Literature DB >> 22699154

Customers or research participants? Guidance for research practices in commercialization of personal genomics.

Sara L Tobin1, Mildred K Cho, Sandra S-J Lee, David C Magnus, Megan Allyse, Kelly E Ormond, Nanibaa' A Garrison.   

Abstract

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Year:  2012        PMID: 22699154      PMCID: PMC5289753          DOI: 10.1038/gim.2012.64

Source DB:  PubMed          Journal:  Genet Med        ISSN: 1098-3600            Impact factor:   8.822


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  5 in total

1.  Strangers at the benchside: research ethics consultation.

Authors:  Mildred K Cho; Sara L Tobin; Henry T Greely; Jennifer McCormick; Angie Boyce; David Magnus
Journal:  Am J Bioeth       Date:  2008-03       Impact factor: 11.229

2.  Web-based, participant-driven studies yield novel genetic associations for common traits.

Authors:  Nicholas Eriksson; J Michael Macpherson; Joyce Y Tung; Lawrence S Hon; Brian Naughton; Serge Saxonov; Linda Avey; Anne Wojcicki; Itsik Pe'er; Joanna Mountain
Journal:  PLoS Genet       Date:  2010-06-24       Impact factor: 5.917

3.  Consent and internet-enabled human genomics.

Authors:  Greg Gibson; Gregory P Copenhaver
Journal:  PLoS Genet       Date:  2010-06-24       Impact factor: 5.917

4.  Web-based genome-wide association study identifies two novel loci and a substantial genetic component for Parkinson's disease.

Authors:  Chuong B Do; Joyce Y Tung; Elizabeth Dorfman; Amy K Kiefer; Emily M Drabant; Uta Francke; Joanna L Mountain; Samuel M Goldman; Caroline M Tanner; J William Langston; Anne Wojcicki; Nicholas Eriksson
Journal:  PLoS Genet       Date:  2011-06-23       Impact factor: 5.917

5.  Recreational genomics; what's in it for you?

Authors:  James P Evans
Journal:  Genet Med       Date:  2008-10       Impact factor: 8.822

  5 in total
  6 in total

1.  23 and Me, We, and You: direct-to-consumer genetics, intellectual property, and informed consent.

Authors:  Megan Allyse
Journal:  Trends Biotechnol       Date:  2012-12-11       Impact factor: 19.536

2.  Integrating Rules for Genomic Research, Clinical Care, Public Health Screening and DTC Testing: Creating Translational Law for Translational Genomics.

Authors:  Susan M Wolf; Pilar N Ossorio; Susan A Berry; Henry T Greely; Amy L McGuire; Michelle A Penny; Sharon F Terry
Journal:  J Law Med Ethics       Date:  2020-03       Impact factor: 1.718

3.  Flexible positions, managed hopes: the promissory bioeconomy of a whole genome sequencing cancer study.

Authors:  Rachel Haase; Marsha Michie; Debra Skinner
Journal:  Soc Sci Med       Date:  2015-02-13       Impact factor: 4.634

4.  Best ethical practices for clinicians and laboratories in the provision of noninvasive prenatal testing.

Authors:  M A Allyse; L C Sayres; M Havard; J S King; H T Greely; L Hudgins; J Taylor; M E Norton; M K Cho; D Magnus; K E Ormond
Journal:  Prenat Diagn       Date:  2013-05-21       Impact factor: 3.050

5.  Personal genome testing in medical education: student experiences with genotyping in the classroom.

Authors:  Simone Lucia Vernez; Keyan Salari; Kelly E Ormond; Sandra Soo-Jin Lee
Journal:  Genome Med       Date:  2013-03-19       Impact factor: 11.117

6.  Ethical issues in consumer genome sequencing: Use of consumers' samples and data.

Authors:  Emilia Niemiec; Heidi Carmen Howard
Journal:  Appl Transl Genom       Date:  2016-02-01
  6 in total

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