Literature DB >> 22974022

Disclosing decedents' research results to relatives violates the HIPAA Privacy Rule.

Mark A Rothstein1.   

Abstract

Mesh：

Year:  2012        PMID： 22974022     DOI： 10.1080/15265161.2012.699588

Source DB:  PubMed          Journal:  Am J Bioeth        ISSN： 1526-5161            Impact factor:   11.229


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  6 in total

1.  Preferences Regarding Return of Genomic Results to Relatives of Research Participants, Including after Participant Death: Empirical Results from a Cancer Biobank.

Authors:  Carmen Radecki Breitkopf; Gloria M Petersen; Susan M Wolf; Kari G Chaffee; Marguerite E Robinson; Deborah R Gordon; Noralane M Lindor; Barbara A Koenig
Journal:  J Law Med Ethics       Date:  2015       Impact factor: 1.718

2.  Returning a Research Participant's Genomic Results to Relatives: Analysis and Recommendations.

Authors:  Susan M Wolf; Rebecca Branum; Barbara A Koenig; Gloria M Petersen; Susan A Berry; Laura M Beskow; Mary B Daly; Conrad V Fernandez; Robert C Green; Bonnie S LeRoy; Noralane M Lindor; P Pearl O'Rourke; Carmen Radecki Breitkopf; Mark A Rothstein; Brian Van Ness; Benjamin S Wilfond
Journal:  J Law Med Ethics       Date:  2015       Impact factor: 1.718

Review 3.  Return of individual research results and incidental findings: facing the challenges of translational science.

Authors:  Susan M Wolf
Journal:  Annu Rev Genomics Hum Genet       Date:  2013-07-15       Impact factor: 8.929

Review 4.  Next-Generation Sequencing and the Return of Results.

Authors:  Bartha Maria Knoppers; Minh Thu Nguyen; Karine Sénécal; Anne Marie Tassé; Ma'n H Zawati
Journal:  Cold Spring Harb Perspect Med       Date:  2016-10-03       Impact factor: 6.915

5.  Response to open peer commentaries on "Genomic inheritances: disclosing individual research results from whole-exome sequencing to deceased participants' relatives".

Authors:  Sara Chandros Hull; Ben Chan; Leslie G Biesecker; Benjamin E Berkman
Journal:  Am J Bioeth       Date:  2012       Impact factor: 11.229

6.  Pragmatic Tools for Sharing Genomic Research Results with the Relatives of Living and Deceased Research Participants.

Authors:  Susan M Wolf; Emily Scholtes; Barbara A Koenig; Gloria M Petersen; Susan A Berry; Laura M Beskow; Mary B Daly; Conrad V Fernandez; Robert C Green; Bonnie S LeRoy; Noralane M Lindor; P Pearl O'Rourke; Carmen Radecki Breitkopf; Mark A Rothstein; Brian Van Ness; Benjamin S Wilfond
Journal:  J Law Med Ethics       Date:  2018-03-27       Impact factor: 1.718
  6 in total

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