Literature DB >> 22971035

Autism spectrum disorders: a review of measures for clinical, health services and cost-effectiveness applications.

Nalin Payakachat1, J Mick Tilford, Erica Kovacs, Karen Kuhlthau.   

Abstract

Autism spectrum disorders (ASDs) are characterized by impairments in social interaction, communication and behavioral functioning that can affect the health-related quality-of-life outcomes of the affected child and the family. ASDs have increased in prevalence, leading to a demand for improved understanding of the comparative effectiveness of different pharmacologic, behavioral, medical and alternative treatments for children as well as systems for providing services. This review describes outcome instruments that can be used for clinical, health services and cost-effectiveness applications. There is a pressing need to identify the most appropriate instruments for measuring health-related quality-of-life outcomes in this population. Studies evaluating the cost-effectiveness of interventions or treatments for children with ASDs using the cost per quality-adjusted life year metric are lacking. Researchers have the potential to contribute greatly to the field of autism by quantifying outcomes that can inform optimal treatment strategies.

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Year:  2012        PMID: 22971035      PMCID: PMC3502071          DOI: 10.1586/erp.12.29

Source DB:  PubMed          Journal:  Expert Rev Pharmacoecon Outcomes Res        ISSN: 1473-7167            Impact factor:   2.217


  101 in total

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Review 2.  The Child Behavior Checklist and related forms for assessing behavioral/emotional problems and competencies.

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3.  Genetic structure of reciprocal social behavior.

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Journal:  Am J Psychiatry       Date:  2000-12       Impact factor: 18.112

4.  Atypicality, intelligence, and age: a conceptual model of autistic spectrum disorder.

Authors:  James Coplan
Journal:  Dev Med Child Neurol       Date:  2003-10       Impact factor: 5.449

5.  PedsQL 4.0: reliability and validity of the Pediatric Quality of Life Inventory version 4.0 generic core scales in healthy and patient populations.

Authors:  J W Varni; M Seid; P S Kurtin
Journal:  Med Care       Date:  2001-08       Impact factor: 2.983

6.  The autism diagnostic observation schedule-generic: a standard measure of social and communication deficits associated with the spectrum of autism.

Authors:  C Lord; S Risi; L Lambrecht; E H Cook; B L Leventhal; P C DiLavore; A Pickles; M Rutter
Journal:  J Autism Dev Disord       Date:  2000-06

7.  Varieties of repetitive behavior in autism: comparisons to mental retardation.

Authors:  J W Bodfish; F J Symons; D E Parker; M H Lewis
Journal:  J Autism Dev Disord       Date:  2000-06

8.  Lamotrigine therapy for autistic disorder: a randomized, double-blind, placebo-controlled trial.

Authors:  K M Belsito; P A Law; K S Kirk; R J Landa; A W Zimmerman
Journal:  J Autism Dev Disord       Date:  2001-04

9.  Mutual concurrent validity of the child health questionnaire and the health utilities index: an exploratory analysis using survivors of childhood cancer.

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10.  Involvement in caregiving and adjustment to death of a spouse: findings from the caregiver health effects study.

Authors:  R Schulz; S R Beach; B Lind; L M Martire; B Zdaniuk; C Hirsch; S Jackson; L Burton
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  23 in total

1.  Cost-Effectiveness Analysis Comparing Pre-diagnosis Autism Spectrum Disorder (ASD)-Targeted Intervention with Ontario's Autism Intervention Program.

Authors:  Melanie Penner; Meera Rayar; Naazish Bashir; S Wendy Roberts; Rebecca L Hancock-Howard; Peter C Coyte
Journal:  J Autism Dev Disord       Date:  2015-09

2.  Predicting health utilities for children with autism spectrum disorders.

Authors:  Nalin Payakachat; J Mick Tilford; Karen A Kuhlthau; N Job van Exel; Erica Kovacs; Jayne Bellando; Jeffrey M Pyne; Werner B F Brouwer
Journal:  Autism Res       Date:  2014-09-25       Impact factor: 5.216

Review 3.  Estimates of utility weights in hemophilia: implications for cost-utility analysis of clotting factor prophylaxis.

Authors:  Scott D Grosse; Shraddha S Chaugule; Joel W Hay
Journal:  Expert Rev Pharmacoecon Outcomes Res       Date:  2015-01-14       Impact factor: 2.217

Review 4.  Phelan-McDermid Syndrome and SHANK3: Implications for Treatment.

Authors:  Jesse L Costales; Alexander Kolevzon
Journal:  Neurotherapeutics       Date:  2015-07       Impact factor: 7.620

5.  A Computational Account of Optimizing Social Predictions Reveals That Adolescents Are Conservative Learners in Social Contexts.

Authors:  Gabriela Rosenblau; Christoph W Korn; Kevin A Pelphrey
Journal:  J Neurosci       Date:  2017-12-18       Impact factor: 6.167

6.  Treatment for Sleep Problems in Children with Autism and Caregiver Spillover Effects.

Authors:  J Mick Tilford; Nalin Payakachat; Karen A Kuhlthau; Jeffrey M Pyne; Erica Kovacs; Jayne Bellando; D Keith Williams; Werner B F Brouwer; Richard E Frye
Journal:  J Autism Dev Disord       Date:  2015-11

Review 7.  Memantine for autism spectrum disorder.

Authors:  Amanda Brignell; Catherine Marraffa; Katrina Williams; Tamara May
Journal:  Cochrane Database Syst Rev       Date:  2022-08-25

8.  National Database for Autism Research (NDAR): Big Data Opportunities for Health Services Research and Health Technology Assessment.

Authors:  Nalin Payakachat; J Mick Tilford; Wendy J Ungar
Journal:  Pharmacoeconomics       Date:  2016-02       Impact factor: 4.981

9.  Dynamic Eye Tracking as a Predictor and Outcome Measure of Social Skills Intervention in Adolescents and Adults with Autism Spectrum Disorder.

Authors:  Rachel K Greene; Julia Parish-Morris; Miranda Sullivan; Jessica L Kinard; Maya G Mosner; Lauren M Turner-Brown; David L Penn; Christopher A Wiesen; Ashley A Pallathra; Edward S Brodkin; Robert T Schultz; Gabriel S Dichter
Journal:  J Autism Dev Disord       Date:  2021-04

10.  Conceptualisation and development of a quality of life measure for parents of children with autism spectrum disorder.

Authors:  Valsamma Eapen; Rudi Crnčec; Amelia Walter; Kwok Ping Tay
Journal:  Autism Res Treat       Date:  2014-03-20
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