Literature DB >> 23485668

Views of academic and community partners regarding participant protections and research integrity: a pilot focus group study.

Emily E Anderson1.   

Abstract

When community partners have direct interaction with human research participants, it is important to consider potential threats to participant protections and research integrity. Few studies have directly compared the views of academic and community partners. This pilot focus group study explores the views of academic partners (APs) and community partners (CPs) regarding challenges to the protection of research participants and research integrity in community-engaged research (CEnR). Data are analyzed to understand how APs and CPs define and think about ethical problems and how meaning and analysis may differ between the two groups. Findings have implications for the development of research ethics training materials for academic-community research partnerships and IRBs; best practices for CEnR; and future research on ethical issues in CEnR.

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Year:  2013        PMID: 23485668      PMCID: PMC3810167          DOI: 10.1525/jer.2013.8.1.20

Source DB:  PubMed          Journal:  J Empir Res Hum Res Ethics        ISSN: 1556-2646            Impact factor:   1.742


  16 in total

1.  A case study of community-based participatory research ethics: the Healthy Public Housing Initiative.

Authors:  Doug Brugge; Alison Cole
Journal:  Sci Eng Ethics       Date:  2003-10       Impact factor: 3.525

2.  Ethical challenges for the "outside" researcher in community-based participatory research.

Authors:  Meredith Minkler
Journal:  Health Educ Behav       Date:  2004-12

3.  Ethical dilemmas in community-based participatory research: recommendations for institutional review boards.

Authors:  Sarah Flicker; Robb Travers; Adrian Guta; Sean McDonald; Aileen Meagher
Journal:  J Urban Health       Date:  2007-07       Impact factor: 3.671

4.  Variability in institutional approaches to ethics review of community-based research conducted in collaboration with unaffiliated organizations.

Authors:  Michael Silverstein; Mary Banks; Susan Fish; Howard Bauchner
Journal:  J Empir Res Hum Res Ethics       Date:  2008-06       Impact factor: 1.742

5.  Developing methods to compare low-education community-based and university-based survey teams.

Authors:  Doug Brugge; Patricia Kapunan; Lauren Babcock-Dunning; Robyn Greenfield Matloff; Daniel Cagua-Koo; Ekwutosi Okoroh; Fatima L Salas; Laura Bradeen; Mark Woodin
Journal:  Health Promot Pract       Date:  2009-01-07

6.  "You've got to understand community": community perceptions on "breaking the disconnect" between researchers and communities.

Authors:  Clara Goldberg-Freeman; Nancy E Kass; Patricia Tracey; Glenn Ross; Barbara Bates-Hopkins; Leon Purnell; Bernard Canniffe; Mark Farfel
Journal:  Prog Community Health Partnersh       Date:  2007

7.  Managing and analyzing qualitative data. A description of tasks, techniques, and materials.

Authors:  K A Knafl; D C Webster
Journal:  West J Nurs Res       Date:  1988-04       Impact factor: 1.967

8.  Misbehaviors of front-line research personnel and the integrity of community-based research.

Authors:  Gala True; Leslie B Alexander; Kenneth A Richman
Journal:  J Empir Res Hum Res Ethics       Date:  2011-06       Impact factor: 1.742

9.  Transferring knowledge about human subjects protections and the role of institutional review boards in a community-based participatory research project.

Authors:  Raymond R Hyatt; David M Gute; Alex Pirie; Helen Page; Ismael Vasquez; Franklin Dalembert
Journal:  Am J Public Health       Date:  2009-11       Impact factor: 9.308

10.  Taking social relationships seriously: lessons learned from the informed consent practices of a vaccine trial on the Kenyan Coast.

Authors:  Caroline Gikonyo; Philip Bejon; Vicki Marsh; Sassy Molyneux
Journal:  Soc Sci Med       Date:  2008-03-24       Impact factor: 4.634

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  4 in total

1.  Survey on Using Ethical Principles in Environmental Field Research with Place-Based Communities.

Authors:  Dianne Quigley; Alana Levine; David A Sonnenfeld; Phil Brown; Qing Tian; Xiaofan Wei
Journal:  Sci Eng Ethics       Date:  2018-01-03       Impact factor: 3.525

2.  Community-Engaged Research Ethics Review: Exploring Flexibility in Federal Regulations.

Authors:  Stephanie Solomon Cargill; Debra DeBruin; Milton Eder; Elizabeth Heitman; Julie M Kaberry; Jennifer B McCormick; Jennifer Opp; Richard Sharp; A Hal Strelnick; Sabune J Winkler; Mark Yarborough; Emily E Anderson
Journal:  IRB       Date:  2016 May-Jun

3.  Supporting ethical practice in community-engaged research with 4R: Respond, Record, Reflect, and Revise.

Authors:  Tommy Chou; Stacy L Frazier
Journal:  Ethics Behav       Date:  2019-08-09

4.  CIRTification: Training in Human Research Protections for Community-Engaged Research Partners.

Authors:  Emily E Anderson
Journal:  Prog Community Health Partnersh       Date:  2015
  4 in total

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