Literature DB >> 23337915

Palliative care for children with cancer.

Elisha Waldman1, Joanne Wolfe.   

Abstract

Over the past two decades, paediatric palliative care has emerged as both a primary approach and as its own medical subspecialty, the overall aim of which is to ease suffering for children with life-threatening illness and their families through a concurrent model of care. However, most discussions have been focused on the transition to palliative care when no realistic hope for cure exists. We believe that, because the course of cancer is so unpredictable, this idea is misleading. Indeed, palliative care is increasingly being recognized as being about not just how to cope with the process of dying, but also about how to engage in living when faced with a life-threatening illness. This article will examine our current understanding of several areas of palliative care, with the ultimate message that palliative care is simply a novel term for the total care of a child and family, an approach that should be applied consistently and concurrently regardless of disease status. By improving familiarity with palliative care and building relationships with palliative care specialists, the paediatric oncology clinician will ensure that the best care possible for children and families is provided, regardless of outcome.

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Year:  2013        PMID: 23337915     DOI: 10.1038/nrclinonc.2012.238

Source DB:  PubMed          Journal:  Nat Rev Clin Oncol        ISSN: 1759-4774            Impact factor:   66.675


  94 in total

1.  Pediatric oncologists' attitudes towards involving adolescents in decision-making concerning research participation.

Authors:  Martine C de Vries; Jan M Wit; Dirk P Engberts; Gertjan J L Kaspers; Evert van Leeuwen
Journal:  Pediatr Blood Cancer       Date:  2010-07-15       Impact factor: 3.167

Review 2.  Been there, done that, wrote the blog: the choices and challenges of supporting adolescents and young adults with cancer.

Authors:  Claire L Treadgold; Aura Kuperberg
Journal:  J Clin Oncol       Date:  2010-03-29       Impact factor: 44.544

Review 3.  Interventions to enhance the spiritual aspects of dying.

Authors:  Harvey Max Chochinov; Beverley J Cann
Journal:  J Palliat Med       Date:  2005       Impact factor: 2.947

4.  End-of-life care preferences of pediatric patients with cancer.

Authors:  Pamela S Hinds; Donna Drew; Linda L Oakes; Maryam Fouladi; Sheri L Spunt; Christopher Church; Wayne L Furman
Journal:  J Clin Oncol       Date:  2005-09-19       Impact factor: 44.544

5.  Care-related distress: a nationwide study of parents who lost their child to cancer.

Authors:  Ulrika Kreicbergs; Unnur Valdimarsdóttir; Erik Onelöv; Olle Björk; Gunnar Steineck; Jan-Inge Henter
Journal:  J Clin Oncol       Date:  2005-09-19       Impact factor: 44.544

6.  Pediatric resident education in palliative care: a needs assessment.

Authors:  Russ C Kolarik; Gena Walker; Robert M Arnold
Journal:  Pediatrics       Date:  2006-06       Impact factor: 7.124

7.  Decision making by parents of children with incurable cancer who opt for enrollment on a phase I trial compared with choosing a do not resuscitate/terminal care option.

Authors:  Scott H Maurer; Pamela S Hinds; Sheri L Spunt; Wayne L Furman; Javier R Kane; Justin N Baker
Journal:  J Clin Oncol       Date:  2010-05-24       Impact factor: 44.544

8.  An assessment of the current state of palliative care education in pediatric hematology/oncology fellowship training.

Authors:  Michael Roth; Dan Wang; Mimi Kim; Karen Moody
Journal:  Pediatr Blood Cancer       Date:  2009-10       Impact factor: 3.167

Review 9.  Integration of palliative care practices into the ongoing care of children with cancer: individualized care planning and coordination.

Authors:  Justin N Baker; Pamela S Hinds; Sheri L Spunt; Raymond C Barfield; Caitlin Allen; Brent C Powell; Lisa H Anderson; Javier R Kane
Journal:  Pediatr Clin North Am       Date:  2008-02       Impact factor: 3.278

10.  Development of a pediatric palliative care team.

Authors:  Peggy Ward-Smith; Jill Burris Linn; Rebecca M Korphage; Kathy Christenson; C J Hutto; Christopher L Hubble
Journal:  J Pediatr Health Care       Date:  2007 Jul-Aug       Impact factor: 1.812

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  18 in total

1.  Differences in parent-provider concordance regarding prognosis and goals of care among children with advanced cancer.

Authors:  Abby R Rosenberg; Liliana Orellana; Tammy I Kang; J Russell Geyer; Chris Feudtner; Veronica Dussel; Joanne Wolfe
Journal:  J Clin Oncol       Date:  2014-09-20       Impact factor: 44.544

Review 2.  Establishing psychosocial palliative care standards for children and adolescents with cancer and their families: An integrative review.

Authors:  Meaghann S Weaver; Katherine E Heinze; Cynthia J Bell; Lori Wiener; Amy M Garee; Katherine P Kelly; Robert L Casey; Anne Watson; Pamela S Hinds
Journal:  Palliat Med       Date:  2015-04-28       Impact factor: 4.762

Review 3.  Understanding death with limited experience in life: dying children's and adolescents' understanding of their own terminal illness and death.

Authors:  Alan T Bates; Julia A Kearney
Journal:  Curr Opin Support Palliat Care       Date:  2015-03       Impact factor: 2.302

4.  A Call for Psychosocial and Palliative Care Training Standards for Pediatric Hematology-Oncology Physicians, A Reply to: Communication, Documentation, and Training Standards in Pediatric Psychosocial Oncology.

Authors:  Lisa M Force; Abby R Rosenberg
Journal:  Pediatr Blood Cancer       Date:  2016-03-25       Impact factor: 3.167

5.  Illness and end-of-life experiences of children with cancer who receive palliative care.

Authors:  Erica C Kaye; Courtney A Gushue; Samantha DeMarsh; Jonathan Jerkins; April Sykes; Zhaohua Lu; Jennifer M Snaman; Lindsay Blazin; Liza-Marie Johnson; Deena R Levine; R Ray Morrison; Justin N Baker
Journal:  Pediatr Blood Cancer       Date:  2017-12-08       Impact factor: 3.167

6.  Parental expectations of support from healthcare providers during pediatric life-threatening illness: A secondary, qualitative analysis.

Authors:  Kim Mooney-Doyle; Maiara Rodrigues Dos Santos; Regina Szylit; Janet A Deatrick
Journal:  J Pediatr Nurs       Date:  2017-06-29       Impact factor: 2.145

7.  Approaching the third decade of paediatric palliative oncology investigation: historical progress and future directions.

Authors:  Abby R Rosenberg; Joanne Wolfe
Journal:  Lancet Child Adolesc Health       Date:  2017-07-24

8.  Opening end-of-life discussions: how to introduce Voicing My CHOiCES™, an advance care planning guide for adolescents and young adults.

Authors:  Sima Zadeh; Maryland Pao; Lori Wiener
Journal:  Palliat Support Care       Date:  2014-03-13

9.  Parental Experiences of Child Participation in a Phase I Pediatric Oncology Clinical Trial: "We Don't Have Time to Waste".

Authors:  Stacey Crane; Joan E Haase; Susan E Hickman
Journal:  Qual Health Res       Date:  2018-04-11

10.  Facing the large variety of life-limiting conditions in children.

Authors:  Jessica I Hoell; Hannah Weber; Jens Warfsmann; Laura Trocan; Gabriele Gagnon; Mareike Danneberg; Stefan Balzer; Thomas Keller; Gisela Janßen; Michaela Kuhlen
Journal:  Eur J Pediatr       Date:  2019-10-17       Impact factor: 3.183

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