Literature DB >> 23215942

Response to open peer commentaries on "Genomic inheritances: disclosing individual research results from whole-exome sequencing to deceased participants' relatives".

Sara Chandros Hull1, Ben Chan, Leslie G Biesecker, Benjamin E Berkman.   

Abstract

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Year:  2012        PMID: 23215942      PMCID: PMC4142508          DOI: 10.1080/15265161.2012.739836

Source DB:  PubMed          Journal:  Am J Bioeth        ISSN: 1526-5161            Impact factor:   11.229


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  9 in total

1.  Genomic inheritances: disclosing individual research results from whole-exome sequencing to deceased participants' relatives.

Authors:  Ben Chan; Flavia M Facio; Haley Eidem; Sara Chandros Hull; Leslie G Biesecker; Benjamin E Berkman
Journal:  Am J Bioeth       Date:  2012       Impact factor: 11.229

2.  Disclosure/disruption: considering why not to disclose genetic information after death.

Authors:  Kathleen Galvin; Marla L Clayman
Journal:  Am J Bioeth       Date:  2012       Impact factor: 11.229

3.  Risks to relatives in genomic research: a duty to warn?

Authors:  Yvonne Bombard; Kenneth Offit; Mark E Robson
Journal:  Am J Bioeth       Date:  2012       Impact factor: 11.229

4.  Clinically significant? Depends on whom you ask.

Authors:  Liza-Marie Johnson; Christopher L Church; Michael F Walsh; Justin N Baker
Journal:  Am J Bioeth       Date:  2012       Impact factor: 11.229

5.  Disclosing decedents' research results to relatives violates the HIPAA Privacy Rule.

Authors:  Mark A Rothstein
Journal:  Am J Bioeth       Date:  2012       Impact factor: 11.229

6.  Disclosing individual genetic research results to deceased participants' relatives by means of a qualified disclosure policy.

Authors:  Annelien L Bredenoord; Johannes J M van Delden
Journal:  Am J Bioeth       Date:  2012       Impact factor: 11.229

7.  The ever-evolving concept of clinical significance and the potential for sins of omission in genetic research.

Authors:  Gregory Costain; Anne S Bassett
Journal:  Am J Bioeth       Date:  2012       Impact factor: 11.229

8.  Disclosing results to genomic research participants: differences that matter.

Authors:  Alessandro Blasimme; Alexandra Soulier; Sophie Julia; Samantha Leonard; Anne Cambon-Thomsen
Journal:  Am J Bioeth       Date:  2012       Impact factor: 11.229

9.  Beneficence, clinical urgency, and the return of individual research results to relatives.

Authors:  Stephanie M Fullerton; Susan Brown Trinidad; Gail P Jarvik; Wylie Burke
Journal:  Am J Bioeth       Date:  2012       Impact factor: 11.229

  9 in total

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