Literature DB >> 18242323

Integration of palliative care practices into the ongoing care of children with cancer: individualized care planning and coordination.

Justin N Baker1, Pamela S Hinds, Sheri L Spunt, Raymond C Barfield, Caitlin Allen, Brent C Powell, Lisa H Anderson, Javier R Kane.   

Abstract

Most parents of children with cancer have dual primary goals: a primary cancer-directed goal of cure and a primary comfort-related goal of lessening suffering. Early introduction of palliative care principles and practices into their child's treatment is respectful and supportive of these goals. The Individualized Care Planning and Coordination Model is designed to integrate palliative care principles and practices into the ongoing care of children with cancer. Application of the model helps clinicians to generate a comprehensive individualized care plan that is implemented through Individualized Care Coordination processes as detailed here. Clinicians' strong desire to provide compassionate, competent, and sensitive care to the seriously ill child and the child's family can be effectively translated into clinical practice through these processes.

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Mesh:

Year:  2008        PMID: 18242323      PMCID: PMC2577813          DOI: 10.1016/j.pcl.2007.10.011

Source DB:  PubMed          Journal:  Pediatr Clin North Am        ISSN: 0031-3955            Impact factor:   3.278


  80 in total

Review 1.  Analgesics for the treatment of pain in children.

Authors:  Charles B Berde; Navil F Sethna
Journal:  N Engl J Med       Date:  2002-10-03       Impact factor: 91.245

2.  The Seattle Pediatric Palliative Care Project: effects on family satisfaction and health-related quality of life.

Authors:  Ross M Hays; Jeanette Valentine; Gerri Haynes; J Russel Geyer; Nanci Villareale; Beth McKinstry; James W Varni; Shervin S Churchill
Journal:  J Palliat Med       Date:  2006-06       Impact factor: 2.947

Review 3.  Avoiding iatrogenic harm to patient and family while discussing goals of care near the end of life.

Authors:  Joseph S Weiner; Jesse Roth
Journal:  J Palliat Med       Date:  2006-04       Impact factor: 2.947

4.  Pediatrician characteristics associated with attention to spirituality and religion in clinical practice.

Authors:  Daniel H Grossoehme; Judith R Ragsdale; Christine L McHenry; Celia Thurston; Thomas DeWitt; Larry VandeCreek
Journal:  Pediatrics       Date:  2007-01       Impact factor: 7.124

5.  Complicated grief after bereavement.

Authors:  Keith Hawton
Journal:  BMJ       Date:  2007-05-12

6.  Prognostic disclosure to patients with cancer near the end of life.

Authors:  E B Lamont; N A Christakis
Journal:  Ann Intern Med       Date:  2001-06-19       Impact factor: 25.391

7.  End-of-life care preferences of pediatric patients with cancer.

Authors:  Pamela S Hinds; Donna Drew; Linda L Oakes; Maryam Fouladi; Sheri L Spunt; Christopher Church; Wayne L Furman
Journal:  J Clin Oncol       Date:  2005-09-19       Impact factor: 44.544

8.  Care-related distress: a nationwide study of parents who lost their child to cancer.

Authors:  Ulrika Kreicbergs; Unnur Valdimarsdóttir; Erik Onelöv; Olle Björk; Gunnar Steineck; Jan-Inge Henter
Journal:  J Clin Oncol       Date:  2005-09-19       Impact factor: 44.544

9.  Parental perspectives on end-of-life care in the pediatric intensive care unit.

Authors:  Elaine C Meyer; Jeffrey P Burns; John L Griffith; Robert D Truog
Journal:  Crit Care Med       Date:  2002-01       Impact factor: 7.598

10.  The measurement of symptoms in young children with cancer: the validation of the Memorial Symptom Assessment Scale in children aged 7-12.

Authors:  John J Collins; Tom D Devine; Gina S Dick; Elizabeth A Johnson; Henry A Kilham; C Ross Pinkerton; M M Stevens; Howard T Thaler; Russell K Portenoy
Journal:  J Pain Symptom Manage       Date:  2002-01       Impact factor: 3.612

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  20 in total

1.  End-of-life management in pediatric cancer.

Authors:  Claudia L Epelman
Journal:  Curr Oncol Rep       Date:  2012-04       Impact factor: 5.075

2.  Changes in medical care at a pediatric oncology referral center after placement of a do-not-resuscitate order.

Authors:  Justin N Baker; Javier R Kane; Shesh Rai; Scott C Howard; Pamela S Hinds
Journal:  J Palliat Med       Date:  2010-10-30       Impact factor: 2.947

3.  Race does not influence do-not-resuscitate status or the number or timing of end-of-life care discussions at a pediatric oncology referral center.

Authors:  Justin N Baker; Shesh Rai; Wei Liu; Kumar Srivastava; Javier R Kane; Christine A Zawistowski; Elizabeth A Burghen; Jami S Gattuso; Nancy West; Jennifer Althoff; Adam Funk; Pamela S Hinds
Journal:  J Palliat Med       Date:  2009-01       Impact factor: 2.947

Review 4.  Management of adult and paediatric acute lymphoblastic leukaemia in Asia: resource-stratified guidelines from the Asian Oncology Summit 2013.

Authors:  Allen E J Yeoh; Daryl Tan; Chi-Kong Li; Hiroki Hori; Eric Tse; Ching-Hon Pui
Journal:  Lancet Oncol       Date:  2013-11       Impact factor: 41.316

Review 5.  Challenging issues in pediatric oncology.

Authors:  Ching-Hon Pui; Amar J Gajjar; Javier R Kane; Ibrahim A Qaddoumi; Alberto S Pappo
Journal:  Nat Rev Clin Oncol       Date:  2011-06-28       Impact factor: 66.675

6.  Treatment intensity and symptom burden in hospitalized adolescent and young adult hematopoietic cell transplant recipients at the end of life.

Authors:  J M Snaman; A C Talleur; J Lu; D R Levine; E C Kaye; A Sykes; Z Lu; B M Triplett; J N Baker
Journal:  Bone Marrow Transplant       Date:  2017-11-13       Impact factor: 5.483

7.  Availability of palliative care services for children with cancer in economically diverse regions of the world.

Authors:  Eduardo Delgado; Raymond C Barfield; Justin N Baker; Pamela S Hinds; Jie Yang; Ayda Nambayan; Yuri Quintana; Javier R Kane
Journal:  Eur J Cancer       Date:  2010-06-10       Impact factor: 9.162

8.  Availability and integration of palliative care at US cancer centers.

Authors:  David Hui; Ahmed Elsayem; Maxine De la Cruz; Ann Berger; Donna S Zhukovsky; Shana Palla; Avery Evans; Nada Fadul; J Lynn Palmer; Eduardo Bruera
Journal:  JAMA       Date:  2010-03-17       Impact factor: 56.272

Review 9.  Palliative care for children with cancer.

Authors:  Elisha Waldman; Joanne Wolfe
Journal:  Nat Rev Clin Oncol       Date:  2013-01-22       Impact factor: 66.675

10.  Parental Experiences of Child Participation in a Phase I Pediatric Oncology Clinical Trial: "We Don't Have Time to Waste".

Authors:  Stacey Crane; Joan E Haase; Susan E Hickman
Journal:  Qual Health Res       Date:  2018-04-11
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