Literature DB >> 29856238

Development of a veteran engagement toolkit for researchers.

Nicole A Brys1, Jeff Whittle2, Nasia Safdar1,3.   

Abstract

AIM: Engaging patients in the planning, implementation and dissemination of research can increase the credibility and relevance of results and lead to higher quality, more patient-centered care. Veterans have unique experiences and healthcare needs, making their input on research related to their care particularly important. However, existing veteran engagement resources primarily focus on veterans who receive care through the Veterans Health Administration (VA). This excludes those veterans - the majority - who do not use the VA for healthcare.
METHODS: To address this gap, we developed a veteran engagement toolkit that was informed by the work of both VA and non-VA researchers across the USA.
RESULTS: The resulting toolkit provides guidance on essential engagement activities relevant to researchers in a variety of settings. 
Conclusion:  Investigators wishing to engage the veteran community may benefit from the experience and lessons summarized in this veteran-informed toolkit, in addition to resources directed at informing community engagement more generally.

Entities:  

Keywords:  community-engaged research; patient-centered outcomes research; stakeholder engagement; toolkit; veteran

Mesh:

Year:  2018        PMID: 29856238      PMCID: PMC6615406          DOI: 10.2217/cer-2017-0101

Source DB:  PubMed          Journal:  J Comp Eff Res        ISSN: 2042-6305            Impact factor:   1.744


  14 in total

1.  Continuous patient engagement in comparative effectiveness research.

Authors:  C Daniel Mullins; Abdulla M Abdulhalim; Danielle C Lavallee
Journal:  JAMA       Date:  2012-04-18       Impact factor: 56.272

2.  Veterans service organization engagement in 'POWER,' a peer-led hypertension intervention.

Authors:  Katie E Mosack; Angela R Wendorf; Amanda M Brouwer; Leslie Patterson; Kristyn Ertl; Jeff Whittle; Jeff Morzinski; Kathlyn Fletcher
Journal:  Chronic Illn       Date:  2012-02-08

3.  Stakeholder engagement in comparative effectiveness research: how will we measure success?

Authors:  Danielle C Lavallee; Carla J Williams; Ellen S Tambor; Patricia A Deverka
Journal:  J Comp Eff Res       Date:  2012-09       Impact factor: 1.744

4.  Patient and clinician views on comparative effectiveness research and engagement in research.

Authors:  Laura P Forsythe; Lori Frank; Kara Odom Walker; Ayodola Anise; Natalie Wegener; Harlan Weisman; Gail Hunt; Anne Beal
Journal:  J Comp Eff Res       Date:  2015-01       Impact factor: 1.744

5.  The PCORI perspective on patient-centered outcomes research.

Authors:  Lori Frank; Ethan Basch; Joe V Selby
Journal:  JAMA       Date:  2014-10-15       Impact factor: 56.272

6.  Stakeholder participation in comparative effectiveness research: defining a framework for effective engagement.

Authors:  Patricia A Deverka; Danielle C Lavallee; Priyanka J Desai; Laura C Esmail; Scott D Ramsey; David L Veenstra; Sean R Tunis
Journal:  J Comp Eff Res       Date:  2012-03       Impact factor: 1.744

Review 7.  Bringing Patient-Centered Outcomes Research to Life.

Authors:  William B Borden; Yen-Pin Chiang; Richard Kronick
Journal:  Value Health       Date:  2015-03-06       Impact factor: 5.725

Review 8.  A systematic review of stakeholder engagement in comparative effectiveness and patient-centered outcomes research.

Authors:  Thomas W Concannon; Melissa Fuster; Tully Saunders; Kamal Patel; John B Wong; Laurel K Leslie; Joseph Lau
Journal:  J Gen Intern Med       Date:  2014-06-04       Impact factor: 5.128

9.  A model for incorporating patient and stakeholder voices in a learning health care network: Washington State's Comparative Effectiveness Research Translation Network.

Authors:  Emily Beth Devine; Rafael Alfonso-Cristancho; Allison Devlin; Todd C Edwards; Ellen T Farrokhi; Larry Kessler; Danielle C Lavallee; Donald L Patrick; Sean D Sullivan; Peter Tarczy-Hornoch; N David Yanez; David R Flum
Journal:  J Clin Epidemiol       Date:  2013-08       Impact factor: 6.437

10.  Conceptual and practical foundations of patient engagement in research at the patient-centered outcomes research institute.

Authors:  Lori Frank; Laura Forsythe; Lauren Ellis; Suzanne Schrandt; Sue Sheridan; Jason Gerson; Kristen Konopka; Sarah Daugherty
Journal:  Qual Life Res       Date:  2015-01-06       Impact factor: 4.147

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  4 in total

1.  Engaging Veterans, caregivers, and system stakeholders to improve VA home and community-based services.

Authors:  Luci K Leykum; Erin P Finley; Lauren S Penney; Julie Parish Johnson; Jacqueline A Pugh; Polly H Noel
Journal:  Health Serv Res       Date:  2022-03-04       Impact factor: 3.734

2.  Research translation for military and veteran health: research, practice, policy.

Authors:  Jeffrey P Haibach; Katherine D Hoerster; Lindsey Dorflinger; Lisa M McAndrew; Daniel G Cassidy; David E Goodrich; Jill E Bormann; Julie Lowery; Steven M Asch; Susan D Raffa; Tannaz Moin; Alan L Peterson; Michael G Goldstein; Tracy Neal-Walden; Gerald W Talcott; Christopher L Hunter; Sara J Knight
Journal:  Transl Behav Med       Date:  2021-03-16       Impact factor: 3.046

3.  Veteran Engagement in Health Services Research: a Conceptual Model.

Authors:  Sara J Knight; Jeffrey P Haibach; Alison B Hamilton; Jeff Whittle; Sarah S Ono; Jorie Butler; Mark Flower; Carolyn D Ray; Mary Jo Pugh; Susan L Zickmund
Journal:  J Gen Intern Med       Date:  2022-03-29       Impact factor: 6.473

4.  Health Experiences Research as a Resource and Mechanism for Veteran Engagement in VA Healthcare Research and Care Delivery.

Authors:  Shannon M Nugent; Erika Cottrell; Sara J Knight; Mark Helfand
Journal:  J Gen Intern Med       Date:  2022-03-29       Impact factor: 6.473

  4 in total

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