Literature DB >> 23065418

All stories are not alike: a purpose-, content-, and valence-based taxonomy of patient narratives in decision aids.

Victoria A Shaffer1, Brian J Zikmund-Fisher2.   

Abstract

The use of patient stories in decision aids is a highly controversial practice. However, the resulting debates and research have yielded little consensus about the impact of patient stories due to vague operational definitions of narratives. In this article, we argue that narratives are not homogeneous in either content or effect and hence should not be considered a single construct in research. The purpose of this article is to provide a taxonomy that guides both the development of decision aids and future research on this topic. We define three dimensions of narratives that are likely to moderate their impact on decision making: 1) the purpose of the narrative, 2) the content of the message, and 3) the evaluative valence, or overall tone, of the message. In addition, we describe predicted effects of different types of narratives on decision making and discuss their potential interactions. Our taxonomy provides a framework that will allow for the precise documentation of different narrative types, the use of appropriate outcome measures, and a systematic evaluation of narratives in all types of decision aids. Failures to recognize the complex structure of narratives will result both in research that does little to inform our understanding of the impact of patient stories and in the use of narratives in patient education materials that have unintended consequences on both decision processes and behavior.

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Year:  2012        PMID: 23065418     DOI: 10.1177/0272989X12463266

Source DB:  PubMed          Journal:  Med Decis Making        ISSN: 0272-989X            Impact factor:   2.583


  52 in total

1.  Evidence-based narratives to improve recall of opioid prescribing guidelines: a randomized experiment.

Authors:  Austin S Kilaru; Jeanmarie Perrone; Catherine L Auriemma; Frances S Shofer; Frances K Barg; Zachary F Meisel
Journal:  Acad Emerg Med       Date:  2014-03       Impact factor: 3.451

2.  Designing Normative Messages About Active Surveillance for Men With Localized Prostate Cancer.

Authors:  Robert J Volk; Gianna T Kinsman; Yen-Chi L Le; Paul Swank; Jennifer Blumenthal-Barby; Stephanie L McFall; Theresa L Byrd; Patricia Dolan Mullen; Scott B Cantor
Journal:  J Health Commun       Date:  2015-06-11

3.  Using narratives and storytelling to communicate science with nonexpert audiences.

Authors:  Michael F Dahlstrom
Journal:  Proc Natl Acad Sci U S A       Date:  2014-09-15       Impact factor: 11.205

4.  Effects of Anti- Versus Pro-Vaccine Narratives on Responses by Recipients Varying in Numeracy: A Cross-sectional Survey-Based Experiment.

Authors:  Wändi Bruine de Bruin; Annika Wallin; Andrew M Parker; JoNell Strough; Janel Hanmer
Journal:  Med Decis Making       Date:  2017-05-05       Impact factor: 2.583

Review 5.  On the Usefulness of Narratives: An Interdisciplinary Review and Theoretical Model.

Authors:  Victoria A Shaffer; Elizabeth S Focella; Andrew Hathaway; Laura D Scherer; Brian J Zikmund-Fisher
Journal:  Ann Behav Med       Date:  2018-04-19

6.  Effective vaccine communication during the disneyland measles outbreak.

Authors:  David A Broniatowski; Karen M Hilyard; Mark Dredze
Journal:  Vaccine       Date:  2016-05-11       Impact factor: 3.641

7.  Preference for Deliberation and Perceived Usefulness of Standard- and Narrative-Style Leaflet Designs: Implications for Equitable Cancer-Screening Communication.

Authors:  Kathryn A Robb; Lauren P Gatting; Christian von Wagner; Lesley M McGregor
Journal:  Ann Behav Med       Date:  2020-02-21

8.  Veterans Like Me: Formative evaluation of a patient decision aid design.

Authors:  Bryan Gibson; Jorie Butler; Katherine Doyon; Lee Ellington; Bruce E Bray; Qing Zeng
Journal:  J Biomed Inform       Date:  2016-09-10       Impact factor: 6.317

9.  Breaking Narrative Ground: Innovative Methods for Rigorously Eliciting and Assessing Patient Narratives.

Authors:  Rachel Grob; Mark Schlesinger; Andrew M Parker; Dale Shaller; Lacey Rose Barre; Steven C Martino; Melissa L Finucane; Lise Rybowski; Jennifer L Cerully
Journal:  Health Serv Res       Date:  2016-04-29       Impact factor: 3.402

10.  Development of a Decision Aid for Patients With Advanced Heart Failure Considering a Destination Therapy Left Ventricular Assist Device.

Authors:  Jocelyn S Thompson; Daniel D Matlock; Colleen K McIlvennan; Amy R Jenkins; Larry A Allen
Journal:  JACC Heart Fail       Date:  2015-12       Impact factor: 12.035

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