Literature DB >> 22528633

Developing partnerships and recruiting dyads for a prostate cancer informed decision making program: lessons learned from a community-academic-clinical team.

Daniela B Friedman1, Kim M Johnson, Otis L Owens, Tracey L Thomas, Delisa S Dawkins, Lucy Gansauer, Sharon Bartelt, Nancy M Waddell, Pastor J Talley, James D Bearden, James R Hébert.   

Abstract

Prostate cancer (PrCA) is the most commonly diagnosed non-skin cancer among men. PrCA mortality in African-American (AA) men in South Carolina is ~50% higher than for AAs in the U.S as a whole. AA men also have low rates of participation in cancer research. This paper describes partnership development and recruitment efforts of a Community-Academic-Clinical research team for a PrCA education intervention with AA men and women that was designed to address the discordance between high rates of PrCA mortality and limited participation in cancer research. Guided by Vesey's framework on recruitment and retention of minority groups in research, recruitment strategies were selected and implemented following multiple brainstorming sessions with partners having established community relationships. Based on findings from these sessions culturally appropriate strategies are recommended for recruiting AA men and women for PrCA education research. Community-based research recruitment challenges and lessons learned are presented.

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Mesh:

Year:  2012        PMID: 22528633      PMCID: PMC3352970          DOI: 10.1007/s13187-012-0353-0

Source DB:  PubMed          Journal:  J Cancer Educ        ISSN: 0885-8195            Impact factor:   2.037


  34 in total

1.  Challenges of recruiting ESL immigrants into cancer education studies: reflections from practice notes.

Authors:  Maria D Thomson; Laurie Hoffman-Goetz
Journal:  J Cancer Educ       Date:  2011-03       Impact factor: 2.037

Review 2.  Knowledge and access to information on recruitment of underrepresented populations to cancer clinical trials.

Authors:  J G Ford; M W Howerton; S Bolen; T L Gary; G Y Lai; J Tilburt; M C Gibbons; C Baffi; R F Wilson; C J Feuerstein; P Tanpitukpongse; N R Powe; E B Bass
Journal:  Evid Rep Technol Assess (Summ)       Date:  2005-06

3.  Provider roles in the recruitment of underrepresented populations to cancer clinical trials.

Authors:  Mollie W Howerton; M Chris Gibbons; Charles R Baffi; Tiffany L Gary; Gabriel Y Lai; Shari Bolen; Jon Tilburt; Teerath Peter Tanpitukpongse; Renee F Wilson; Neil R Powe; Eric B Bass; Jean G Ford
Journal:  Cancer       Date:  2007-02-01       Impact factor: 6.860

4.  African American men's perspectives on promoting physical activity: "We're not that difficult to figure out!".

Authors:  Daniela B Friedman; Steven P Hooker; Sara Wilcox; Ericka L Burroughs; Carol E Rheaume
Journal:  J Health Commun       Date:  2012-07-18

5.  Costs of recruiting couples to a clinical trial.

Authors:  Georgia Robins Sadler; Celine M Ko; Vanessa L Malcarne; Rajni Banthia; Ivan Gutierrez; James W Varni
Journal:  Contemp Clin Trials       Date:  2006-11-21       Impact factor: 2.226

6.  How sociodemographics, presence of oncology specialists, and hospital cancer programs affect accrual to cancer treatment trials.

Authors:  Warren B Sateren; Edward L Trimble; Jeffrey Abrams; Otis Brawley; Nancy Breen; Leslie Ford; Mary McCabe; Richard Kaplan; Malcolm Smith; Richard Ungerleider; Michaele C Christian
Journal:  J Clin Oncol       Date:  2002-04-15       Impact factor: 44.544

7.  Factors affecting older african american women's decisions to join the PLCO Cancer Screening Trial.

Authors:  Jeanette M Trauth; Jan C Jernigan; Laura A Siminoff; Donald Musa; Derietra Neal-Ferguson; Joel Weissfeld
Journal:  J Clin Oncol       Date:  2005-12-01       Impact factor: 44.544

8.  Prostate cancer community collaboration and partnership: education, awareness, recruitment, and outreach to southern African-American males.

