authors:  Dominik Soll; Maria Magdalena Guraiib; Nigel Campbell Rollins; Andreas Alois Reis
Journal:  BMC Med Res Methodol       Date:  2020-05-13       Impact factor: 4.615

  4 in total

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