Literature DB >> 22974019

Disclosing individual genetic research results to deceased participants' relatives by means of a qualified disclosure policy.

Annelien L Bredenoord1, Johannes J M van Delden.   

Abstract

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Year:  2012        PMID： 22974019     DOI： 10.1080/15265161.2012.699145

Source DB:  PubMed          Journal:  Am J Bioeth        ISSN： 1526-5161            Impact factor:   11.229


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  9 in total

1.  Returning a Research Participant's Genomic Results to Relatives: Analysis and Recommendations.

Authors:  Susan M Wolf; Rebecca Branum; Barbara A Koenig; Gloria M Petersen; Susan A Berry; Laura M Beskow; Mary B Daly; Conrad V Fernandez; Robert C Green; Bonnie S LeRoy; Noralane M Lindor; P Pearl O'Rourke; Carmen Radecki Breitkopf; Mark A Rothstein; Brian Van Ness; Benjamin S Wilfond
Journal:  J Law Med Ethics       Date:  2015       Impact factor: 1.718

2.  Patients' Choices for Return of Exome Sequencing Results to Relatives in the Event of Their Death.

Authors:  Laura M Amendola; Martha Horike-Pyne; Susan B Trinidad; Stephanie M Fullerton; Barbara J Evans; Wylie Burke; Gail P Jarvik
Journal:  J Law Med Ethics       Date:  2015       Impact factor: 1.718

Review 3.  Next-Generation Sequencing and the Return of Results.

Authors:  Bartha Maria Knoppers; Minh Thu Nguyen; Karine Sénécal; Anne Marie Tassé; Ma'n H Zawati
Journal:  Cold Spring Harb Perspect Med       Date:  2016-10-03       Impact factor: 6.915

4.  Response to open peer commentaries on "Genomic inheritances: disclosing individual research results from whole-exome sequencing to deceased participants' relatives".

Authors:  Sara Chandros Hull; Ben Chan; Leslie G Biesecker; Benjamin E Berkman
Journal:  Am J Bioeth       Date:  2012       Impact factor: 11.229

5.  Pragmatic Tools for Sharing Genomic Research Results with the Relatives of Living and Deceased Research Participants.

Authors:  Susan M Wolf; Emily Scholtes; Barbara A Koenig; Gloria M Petersen; Susan A Berry; Laura M Beskow; Mary B Daly; Conrad V Fernandez; Robert C Green; Bonnie S LeRoy; Noralane M Lindor; P Pearl O'Rourke; Carmen Radecki Breitkopf; Mark A Rothstein; Brian Van Ness; Benjamin S Wilfond
Journal:  J Law Med Ethics       Date:  2018-03-27       Impact factor: 1.718

6.  Biobank participants' preferences for disclosure of genetic research results: perspectives from the OurGenes, OurHealth, OurCommunity project.

Authors:  Nicole L Allen; Elizabeth W Karlson; Susan Malspeis; Bing Lu; Christine E Seidman; Lisa Soleymani Lehmann
Journal:  Mayo Clin Proc       Date:  2014-06       Impact factor: 7.616

7.  Should Researchers Offer Results to Family Members of Cancer Biobank Participants? A Mixed-Methods Study of Proband and Family Preferences.

Authors:  Deborah R Gordon; Carmen Radecki Breitkopf; Marguerite Robinson; Wesley O Petersen; Jason S Egginton; Kari G Chaffee; Gloria M Petersen; Susan M Wolf; Barbara A Koenig
Journal:  AJOB Empir Bioeth       Date:  2018-12-31

8.  Stakeholders' perspectives on the post-mortem use of genetic and health-related data for research: a systematic review.

Authors:  Marieke A R Bak; M Corrette Ploem; Hakan Ateşyürek; Marieke T Blom; Hanno L Tan; Dick L Willems
Journal:  Eur J Hum Genet       Date:  2019-09-16       Impact factor: 4.246

9.  Sickle Cell Disease Genomics of Africa (SickleGenAfrica) Network: ethical framework and initial qualitative findings from community engagement in Ghana, Nigeria and Tanzania.

Authors:  Kofi A Anie; Edeghonghon Olayemi; Vivian Paintsil; Ellis Owusu-Dabo; Titilope Adenike Adeyemo; Mahmoud U Sani; Najibah Aliyu Galadanci; Obiageli Nnodu; Furahini Tluway; David Nana Adjei; Peter Mensah; Joseph Sarfo-Antwi; Henry Nwokobia; Awwal Gambo; Adebola Benjamin; Arafa Salim; Judith A Osae-Larbi; Solomon Fiifi Ofori-Acquah
Journal:  BMJ Open       Date:  2021-07-23       Impact factor: 2.692
  9 in total

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