Literature DB >> 22371462

Enrollment of extremely low birth weight infants in a clinical research study may not be representative.

Wade Rich1, Neil N Finer, Marie G Gantz, Nancy S Newman, Angelita M Hensman, Ellen C Hale, Kathy J Auten, Kurt Schibler, Roger G Faix, Abbot R Laptook, Bradley A Yoder, Abhik Das, Seetha Shankaran.   

Abstract

BACKGROUND AND
OBJECTIVE: The Surfactant Positive Airway Pressure and Pulse Oximetry Randomized Trial (SUPPORT) antenatal consent study demonstrated that mothers of infants enrolled in the SUPPORT trial had significantly different demographics and exposure to antenatal steroids compared with mothers of eligible, but not enrolled infants. The objective of this analysis was to compare the outcomes of bronchopulmonary dysplasia, severe retinopathy of prematurity, severe intraventricular hemorrhage or periventricular leukomalacia (IVH/PVL), death, and death/severe IVH/PVL for infants enrolled in SUPPORT in comparison with eligible, but not enrolled infants.
METHODS: Perinatal characteristics and neonatal outcomes were compared for enrolled and eligible but not enrolled infants in bivariate analyses. Models were created to test the effect of enrollment in SUPPORT on outcomes, controlling for perinatal characteristics.
RESULTS: There were 1316 infants enrolled in SUPPORT; 3053 infants were eligible, but not enrolled. In unadjusted analyses, enrolled infants had significantly lower rates of death before discharge, severe IVH/PVL, death/severe IVH/PVL (all < 0.001), and bronchopulmonary dysplasia (P = .003) in comparison with eligible, but not enrolled infants. The rate of severe retinopathy of prematurity was not significantly different. After adjustment for perinatal factors, enrollment in the trial was not a significant predictor of any of the tested clinical outcomes.
CONCLUSIONS: The results of this analysis demonstrate significant outcome differences between enrolled and eligible but not enrolled infants in a trial using antenatal consent, which were likely due to enrollment bias resulting from the antenatal consent process. Additional research and regulatory review need to be conducted to ensure that large moderate-risk trials that require antenatal consent can be conducted in such a way as to ensure the generalizability of results.

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Year:  2012        PMID: 22371462      PMCID: PMC3289530          DOI: 10.1542/peds.2011-2121

Source DB:  PubMed          Journal:  Pediatrics        ISSN: 0031-4005            Impact factor:   7.124


  7 in total

1.  Is informed consent always necessary for randomized, controlled trials? .

Authors:  R D Truog; W Robinson; A Randolph; A Morris
Journal:  N Engl J Med       Date:  1999-03-11       Impact factor: 91.245

2.  Do sick newborn infants benefit from participation in a randomized clinical trial?

Authors:  B Schmidt; P Gillie; C Caco; J Roberts; R Roberts
Journal:  J Pediatr       Date:  1999-02       Impact factor: 4.406

Review 3.  Is the concept of informed consent applicable to clinical research involving critically ill patients?

Authors:  John M Luce
Journal:  Crit Care Med       Date:  2003-03       Impact factor: 7.598

4.  Antenatal consent in the SUPPORT trial: challenges, costs, and representative enrollment.

Authors:  Wade D Rich; Kathy J Auten; Marie G Gantz; Ellen C Hale; Angelita M Hensman; Nancy S Newman; Neil N Finer
Journal:  Pediatrics       Date:  2010-06-29       Impact factor: 7.124

5.  Participants in prospective, randomized clinical trials for resected non-small cell lung cancer have improved survival compared with nonparticipants in such trials.

Authors:  S Davis; P W Wright; S F Schulman; L D Hill; R D Pinkham; L P Johnson; T W Jones; H B Kellogg; H M Radke; W W Sikkema
Journal:  Cancer       Date:  1985-10-01       Impact factor: 6.860

6.  Early CPAP versus surfactant in extremely preterm infants.

Authors:  Neil N Finer; Waldemar A Carlo; Michele C Walsh; Wade Rich; Marie G Gantz; Abbot R Laptook; Bradley A Yoder; Roger G Faix; Abhik Das; W Kenneth Poole; Edward F Donovan; Nancy S Newman; Namasivayam Ambalavanan; Ivan D Frantz; Susie Buchter; Pablo J Sánchez; Kathleen A Kennedy; Nirupama Laroia; Brenda B Poindexter; C Michael Cotten; Krisa P Van Meurs; Shahnaz Duara; Vivek Narendran; Beena G Sood; T Michael O'Shea; Edward F Bell; Vineet Bhandari; Kristi L Watterberg; Rosemary D Higgins
Journal:  N Engl J Med       Date:  2010-05-16       Impact factor: 91.245

