Literature DB >> 22974018

Beneficence, clinical urgency, and the return of individual research results to relatives.

Stephanie M Fullerton1, Susan Brown Trinidad, Gail P Jarvik, Wylie Burke.   

Abstract

Entities:  

Mesh：

Year:  2012        PMID： 22974018      PMCID： PMC3712902          DOI： 10.1080/15265161.2012.699153

Source DB:  PubMed          Journal:  Am J Bioeth        ISSN： 1526-5161            Impact factor:   11.229


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  8 in total

1.  Familial communication of research results: a need to know?

Authors:  Lee Black; Kelly A McClellan
Journal:  J Law Med Ethics       Date:  2011       Impact factor: 1.718

Review 2.  Communicating genetic risk information within families: a review.

Authors:  Mel Wiseman; Caroline Dancyger; Susan Michie
Journal:  Fam Cancer       Date:  2010-12       Impact factor: 2.375

3.  Feedback of individual genetic results to research participants: in favor of a qualified disclosure policy.

Authors:  Annelien L Bredenoord; N Charlotte Onland-Moret; Johannes J M Van Delden
Journal:  Hum Mutat       Date:  2011-06-30       Impact factor: 4.878

4.  Genomic inheritances: disclosing individual research results from whole-exome sequencing to deceased participants' relatives.

Authors:  Ben Chan; Flavia M Facio; Haley Eidem; Sara Chandros Hull; Leslie G Biesecker; Benjamin E Berkman
Journal:  Am J Bioeth       Date:  2012       Impact factor: 11.229

5.  Offering individual genetic research results: context matters.

Authors:  Laura M Beskow; Wylie Burke
Journal:  Sci Transl Med       Date:  2010-06-30       Impact factor: 17.956

Review 6.  Management of medullary thyroid carcinoma and MEN2 syndromes in childhood.

Authors:  Steven G Waguespack; Thereasa A Rich; Nancy D Perrier; Camilo Jimenez; Gilbert J Cote
Journal:  Nat Rev Endocrinol       Date:  2011-08-23       Impact factor: 43.330

7.  Ethical and practical guidelines for reporting genetic research results to study participants: updated guidelines from a National Heart, Lung, and Blood Institute working group.

Authors:  Richard R Fabsitz; Amy McGuire; Richard R Sharp; Mona Puggal; Laura M Beskow; Leslie G Biesecker; Ebony Bookman; Wylie Burke; Esteban Gonzalez Burchard; George Church; Ellen Wright Clayton; John H Eckfeldt; Conrad V Fernandez; Rebecca Fisher; Stephanie M Fullerton; Stacey Gabriel; Francine Gachupin; Cynthia James; Gail P Jarvik; Rick Kittles; Jennifer R Leib; Christopher O'Donnell; P Pearl O'Rourke; Laura Lyman Rodriguez; Sheri D Schully; Alan R Shuldiner; Rebecca K F Sze; Joseph V Thakuria; Susan M Wolf; Gregory L Burke
Journal:  Circ Cardiovasc Genet       Date:  2010-12

8.  Deploying whole genome sequencing in clinical practice and public health: meeting the challenge one bin at a time.

Authors:  Jonathan S Berg; Muin J Khoury; James P Evans
Journal:  Genet Med       Date:  2011-06       Impact factor: 8.822
  8 in total
  5 in total

1.  Returning a Research Participant's Genomic Results to Relatives: Analysis and Recommendations.

Authors:  Susan M Wolf; Rebecca Branum; Barbara A Koenig; Gloria M Petersen; Susan A Berry; Laura M Beskow; Mary B Daly; Conrad V Fernandez; Robert C Green; Bonnie S LeRoy; Noralane M Lindor; P Pearl O'Rourke; Carmen Radecki Breitkopf; Mark A Rothstein; Brian Van Ness; Benjamin S Wilfond
Journal:  J Law Med Ethics       Date:  2015       Impact factor: 1.718

2.  Patients' Choices for Return of Exome Sequencing Results to Relatives in the Event of Their Death.

Authors:  Laura M Amendola; Martha Horike-Pyne; Susan B Trinidad; Stephanie M Fullerton; Barbara J Evans; Wylie Burke; Gail P Jarvik
Journal:  J Law Med Ethics       Date:  2015       Impact factor: 1.718

3.  Response to open peer commentaries on "Genomic inheritances: disclosing individual research results from whole-exome sequencing to deceased participants' relatives".

Authors:  Sara Chandros Hull; Ben Chan; Leslie G Biesecker; Benjamin E Berkman
Journal:  Am J Bioeth       Date:  2012       Impact factor: 11.229

4.  Family decision maker perspectives on the return of genetic results in biobanking research.

Authors:  Laura A Siminoff; Heather M Traino; Maghboeba Mosavel; Laura Barker; Glencora Gudger; Anita Undale
Journal:  Genet Med       Date:  2015-04-09       Impact factor: 8.822

5.  Perspectives on returning individual and aggregate genomic research results to study participants and communities in Kenya: a qualitative study.

Authors:  Isaac Kisiangani; Shukri F Mohamed; Catherine Kyobutungi; Paulina Tindana; Anita Ghansah; Michele Ramsay; Gershim Asiki
Journal:  BMC Med Ethics       Date:  2022-03-18       Impact factor: 2.834
  5 in total

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