Authors:  Gail D Hughes; Denethia B Sellers; Lionel Fraser; Robert Teague; Bern'Nadette Knight
Journal:  J Cult Divers       Date:  2007

Review 9.  Systematic review of interventions to increase physical activity and physical fitness in African-Americans.

Authors:  Melicia C Whitt-Glover; Shiriki K Kumanyika
Journal:  Am J Health Promot       Date:  2009 Jul-Aug

10.  Recruitment and retention of economically underserved women to a cervical cancer prevention trial.

Authors:  Joanne Motiño Bailey; Mary E Bieniasz; David Kmak; Dean E Brenner; Mack T Ruffin
Journal:  Appl Nurs Res       Date:  2004-02       Impact factor: 2.257

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  21 in total

1.  Innovative and Community-Guided Evaluation and Dissemination of a Prostate Cancer Education Program for African-American Men and Women.

Authors:  Dawnyea D Jackson; Otis L Owens; Daniela B Friedman; Ragan Dubose-Morris
Journal:  J Cancer Educ       Date:  2015-12       Impact factor: 2.037

2.  FAmily CEntered (FACE) advance care planning: Study design and methods for a patient-centered communication and decision-making intervention for patients with HIV/AIDS and their surrogate decision-makers.

Authors:  Allison L Kimmel; Jichuan Wang; Rachel K Scott; Linda Briggs; Maureen E Lyon
Journal:  Contemp Clin Trials       Date:  2015-06-02       Impact factor: 2.226

3.  Digital Solutions for Informed Decision Making: An Academic-Community Partnership for the Development of a Prostate Cancer Decision Aid for African American Men.

Authors:  Otis L Owens; Daniela B Friedman; Heather M Brandt; Jay M Bernhardt; James R Hébert
Journal:  Am J Mens Health       Date:  2015-01-06

4.  It takes two to talk about prostate cancer: a qualitative assessment of African American men's and women's cancer communication practices and recommendations.

Authors:  Daniela B Friedman; Tracey L Thomas; Otis L Owens; James R Hébert
Journal:  Am J Mens Health       Date:  2012-07-17

5.  The Los Angeles Healthy Community Neighborhood Initiative: A Ten Year Experience in Building and Sustaining a Successful Community-Academic Partnership.

Authors:  Keyonna M King; D'Ann Morris; Loretta Jones; Aziza Lucas-Wright; Felica Jones; Homero E Del Pino; Courtney Porter; Roberto Vargas; Katherine Kahn; Arleen F Brown; Keith C Norris
Journal:  HSOA J Community Med Public Health Care       Date:  2015-06-15

6.  Involving disparate populations in clinical trials and biobanking protocols: experiences from the community network program centers.

Authors:  Beti Thompson; James R Hébert
Journal:  Cancer Epidemiol Biomarkers Prev       Date:  2014-03       Impact factor: 4.254

7.  Effective recruitment strategies and community-based participatory research: community networks program centers' recruitment in cancer prevention studies.

Authors:  K Allen Greiner; Daniela B Friedman; Swann Arp Adams; Clement K Gwede; Paula Cupertino; Kimberly K Engelman; Cathy D Meade; James R Hébert
Journal:  Cancer Epidemiol Biomarkers Prev       Date:  2014-03       Impact factor: 4.254

8.  Using CBPR to Extend Prostate Cancer Education, Counseling, and Screening Opportunities to Urban-Dwelling African-Americans.

Authors:  Levi Ross; Jarrett Johnson; Stacy W Smallwood; John S Luque; Stuart H Tedders; Collins O Airhihenbuwa; Terry Alford; Willie Underwood
Journal:  J Cancer Educ       Date:  2016-12       Impact factor: 2.037

9.  An evaluation of a community-academic-clinical partnership to reduce prostate cancer disparities in the South.

Authors:  Daniela B Friedman; Otis L Owens; Dawnyea D Jackson; Kim M Johnson; Lucy Gansauer; Joe Dickey; Ron Miller; Johnny Payne; James D Bearden; James R Hebert
Journal:  J Cancer Educ       Date:  2014-03       Impact factor: 2.037

10.  An intergenerational approach to prostate cancer education: findings from a pilot project in the southeastern USA.

Authors:  Dawnyea D Jackson; Otis L Owens; Daniela B Friedman; James R Hebert
Journal:  J Cancer Educ       Date:  2014-12       Impact factor: 2.037

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