Literature DB >> 22565579

Research ethics education for community-engaged research: a review and research agenda.

Emily E Anderson1, Stephanie Solomon, Elizabeth Heitman, James M DuBois, Celia B Fisher, Rhonda G Kost, Mary Ellen Lawless, Cornelia Ramsey, Bonnie Jones, Alice Ammerman, Lainie Friedman Ross.   

Abstract

Community engagement is increasingly becoming an integral part of research. "Community-engaged research" (CEnR) introduces new stakeholders as well as unique challenges to the protection of participants and the integrity of the research process. We--a group of representatives of CTSA-funded institutions and others who share expertise in research ethics and CEnR--have identified gaps in the literature regarding (1) ethical issues unique to CEnR; (2) the particular instructional needs of academic investigators, community research partners, and IRB members; and (3) best practices for teaching research ethics. This paper presents what we know, as well as what we still need to learn, in order to develop quality research ethics educational materials tailored to the full range of stakeholder groups in CEnR.

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Year:  2012        PMID: 22565579      PMCID: PMC3483026          DOI: 10.1525/jer.2012.7.2.3

Source DB:  PubMed          Journal:  J Empir Res Hum Res Ethics        ISSN: 1556-2646            Impact factor:   1.742


  49 in total

1.  Moral distress: a growing problem in the health professions?

Authors:  Connie M Ulrich; Ann B Hamric; Christine Grady
Journal:  Hastings Cent Rep       Date:  2010 Jan-Feb       Impact factor: 2.683

2.  Ethical challenges for the "outside" researcher in community-based participatory research.

Authors:  Meredith Minkler
Journal:  Health Educ Behav       Date:  2004-12

3.  Ethical issues in community-based participatory research: balancing rigorous research with community participation in community intervention studies.

Authors:  David Ross Buchanan; Franklin G Miller; Nina Wallerstein
Journal:  Prog Community Health Partnersh       Date:  2007

4.  The role of community-based organizations in the recruitment of human subjects: ethical considerations.

Authors:  Emily E Anderson
Journal:  Am J Bioeth       Date:  2010-03       Impact factor: 11.229

5.  Betwixt & between: peer recruiter proximity in community-based research.

Authors:  Sally Bean; Diego S Silva
Journal:  Am J Bioeth       Date:  2010-03       Impact factor: 11.229

6.  Building community-engaged health research and discovery infrastructure on the South Side of Chicago: science in service to community priorities.

Authors:  Stacy Tessler Lindau; Jennifer A Makelarski; Marshall H Chin; Shane Desautels; Daniel Johnson; Waldo E Johnson; Doriane Miller; Susan Peters; Connie Robinson; John Schneider; Florence Thicklin; Natalie P Watson; Marcus Wolfe; Eric Whitaker
Journal:  Prev Med       Date:  2011-01-12       Impact factor: 4.018

7.  The challenges of collaboration for academic and community partners in a research partnership: points to consider.

Authors:  Lainie Friedman Ross; Allan Loup; Robert M Nelson; Jeffrey R Botkin; Rhonda Kost; George R Smith; Sarah Gehlert
Journal:  J Empir Res Hum Res Ethics       Date:  2010-03       Impact factor: 1.742

8.  Increasing research literacy in minority communities: CARES fellows training program.

Authors:  Melody S Goodman; Janice Johnson Dias; Jewel D Stafford
Journal:  J Empir Res Hum Res Ethics       Date:  2010-12       Impact factor: 1.742

9.  The CITI program: an international online resource for education in human subjects protection and the responsible conduct of research.

Authors:  Paul Braunschweiger; Kenneth W Goodman
Journal:  Acad Med       Date:  2007-09       Impact factor: 6.893

10.  Transferring knowledge about human subjects protections and the role of institutional review boards in a community-based participatory research project.

Authors:  Raymond R Hyatt; David M Gute; Alex Pirie; Helen Page; Ismael Vasquez; Franklin Dalembert
Journal:  Am J Public Health       Date:  2009-11       Impact factor: 9.308

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  41 in total

1.  Methodological and Ethical Issues in Pediatric Medication Safety Research.

Authors:  Delesha Carpenter; Daniel Gonzalez; George Retsch-Bogart; Betsy Sleath; Benjamin Wilfond
Journal:  Pediatrics       Date:  2017-08-04       Impact factor: 7.124

2.  The Emergence of Clinical Research Ethics Consultation: Insights From a National Collaborative.

Authors:  Kathryn M Porter; Marion Danis; Holly A Taylor; Mildred K Cho; Benjamin S Wilfond
Journal:  Am J Bioeth       Date:  2018-01       Impact factor: 11.229

3.  Case study in designing a research fundamentals curriculum for community health workers: a university-community clinic collaboration.

Authors:  Jill Dumbauld; Michael Kalichman; Yvonne Bell; Cynthia Dagnino; Howard L Taras
Journal:  Health Promot Pract       Date:  2013-10-11

4.  Oral Health Intervention for Low-Income African American Men in Atlanta, Georgia.

Authors:  LaShawn M Hoffman; Latrice Rollins; Tabia Henry Akintobi; Katherine Erwin; Kimberly Lewis; Natalie Hernandez; Assia Miller
Journal:  Am J Public Health       Date:  2017-05       Impact factor: 9.308

5.  Community Partnered Research Ethics Training in Practice: A Collaborative Approach to Certification.

Authors:  Michael A Yonas; Maria Catrina Jaime; Jean Barone; Shannon Valenti; Patricia Documét; Christopher M Ryan; Elizabeth Miller
Journal:  J Empir Res Hum Res Ethics       Date:  2016-05-30       Impact factor: 1.742

6.  An Ethical Exploration of Barriers to Research on Controlled Drugs.

Authors:  Michael H Andreae; Evelyn Rhodes; Tyler Bourgoise; George M Carter; Robert S White; Debbie Indyk; Henry Sacks; Rosamond Rhodes
Journal:  Am J Bioeth       Date:  2016       Impact factor: 11.229

7.  Convergence Despite Divergence: Views of Academic and Community Stakeholders about the Ethics of Community-Engaged Research.

Authors:  Stephanie M Hoover; Shristi Tiwari; Jimin Kim; Melissa Green; Al Richmond; Mysha Wynn; Kyle Simone Nisbeth; Stuart Rennie; Giselle Corbie-Smith
Journal:  Ethn Dis       Date:  2019-04-18       Impact factor: 1.847

8.  Views of academic and community partners regarding participant protections and research integrity: a pilot focus group study.

Authors:  Emily E Anderson
Journal:  J Empir Res Hum Res Ethics       Date:  2013-02       Impact factor: 1.742

9.  HIV prevention research ethics: an introduction to the special issue.

Authors:  Celia B Fisher
Journal:  J Empir Res Hum Res Ethics       Date:  2014-02       Impact factor: 1.742

10.  Participant and staff experiences in a peer-delivered HIV intervention with injection drug users.

Authors:  Kristin M Kostick; Margaret Weeks; Heather Mosher
Journal:  J Empir Res Hum Res Ethics       Date:  2014-02       Impact factor: 1.742

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