Literature DB >> 19793946

Obtaining informed consent: observations from community research with refugee and impoverished youth.

R Nakkash1, J Makhoul, R Afifi.   

Abstract

This paper presents challenges facing researchers in applying basic ethical principles while conducting research with youth in a developing country context. A discussion of the cultural and social challenges to adherence to the elements of informed consent: disclosure, comprehension, capacity, voluntariness and consent is presented. The authors argue that the current institutional review board requirements that guide research reflect values and stem from western contexts that may not be fully applicable to non-western contexts. More dialogue is needed among researchers in developing world contexts on challenges of and possible revisions to requirements that maintain respect for persons, beneficence, autonomy and justice, particularly when working with youth.

Entities:  

Mesh:

Year:  2009        PMID: 19793946     DOI: 10.1136/jme.2008.028936

Source DB:  PubMed          Journal:  J Med Ethics        ISSN: 0306-6800            Impact factor:   2.903


  7 in total

1.  Community-based participatory research in complex settings: clean mind-dirty hands.

Authors:  Jihad Makhoul; Rima Nakkash; Trudy Harpham; Yara Qutteina
Journal:  Health Promot Int       Date:  2013-07-19       Impact factor: 2.483

2.  Comprehension of a simplified assent form in a vaccine trial for adolescents.

Authors:  Sonia Lee; Bill G Kapogiannis; Patricia M Flynn; Bret J Rudy; James Bethel; Sushma Ahmad; Diane Tucker; Sue Ellen Abdalian; Dannie Hoffman; Craig M Wilson; Coleen K Cunningham
Journal:  J Med Ethics       Date:  2013-01-24       Impact factor: 2.903

3.  Challenges to obtaining parental permission for child participation in a school-based waterpipe tobacco smoking prevention intervention in Qatar.

Authors:  Rima T Nakkash; Ahmad Al Mulla; Lena Torossian; Roubina Karhily; Lama Shuayb; Ziyad R Mahfoud; Ibrahim Janahi; Al Anoud Al Ansari; Rema A Afifi
Journal:  BMC Med Ethics       Date:  2014-09-30       Impact factor: 2.652

4.  Cultural considerations for informed consent in paediatric research in low/middle-income countries: a scoping review.

Authors:  Marcela Colom; Peter Rohloff
Journal:  BMJ Paediatr Open       Date:  2018-12-05

Review 5.  Conducting epigenetics research with refugees and asylum seekers: attending to the ethical challenges.

Authors:  Faten Taki; Inmaculada de Melo-Martin
Journal:  Clin Epigenetics       Date:  2021-05-08       Impact factor: 6.551

6.  Procedures of recruiting, obtaining informed consent, and compensating research participants in Qatar: findings from a qualitative investigation.

Authors:  Amal Killawi; Amal Khidir; Maha Elnashar; Huda Abdelrahim; Maya Hammoud; Heather Elliott; Michelle Thurston; Humna Asad; Abdul Latif Al-Khal; Michael D Fetters
Journal:  BMC Med Ethics       Date:  2014-02-04       Impact factor: 2.652

7.  Could the decision of trial participation precede the informed consent process? Evidence from Burkina Faso.

Authors:  Lea Paré Toe; Raffaella M Ravinetto; Susan Dierickx; Charlotte Gryseels; Halidou Tinto; Noèl Rouamba; Ibrahim Diallo; Yacouba Cissao; Korotimi Bayala; Susanna Hausmann; Joan Muela; Umberto D'Alessandro; Koen Peeters Grietens
Journal:  PLoS One       Date:  2013-11-15       Impact factor: 3.240

  7 in total

北京卡尤迪生物科技股份有限公司 © 2022-2023.