Literature DB >> 22707880

Stakeholder participation in comparative effectiveness research: defining a framework for effective engagement.

Patricia A Deverka1, Danielle C Lavallee, Priyanka J Desai, Laura C Esmail, Scott D Ramsey, David L Veenstra, Sean R Tunis.   

Abstract

AIMS: Stakeholder engagement is fundamental to comparative effectiveness research (CER), but lacks consistent terminology. This paper aims to define stakeholder engagement and present a conceptual model for involving stakeholders in CER. MATERIALS #ENTITYSTARTX00026;
METHODS: The definitions and model were developed from a literature search, expert input and experience with the Center for Comparative Effectiveness Research in Cancer Genomics, a proof-of-concept platform for stakeholder involvement in priority setting and CER study design.
RESULTS: Definitions for stakeholder and stakeholder engagement reflect the target constituencies and their role in CER. The 'analytic-deliberative' conceptual model for stakeholder engagement illustrates the inputs, methods and outputs relevant to CER. The model differentiates methods at each stage of the project; depicts the relationship between components; and identifies outcome measures for evaluation of the process.
CONCLUSION: While the definitions and model require testing before being broadly adopted, they are an important foundational step and will be useful for investigators, funders and stakeholder groups interested in contributing to CER.

Entities:  

Year:  2012        PMID: 22707880      PMCID: PMC3371639          DOI: 10.2217/cer.12.7

Source DB:  PubMed          Journal:  J Comp Eff Res        ISSN: 2042-6305            Impact factor:   1.744


  35 in total

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Review 5.  Priority setting for health technology assessments: a systematic review of current practical approaches.

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6.  Stakeholder engagement opportunities in systematic reviews: knowledge transfer for policy and practice.

Authors:  Kiera Keown; Dwayne Van Eerd; Emma Irvin
Journal:  J Contin Educ Health Prof       Date:  2008       Impact factor: 1.355

7.  Comparative effectiveness research and evidence-based health policy: experience from four countries.

Authors:  Kalipso Chalkidou; Sean Tunis; Ruth Lopert; Lise Rochaix; Peter T Sawicki; Mona Nasser; Bertrand Xerri
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Review 8.  Community-based participatory research: a review of the literature with strategies for community engagement.

Authors:  Madeleine U Shalowitz; Anthony Isacco; Nora Barquin; Elizabeth Clark-Kauffman; Patti Delger; Devon Nelson; Anthony Quinn; Kimberly A Wagenaar
Journal:  J Dev Behav Pediatr       Date:  2009-08       Impact factor: 2.225

9.  Can the impact of public involvement on research be evaluated? A mixed methods study.

Authors:  Rosemary Barber; Jonathan D Boote; Glenys D Parry; Cindy L Cooper; Philippa Yeeles; Sarah Cook
Journal:  Health Expect       Date:  2011-02-17       Impact factor: 3.377

10.  What is a good public participation process? Five perspectives from the public.

Authors:  T Webler; S Tuler; R Krueger
Journal:  Environ Manage       Date:  2001-03       Impact factor: 3.266

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  113 in total

1.  Reflecting on backward design for knowledge translation Comment on "A call for a backward design to knowledge translation".

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Review 2.  Lessons Learned from Developing a Patient Engagement Panel: An OCHIN Report.

Authors:  Jill Arkind; Sonja Likumahuwa-Ackman; Nate Warren; Kay Dickerson; Lynn Robbins; Kathy Norman; Jennifer E DeVoe
Journal:  J Am Board Fam Med       Date:  2015 Sep-Oct       Impact factor: 2.657

3.  IMPACCT Kids' Care: a real-world example of stakeholder involvement in comparative effectiveness research.

Authors:  Sonja Likumahuwa-Ackman; Heather Angier; Aleksandra Sumic; Rose L Harding; Erika K Cottrell; Deborah J Cohen; Christine A Nelson; Timothy E Burdick; Lorraine S Wallace; Charles Gallia; Jennifer E DeVoe
Journal:  J Comp Eff Res       Date:  2015-08       Impact factor: 1.744

Review 4.  Framework for Advancing the Reporting of Patient Engagement in Rheumatology Research Projects.

Authors:  Clayon B Hamilton; Jenny C Leese; Alison M Hoens; Linda C Li
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Journal:  J Comp Eff Res       Date:  2018-06-01       Impact factor: 1.744

6.  Researcher readiness for participating in community-engaged dissemination and implementation research: a conceptual framework of core competencies.

Authors:  Christopher M Shea; Tiffany L Young; Byron J Powell; Catherine Rohweder; Zoe K Enga; Jennifer E Scott; Lori Carter-Edwards; Giselle Corbie-Smith
Journal:  Transl Behav Med       Date:  2017-09       Impact factor: 3.046

7.  Querying stakeholders to inform comparative effectiveness research.

Authors:  Yoon Duk Hong; Daisuke Goto; C Daniel Mullins
Journal:  J Comp Eff Res       Date:  2017-05-09       Impact factor: 1.744

Review 8.  Stakeholder assessment of comparative effectiveness research needs for Medicaid populations.

Authors:  Michael A Fischer; Cora Allen-Coleman; Stephen F Farrell; Sebastian Schneeweiss
Journal:  J Comp Eff Res       Date:  2015-09-21       Impact factor: 1.744

9.  Facilitating comparative effectiveness research in cancer genomics: evaluating stakeholder perceptions of the engagement process.

Authors:  Patricia A Deverka; Danielle C Lavallee; Priyanka J Desai; Joanne Armstrong; Mark Gorman; Leah Hole-Curry; James O'Leary; B W Ruffner; John Watkins; David L Veenstra; Laurence H Baker; Joseph M Unger; Scott D Ramsey
Journal:  J Comp Eff Res       Date:  2012-07       Impact factor: 1.744

10.  Engagement and partnership with peer mentors in the development of the "Positive and Healthy Living Program": a process paper.

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Journal:  AIDS Care       Date:  2019-02-01
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