7.  Target ranges of oxygen saturation in extremely preterm infants.

Authors:  Waldemar A Carlo; Neil N Finer; Michele C Walsh; Wade Rich; Marie G Gantz; Abbot R Laptook; Bradley A Yoder; Roger G Faix; Abhik Das; W Kenneth Poole; Kurt Schibler; Nancy S Newman; Namasivayam Ambalavanan; Ivan D Frantz; Anthony J Piazza; Pablo J Sánchez; Brenda H Morris; Nirupama Laroia; Dale L Phelps; Brenda B Poindexter; C Michael Cotten; Krisa P Van Meurs; Shahnaz Duara; Vivek Narendran; Beena G Sood; T Michael O'Shea; Edward F Bell; Richard A Ehrenkranz; Kristi L Watterberg; Rosemary D Higgins
Journal:  N Engl J Med       Date:  2010-05-16       Impact factor: 91.245

  7 in total
  23 in total

1.  Early working memory as a racially and ethnically neutral measure of outcome in extremely preterm children at 18-22 months.

Authors:  Jean R Lowe; Andrea Freeman Duncan; Carla M Bann; Janell Fuller; Susan R Hintz; Abhik Das; Rosemary D Higgins; Kristi L Watterberg
Journal:  Early Hum Dev       Date:  2013-08-29       Impact factor: 2.079

2.  Quality improvement ethics: lessons from the SUPPORT study.

Authors:  Benjamin S Wilfond
Journal:  Am J Bioeth       Date:  2013       Impact factor: 11.229

3.  Use of antihypotensive therapies in extremely preterm infants.

Authors:  Beau Batton; Lei Li; Nancy S Newman; Abhik Das; Kristi L Watterberg; Bradley A Yoder; Roger G Faix; Matthew M Laughon; Barbara J Stoll; Krisa P Van Meurs; Waldemar A Carlo; Brenda B Poindexter; Edward F Bell; Pablo J Sánchez; Richard A Ehrenkranz; Ronald N Goldberg; Abbot R Laptook; Kathleen A Kennedy; Ivan D Frantz; Seetha Shankaran; Kurt Schibler; Rosemary D Higgins; Michele C Walsh
Journal:  Pediatrics       Date:  2013-05-06       Impact factor: 7.124

4.  Delivery room research: when does poor quality evidence become an ethical issue?

Authors:  Elizabeth E Foglia; Louise S Owen; Haresh Kirpalani
Journal:  Pediatrics       Date:  2015-05       Impact factor: 7.124

Review 5.  Current concepts of oxygen therapy in neonates.

Authors:  Siddarth Ramji; Ola D Saugstad; Ashish Jain
Journal:  Indian J Pediatr       Date:  2014-10-18       Impact factor: 1.967

6.  Pediatric clinical pharmacology: an introduction to a series of educational papers.

Authors:  Karel Allegaert
Journal:  Eur J Pediatr       Date:  2013-01-05       Impact factor: 3.183

Review 7.  Comparative effectiveness trials: generic misassumptions underlying the SUPPORT controversy.

Authors:  Jon E Tyson; Michele Walsh; Carl T D'Angio
Journal:  Pediatrics       Date:  2014-09-08       Impact factor: 7.124

Review 8.  Perinatal management: What has been learned through the network?

Authors:  Sanjay Chawla; Elizabeth E Foglia; Vishal Kapadia; Myra H Wyckoff
Journal:  Semin Perinatol       Date:  2016-08-01       Impact factor: 3.300

9.  Perinatal pharmacology.

Authors:  John van den Anker; Karel Allegaert
Journal:  Semin Fetal Neonatal Med       Date:  2012-12-01       Impact factor: 3.926

10.  Association of Umbilical Cord Milking vs Delayed Umbilical Cord Clamping With Death or Severe Intraventricular Hemorrhage Among Preterm Infants.

Authors:  Anup Katheria; Frank Reister; Jochen Essers; Marc Mendler; Helmut Hummler; Akila Subramaniam; Waldemar Carlo; Alan Tita; Giang Truong; Shareece Davis-Nelson; Georg Schmölzer; Radha Chari; Joseph Kaempf; Mark Tomlinson; Toby Yanowitz; Stacy Beck; Hyagriv Simhan; Eugene Dempsey; Keelin O'Donoghue; Shazia Bhat; Matthew Hoffman; Arij Faksh; Kathy Arnell; Wade Rich; Neil Finer; Yvonne Vaucher; Paritosh Khanna; Mariana Meyers; Michael Varner; Phillip Allman; Jeff Szychowski; Gary Cutter
Journal:  JAMA       Date:  2019-11-19       Impact factor: 56.272

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